Positive stories please!

It is good to remain positive and we have had men with advanced PCa on this forum who have been with us for many years. This possibility is increased by further down the line treatments that are being introduced or being trialed. Meanwhile, much depends on how Dad responds to his treatment(s) which varies from man to man. Hope it goes well for Dad.

You don't say how old your dad is or how active he is so I may not be comparing apples with apples but I was diagnosed with advanced prostate cancer in November 2014 age 49.

Once I got over a couple of months emotional denial I decided to push myself and make the most of it. I came to the conclusion that no matter how justified, a day feeling sad was a wasted day.

I turned my energy into running, raising money for Prostate Cancer UK ( the charity whose forum we use and benefit greatly from), spreading awareness and trying to let people understand just how important living for the day is , cancer or no cancer.

I ran two marathons on chemotherapy, have completed the marathon des sables (250k across the Sahara)twice plus a bunch of similar races and in 5 weeks am off to the arctic for a 380 mile race unsupported pulling a sledge, it will be -50c or more at times ( then back to do the MDS, +50c, for a third time 2 weeks later).

So whilst everyone does not have the ability to do what I do, it is possible to do so much even with advanced prostate cancer, I never ran that far before I had cancer.

You will of course know more when you get dads results but before and after that don't let a preconception of prostate cancer stop your dad doing anything.

Hi
It's a worrying time I know.
I was diagnosed in December 2014 and by the time I was staged and told that the PCa had spread to my hip the psa had risen to 235.
I was put onto Ht (prostap) and told I could not have RT or surgery because of the spread.
Then in February 2015 I joined a Stampede trial of enzalutamide.
I'm still on both drugs and my psa has been around .05 for about 33 months.
I feel ok, I go hiking and am trying to get back into running again. I ride a motorcycle as well. Exercise and diet are so important. Life is still good.
I hope all goes ok with your Dad
Keep in touch.
Paul

Edited by member 27 Jan 2018 at 01:01  | Reason: Not specified

Hi 2 years on and being diagnosed incurable PSA 23 Gleason 9 ,spread to lymph nodes .Gary has had early chemo which luckily gave him very few side effects and he continued to work as he still does now .it was the oncologist who offered him the stampede trial and he was lucky enough to get abi / Enzo arm j which again he has been fortunate to have manageable side effects ,mainly fatigue and loss of strength .PSA has been undetectable for over 18 months (app on tues ,so fingers crossed) even if your OH doesn’t get the arm of the trial he would like ( it’s up to a computer ) it’s worth being on it just for the extra monitoring,Gary has blood tests every 4 weeks and oncologist every 8 weeks .even if after being on trial for a few weeks and find it’s not for him they would still monitor him as if he was .
Best wishes
Debby

I don’t look in as often these days but sometimes a thread catches my eye or my heart I am not sure which .

Ok so bad news for us is that Trevor passed away in Nov ( you can click on peoples avatar to read there stories ) the more positive news is he survived and not just survived but lived a good and fulfilling four and a half years after diagnosis .

His initial PSA was 13000 with spread to his whole torso , so even when the news is bad it’s not always the end , sometimes it’s a new beginning.

BFN

Julie X