Advice needed....

User

Posted 15 Jan 2018 at 21:28

Here us a link

http://www.ox.ac.uk/news/2016-09-15-largest-uk-trial-treatment-prostate-cancer-publishes-first-results

We found it interesting. Our surgeon ( unused ATM) publishes real time side effect data ( he is considered a top surgeon)

https://www.birminghamprostateclinic.co.uk/prostate/live-results/erectile-function-12-month-results/

This is also interesting to us but we did wish the dark green zone info was more transparent ...tablets or no tablets and 'sufficient for sexual intercourse' being compared with prior to procedure ( 70% strength for example)

I do like as much info as possible before making a decision but I have learnt on here that we are all very different..

Good luck

Clare

User

Posted 16 Jan 2018 at 10:49

Hi Claret,

Thanks for that info- very interesting. I’ve asked my consultant to get the ball rolling on robotic surgery. It does come down to personal choice and I’d rather try to get on with my life without worrying about how this disease may change, hoping of course that they’re able to remove it completely. I read a report which concluded that surgery is the most prudent treatment in younger men because I’m hoping to live a lot longer than 15 years. My wife is fully supportive- in fact she was pushing me towards surgery based on the stats we were provided with if we let this thing go on. As with anything around this disease, you take your chances and hope for the best. That’s what I’ll be doing regarding the side effects of surgery, hoping that I’m lucky to come away with my nerve endings and have the best life I can. Again the figures suggest that my age and prognosis should help me in that respect.

Thanks,

Andy

User

Posted 16 Jan 2018 at 12:10

Hi Andy
I was 48 at surgery. Unfortunately I already had spread and the op results were pretty awful. They didn’t even think RT would give cure so I rejected it.
HOWEVER I just wanted to say to you that a fantastic recovery can be had , but it’s a long hard journey with a good partner. I was continent in 3 months but I guess that can be just luck. I am now back to absolutely full erections but take daily Cialis for this. Surgery does reduce penis size though sadly. If I’d been cured I’d be in a great place , but it’s taken 30 months tbh

User

Posted 16 Jan 2018 at 13:46

Hi Andy

Chris j mentions size reduction. I was warned of this but it didnt happen and I have no notable reduction. My Pca was left to long which meant only 50% nerve sparing and still ED after one year. I'm glad its out but wish it had gone sooner.

Best of luck

Cheers

Bill63

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