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My husband diagnosed yesterday

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User
Posted 23 Dec 2017 at 04:18
That is interesting about the metformin. My husband has been on it for just over a year now as he was diagnosed with type 2 . He has found a lot of unpleasant side effects though. Have a great Christmas with your family. Regards
User
Posted 23 Dec 2017 at 18:46

Ironic about the unpleasant Metformin side effects as that is one of the things being looked at. Whether it will help with hormone therapy side effects as well as treat the disease itself.

User
Posted 25 Dec 2017 at 14:14
That is interesting. My husband hasn’t had much effect from the Hormone treatment, yet. I’m going to have a chat with him about this. He hasn’t said much about metformin effects lately, either.
User
Posted 02 Feb 2018 at 16:50

Just thought I’d give a quick update . My husband had his oncology appointment on Tuesday. We went through the scans again, which was useful but scary. The first time I don’t think we could take it all in. The e bone mets look to be widespread. Anyway the Onco was very good and we made a plan to go ahead with Docetaxel. 6 cycles to start but not for three weeks. It seems to be all waiting now. Still we now have a window of time with nothing happening so we are going to take a few days away the week before we go back. I think it will do us both good to have a change of scenery. And we can’t really go far once it all starts.

User
Posted 04 Feb 2018 at 14:40
Hi Suzy, our journeys with our husbands really are similar. We had the appointment on Friday to discuss treatment etc. Sean’s bone scan showed the cancer had spread way further then we expected, it was so scary, I wish I hadn’t seen it. It has also spread to his liver, which is even more worrying. He starts the same treatment as your husband, six sessions once every three weeks, starting on 20 February, a week after his 52nd birthday. It sure what will happen beyond that, I guess it’s an ongoing battle. I’ve decided i need a coping mechanism as I’m going to have to be strong for him, so I’m upping my running, and entering races. I’m fundraising for this charity too with the Great North run, as I want to give something back. Hopefully all this will help my mental health so I can be the support that Sean will need.
Anyway, take care Suzie, am sending much love to you both, and indeed to everyone going through this nightmare xxx
User
Posted 05 Feb 2018 at 15:34

It’s so similar it’s strange, but I think could be really supportive for us both. The bone mets scared me as they seem to be so widespread.and the cancer below the kidney seems a mystery even to onco! Today Mike got his letter from The Leeds Cancer centre. We go to see the specialist nurse for bloods and a tour on the 20th. Then back on 21st for first infusion. They have booked all six appointments so at least we can make an attempt at planning around them. If all goes well Mikes birthday and our 45th anniversary land in the few days leading up to another infusion. I guess if he’s ever going to be ok it will be then! So all good and fingers very firmly crossed.
I can’t run like you so I’m trying to plan in other ways. I’ve got a small cool bag ready to take with drinks and pineapple for the sessions. All ready in the freezer. I’ve stocked up the meds cabinet with mouthwash, laxative and Imodium. New battery in thermometer and I’ve packed a small overnight for hospital in case we have any signs of infections. I’ve already been warned about being very proactive about ringing, night or day. Also family warned about walking the dogs!
We just need to get started don’t we. Good luck to Sean, fingers crossed for him, and everyone else about to start treatment.
Susie

Edited by member 06 Feb 2018 at 14:05  | Reason: Not specified

User
Posted 06 Feb 2018 at 14:11

Just back from GP. We went for diabetic review. Asked if hospital blood tests from last week were on system yet. They were.
PSA down from 210 to 1-5!!!!! All thanks to Prostap .Best news for three months.

User
Posted 06 Feb 2018 at 15:05
That’s great news susie so please for you 😀
Don't deny the diagnosis; try to defy the verdict
User
Posted 06 Feb 2018 at 15:12
That is fantastic news which I am sure has given you a real boost.
So pleased for you - long may it continue.
User
Posted 06 Feb 2018 at 15:13

Brilliant news Susie.

Very pleased for you both

We can't control the winds - but we can adjust our sails
User
Posted 06 Feb 2018 at 15:31

Thanks everyone. I’ve been in despair but that has given us such a boost.i know enough now that we need to take each day as it comes. Hope it gives others, especially newly diagnosed, some hope that the treatments are worth the effects.

User
Posted 06 Feb 2018 at 15:33

That's great news. So pleased for you.

User
Posted 06 Feb 2018 at 18:37
Wonderful news!!
User
Posted 06 Feb 2018 at 20:03
Fantastic news for you both, so pleased youve got some good news..jo.xx
User
Posted 06 Feb 2018 at 22:24
Brilliant news Susie! - so pleased for you both.
Debbie x
User
Posted 07 Feb 2018 at 12:09

That's lovely news Susie.


Elaine xx

 
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