I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Research from Netherlands on understanding risks v benefits

User
Posted 01 November 2017 00:03:38(UTC)

I read this tonight and found it interesting re making a decision post diagnosis:


https://prostatecancerin...nk.net/2017/10/03/25450/


Regards

Clare
Thanked 4 times
User
Posted 01 November 2017 10:47:41(UTC)

Thanks for that; fascinating.

I consider myself more 'health literate' than average, but my decision wasn't as 'informed' as I would have liked it to be. The only good thing is, if I knew then what I know now, I'd have made the same decision.

Or is that just confirmation bias?  ;-)

The problem - for me, anyway - wasn't that anyone deceived me, or hid the truth, it was simply that I didn't know to ask the right questions.

Easy to understand why those going through post-diagnosis anger choose to focus on the medical team!

.

-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx
Thanked 1 time
User
Posted 01 November 2017 10:59:23(UTC)
Maybe we should have a standard 'pre decision quiz'! We could say you are not getting your next appointment until you show competence at answering all these questions!

Smiling! ;)
User
Posted 03 November 2017 07:02:08(UTC)
Hi Andrew

Please can I ask what questions you would have asked? My husband and I see his oncologist for the first time today to discuss treatment options.

We've read loads about each treatment, the advantages and disadvantages of each - but we are both struggling to know what the best course of action would be.

If you could be so kind to let me know what you'd have asked in hindsight, I'd be really grateful.

Many thanks

Wendy
User
Posted 04 November 2017 16:43:17(UTC)

Thanks,interesting reading,though does not come as a surprise..

Thanked 1 time
User
Posted 04 November 2017 18:37:16(UTC)

I agree ........ interesting read but no surprise to me. Consultants have a natural bias towards their own speciality especially if they have just had to justify the cost of, say, a new Da Vinci machine!

Thanked 2 times
User
Posted 06 November 2017 10:59:00(UTC)

Excellent point Devon_lad. I agree with the Netherlands report that given the nature of 'patient choice' in treatment of low risk PCA the diagnosis should be given by an independent subject expert in a completely objective way.

We were given the diagnosis by a surgeon who did tell us that we had a choice between AS, RP and RT and that an appointment would be made to see an oncologist .. but then went on to recommend a RP with what could be described as a 'sales pitch'

I think you need time between diagnosis and any recommendations being made.

 
©2018 Prostate Cancer UK