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Told operation too risky :(

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User
Posted 14 Aug 2018 at 16:48

Great news Rich.

Ian

Ido4

User
Posted 14 Aug 2018 at 17:02
Chuffed for you Rich !
User
Posted 20 Aug 2018 at 19:57
Great news Rich.

I have just completed my 37 fractions on Friday 17th August not due for my review until October

User
Posted 20 Aug 2018 at 20:15

That's great news Rich. Well done.

Kind regards

Kevan 

User
Posted 07 Sep 2018 at 22:03

I've had something of an epiphany this week (again?). I've been feeling good but not in a manic way like I was earlier in the year. I had the second meeting with clinical psychologist at Maggie's today. I just said that I feel that, despite being diagnosed "High grade", "High risk" and having "very aggressive PCa" that I'm ok. I'm sure that I will be fine for at least the next 3 years. I mean no change to condition.

I said today that I felt that I had re-categorised the "Big C" into into the "Little c" and effectively parked it up for the moment. It has been quite empowering for me!. My counsellor was gobsmacked at that and asked if she could quote me on it to other people! I said yes.

When I said to my oncologist after first post treatment consultation that I wasn't happy with men's support group outcome he told me to stop going and get on with life! So I think I will have a break from all this madness and laugh and enjoy life. I;m off to Japan next Friday with work and I may try to dip in and out of this site (but I may not!).

I know I will have the odd bad day but that is life - "Into each life some rain must fall, some days must be dark and dreary" (HWL).

 

Thanks to you people who do such a fantastic job to help men and their partners come to terms with this.

Good-bye for now!

Richard :)

Edited by member 07 Sep 2018 at 22:50  | Reason: Not specified

User
Posted 08 Sep 2018 at 09:37
Well done!

The proportion of the battle that must be fought in the mind should never be underestimated and it seems you have won an important victory in yours.

Nick

User
Posted 08 Sep 2018 at 10:32
Fab post.. very positive and great to read.

Enjoy Japan and life!

Regards

Clare

User
Posted 08 Sep 2018 at 17:11

Good for you Rich. Enjoy your adventures.

Ian

Ido4

User
Posted 08 Sep 2018 at 17:42

Hi Rich 

This is great news and I am so pleased for you.

Enjoy Japan. 

Kind regards

Kevan 

User
Posted 09 Sep 2018 at 07:05
Hi Rich good news,

it is now 13 years since Tony first went to the drs about his problem with his wee spraying and being slow, Gleason 9 T3B spread to seminals very aggressive he was 60 at the time, roll forward 13 years he is still here and still fighting it, no pain no anything really he gets tired more but he is now 73. good luck with your journey.

regards barbara

User
Posted 09 Sep 2018 at 12:07
Thank you so much for that Barbara, I 'll try to keep little c in the back of the cupboard until at least 2030 then!!!

Richard, xx.

User
Posted 09 Sep 2018 at 18:52

There are just as many side effects with RT and HT surgery is the gold standard.

User
Posted 09 Sep 2018 at 19:09

Originally Posted by: Online Community Member

There are just as many side effects with RT and HT surgery is the gold standard.

That's really not an accurate statement, Dave. Surgery and HT+RT have very different side-effects, but neither is a "gold standard". They have almost identical long-term success rates, and which is better depends very much on the individual circumstances; every instance of prostate cancer is different. There are cases where a patient will be offered both, and other cases where the MDT will recommend one in preference to the other. In my own case, for example, they gave a strong recommendation that RT was to be preferred to surgery because there was a high risk of surgery not getting a negative surgical margin. 

Chris

 

User
Posted 09 Sep 2018 at 20:43
Rich , I’ve reported you to the moderators ok. I love a beer too but it’s becoming a regular thing with you to fall out. I was a bit angry when I started for all the right reasons , but at the end of the day we are all really suffering and struggling , but in our own ways yeh !! It’s a free speech forum and abuse of any kind isn’t ok. Just saying ....,,
User
Posted 13 Oct 2018 at 21:34

I have thought about this for a good few weeks now. 2 weeks in Japan which is normally a good leveller.

I think you're answers are so unfair Chris. The moderators have never sanctioned me up to now. You quote free speech and yet report me?. The reason I have been upset in the past is when men brag about having surgery as the gold standard and I'm too advanced for that. How do you think that makes people feel who are told they can't have surgery? Prove that I am out of order because the moderators clearly don't agree. I have no desire to use this site any more - not like last threats to leave, I've already left. It's no good unless you're new. Lyn and Ian are fantastic and I'll miss them.

You...........?                   No.

Edited by member 13 Oct 2018 at 22:28  | Reason: Not specified

User
Posted 13 Oct 2018 at 22:38

You’ve removed / deleted and in most likelihood already forgotten your offensive single-word posts on this thread whilst under the influence tbh. In fact you thanked me for pulling you up ! 

Edited by member 13 Oct 2018 at 22:39  | Reason: Not specified

User
Posted 13 Oct 2018 at 23:23
No I have not forgotten anything. I removed the ones you indicated were offensive!
User
Posted 13 Oct 2018 at 23:43
Offensive? Pathetic Chris, really pathetic. You complained so I deleted potentially offensive posts and now you are complaining about that?

I joined here Gleason 9 this year after being oblivious this time last year. Now reading "Staring at the sun" and "With the end in mind". Unlike you they are now a great help and I am not scared.............

User
Posted 10 Nov 2018 at 00:33

Hello,

I'm new to this, my uncle has not long been diagnosed with prostate cancer he recently underwent surgery and now has to have 4 weeks worth of radiotherapy how was the treatment and what was it like he's 79 years old and hasn't really got anyone other than me and my parents. 

User
Posted 10 Nov 2018 at 06:28
Hi Sophie,

Sorry to read of Uncle’s dilemma, but your best bet is if you start your own thread with whatever title you like, and also fill in as many of Uncle’s cancer details as you can on your profile. Click on mine as an example.

That will greatly assist people here to advise you.

Hope all goes well.

Cheers, John.

 
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