Hi Rich,
Good to see your query (and you made me smilehttps://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif, thank you!).
Lyn is right. There's a chageover of organisers. Ann Innes has been promoted within Prostate Charity UK, and Sue Boyles has had to step in quickly.
Sue has worked for the charity for many years and her name will be familiar to PCa Support Groups nationwide.
She's having to play 'catch up' at the moment and I'm helping her in any way I can.
I think your name mustn't be on the group email list for the June 23rd do.
Sue is busy putting together an updated list.
See the latest group email (below) and contact her
--------------------------------------------------------
Here's her message:
Hi everyone,
Please accept my apologies for any confusion that may have been caused regarding the buffet cost and method of payment.
To assist us with the cost of the buffet please can we ask that you make a £10 per head donation by using any of the options which are listed on the Prostate Cancer UK site's 'Donate' page:
https://prostatecanceruk.org/get-involved/donate
and then email me when you have done so, at:
[email protected]
Please don’t hesitate to contact me if you wish to discuss anything to do with the event arrangements.
Kind Regards
Sue
Sue Boyes
Peer Support Officer
Prostate Cancer UK
Counting House
53 Tooley Street
London SE1 2QN
m: 07432 529 138
George
PS. My favourite ditzy blonde Janet must have been typing at the same time as me.
This will have come as a shock to her, as she knows I sometimes sleep till 1pm!https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif
Edited by member 29 Apr 2018 at 12:03
| Reason: Not specified
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User
No rooms left now.......!!
User
I asked weeks ago so I could book a room. None left now? This is why I was asking! Well, maybe next year if I'm still alive ;) Massive waste of time.
Edited by member 29 Apr 2018 at 22:02
| Reason: Not specified
User
These two alternatives were recommended by some of the regualr attenders over the years:
Fossebrook Bed & Breakfast
Coventry Road
Croft
Leicestershire
LE9 3GP
Tel: 01455 283517
Fax: 01455 283517
http://fossebrook.co.uk/
Langton Brook Farm
Langton Road
Great Bowden, Market Harborough, Leicestershire LE16 7EZ
Telephone 01858 545730
E-mail: [email protected]
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User
Hi Rich, did you phone Mill on the Soar, or check online? It’s worth calling them as people sometimes cancel and rooms become available. You could maybe see if they have a ‘waiting list’. Or you could book one of the B&Bs George mentions. Or there are hotels reasonably close by - I know people have stayed at The Marriott previously.
Hope you find a way to get there, and anyone else does who is still thinking about going.
Janet, x
User
Thanks for the information Janet & George. I'm sure I'll get somewhere then.
Richard
User
Hi Rich,
Are you the gentleman I sent a personal email too yesterday? My apologies to everyone for the hiccups but it would be most appreciated if people could stick to emailing me as this is the quickest and surest way of contacting me. many thanks
[email protected]
Sue
User
Hi Sue,
yes I am although I didn't see the email. I have replied as per your request. Thank you very much.
Richard
User
Hi everyone,
Here is the list so far of those who have confirmed they are attending. If I have missed anyone off please can I ask that you email me direct [email protected] thank you
ALAN & CELIA TAYLOR
Art
BARRY & BARBARA GOWN
Old Barry
Boyd Brooks
CHRIS & SHIRLEY BUTCHER
Exbus
DAN SENCIER
Dansencier
DAVID & LYNNE
Auld Codger
GEORGE HARDY (x3)
George_H
JANET DAYKIN
JLBatty
PAUL SENIOR
Yorkhull
TERRI McCOO
Casamaluca
TOM & LINDA SUGGITT
WALTER BOYLE
Ulsterman
Total =19 as at 30 Apr
User
My apologies the system doesn't appear to have posted the list properly. bear with me and i will create a new document and re-post.
User
Here is the list as at today for those who have signed up to come along on the 23rd:
Alan & Celia Taylor (ART)
Barry & Barbara Gown (Old Barry)
Body Brooks
Chris & Shirley Butcher (Exbus)
Dan Sencier (Dansencier)
David & Lynne (Auld Codger)
George, Lynne & Katrina (George_H)
Janet Daykin (JLBatty)
Paul Senior (Yorkhull)
Terri McCoo (Casamaluca)
Tom & Linda Suggitt
Walter Boyle (Ulsterman)
Graham Titterton & spouse
User
Hello, myself and my husband Nigel are coming along. Looking forward to meeting you all.
User
Thanks for that updated list Sue.
And now two more are joining us! https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif
Nigel & Lillie, we're looking forward to meeting you in person, and I'm sure you'll enjoy the company.
It really is a great atmosphere, so casual and laid back too.https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif
Nowt too posh to be worn mind!https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif
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User
Are we not having a theme this year? The year that everyone wore hawaiian shirts and grass skirts was great fun and I still have the photos from the year all the men wore dresses!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
Good evening Sue,
Can you say who the speakers are for the weekend, and what their specialist areas are please? And when they will be speaking, a timetable or programme?
I would be particularly interested in information on what happens if you need follow up treatment after a RRP, and how this has improved really recently. Statistically, I shall be in play in that area soon I suspect. Not so interested in someone telling me how to leave stuff to a charity in my will, which was presented last year. What little I have will go to my family and friends.
Do you plan to have Jamie (Simon's Onco) attending?
He's so good to hear speaking. Worth attending just to hear him. Even when he gives you bad news, it sounds perversely good.
dave
All we can do - is do all that we can. So, do all you can to help yourself, then make the best of your time. :-) I am the statistic. |
User
Lyn, you ARE naughty, but we love ya!https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif
No 'themes' at The Mill, just the usual casual summer stuff, but someone who shall remain nameless suggested BIKINIS & MANKINIS!https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif
But I will give you a clue to the culprit's identity.
Both he and his good wife are retired coach drivers.https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif
Edited by member 03 May 2018 at 12:27
| Reason: Not specified
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User
Thanks George.
I have to be honest and say I am a bit apprehensive as Nigel is still so full of fear. I'm really hoping that meeting you guys will help him.
He finished his RT 2 weeks ago, he has been exhausted but is picking up a bit now.
Look forward to seeing you in June. :)
User
Hello Lillie, I understand Nigel’s and your apprehension but can assure you that you will be with supportive people who will help so much. Having been there for the last few years I have got to know the regulars but there are always newbies too, a unique blend of circumstances and experiences, but above all support and understanding. The banter here may sometimes make it appear lighthearted or cliquey but it really isn’t. Looking forward to meeting you both. Janet, x
User
The first year, J refused to come with me so I attended alone. Good decision - it was such a relief to be with people who 'get it' and I had no trouble getting him to come with me in the following years.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
George, it was your suggestion not mine, we’re too modest, but I have asked Shirley to have some extra BOOBS again!
Chris.
User
So are you planning on going this year Lyn! /p>
Chris.
Edited by member 06 May 2018 at 07:05
| Reason: Not specified
User
Hi Lillie,
I don't seem to have your details for the meet up. could you email me please [email protected] so we can add you to the list
thank you
sue
User
Quick Update on where we are at for the 23rd June:
I've received confirmation from the following:
ALAN & CELIA TAYLOR
BARRY & BARBARA GOWN
Boyd Brooks
CHRIS & SHIRLEY BUTCHER
DAN SENCIER
DAVID & LYNNE
GEORGE HARDY (x3)
JANET DAYKIN
PAUL SENIOR
TERRI McCOO
TOM & LINDA SUGGITT
WALTER BOYLE
Graham Titterton
total= 21
At the moment this would appear to quite a drop from last years attendance? If anyone knows of someone who is intending to go and their name is not on this list please can you let me know.
We haven't done a timetable yet? is this something people want? As the main purpose is for everyone to meet up and socialise, rather than to be speaker orientated. We have made arrangements for a short talk from a leading researcher on The 100,00 Genomes Project. which is helping to understand how cancer can run in families. In particular he will talk about the relationship between prostate and breast cancer. I have heard him talk and it is extremely interesting and more importantly easy to follow!
More information to follow nearer the time
Sue
User
Thank you, Sue, the short talk does sound interesting, but as you say the main reason for the event is to meet and socialise and it would be nice if more people could sign up. I know some of our regulars can’t make this date for various reasons this year, but if anyone is hesitating, please sign up, you will be made most welcome.
Janet, x
User
Hi Sue,
Two other couples definitely coming, and have paid for buffets, are Philip & Lesley Baker, and Nigel & Lillie
George
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User
Hi,
I just want to encourage anyone thinking about coming to this year's event to come along, you won't regret it. You will make good friends and will feel so much better. The food is really good too.
If you need anymore encouragement, have a look at an album of photographs that I took at a previous event. Here's the link:
https://flic.kr/s/aHsmc1Hdq1
Sadly, I won't be there this year as I'm photographing a wedding on that date. I'm really disappointed as I regard this event as a highlight of my year.
I hope everyone has a wonderful time, I will be thinking of you all on the day.
All the Best,
Steve
User
Cracking pictures Steve of a great weekend........ just a couple of points
1... why does my oncologist look so young, i will show him this picture on Thursday just to show how fat he is now
2... how many pictures did you take of Lyn https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif
All the best mate
Si
Don't deny the diagnosis; try to defy the verdict |
User
Well I have just let Sue know that I have decided to pop along for the afternoon, despite not being a great socialiser. It will be nice to meet a few people and learn a bit more.
User
Superb photos, Steve; especially the one of Yorkhull on his own and Jamie lounging against the post while he did his talk - thank God for brave oncos like Jamie xxx
I am confused though - were these taken before or after the guys all came out in their mankinis?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
Originally Posted by: Online Community MemberCracking pictures Steve of a great weekend........ just a couple of points
1... why does my oncologist look so young, i will show him this picture on Thursday just to show how fat he is now
2... how many pictures did you take of Lyn https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif
All the best mate
Si
https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif https://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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User
Very good pics Steve, sorry you will not be there this year.
Also, sorry that it seems Jamie will not be there for another much appreciated talk and Q&A session.
Barry |
User
Steve, Thanks so much for posting those excellent photos.It's a stroke of genius!
I wish I'd thought of contacting you to do just that months ago.
The album perfectly captures the spirit of the event.
If anyone feeling apprehensive about joing us sees those photos, I'm sure they'll feel much more inclined to book their places now.
As you said, great, enduring friendships are made and we really look forward to meeting friends old and new every summer.
THERE'S STILL PLENTY OF TIME TO BOOK UP. The number coming so far is over 30, and the room can seat 60.
Kevan? I am delighted to see you're now joining us. Don't worry about meeting us all, because by the end of th day you'll feel like you've known everybody for years, and I promise you, the day is about having a good, laid back, relaxing time.
You'll have noticed a lot of smiles in Steve's pics!
Once again, thank you Steve. I'm sorry we won't see you this year, but I do hope you're with us at The Mill in 2019.
All the very best,
George.
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User
Hi,
Thanks everyone for your nice comments about my pictures. I could only take those pictures because everyone was so friendly and clearly enjoying themselves.
I just wanted to mention that you can download pictures from the album which would be a nice souvenir for anyone who was there. There's no charge for doing this.
Steve
User
HI everyone,
Well we are nearly in June so that means we are less that 4 weeks away from the meet up.!
As George has said we are just on the 30 attending mark so if you are still deliberating over coming then there are still places. Please join us, you will be made to feel extremely welcome. Take a look at the photo's that NikonSteve has posted a little further up the message board. I hope that will reassure you that we don't eat new members or throw them to the lions!!
I will be emailing a handful of people who haven't confirmed their menu choices to me in the next day or so. So, if you know your 'guilty' of this feel free to contact me and get your name removed from the naughty list..lol. Joking aside - please can I ask that you come back to be asap ( if you get an email) so I can start giving the hotel some approx numbers and quantities.
Best Wishes
Sue
User
Hi everyone,
Apologies in the lateness of this post - time seems to be running away from me at the moment.
We are all systems go for Saturday. Food booked, speaker booked, evening arrangements confirmed. I've had no new joiners and just one drop out so I won't re-post the list.
One question - will there be a raffle -Mill on the Soar was asking regarding tables. I didn't know the answer so I said I would ask those that know!
could someone let me know either way - thank you.
So myself and Ann will be there from early morning and the room/bar will be open from 1pm and the 'do' starts from 2pm.
See you all there
Sue
User
Hi Sue, a table, as usual, will be useful as I usually take a small selection of PCUK literature, badges and collecting tin. And I’m sure George will have his memorial photos which usually go on the wall behind the table.
We have had a raffle over the past few years, I’m happy to take tickets and if anyone wants to take a small prize that would be good.
Looking forward to seeing old friends and meeting new ones.
User
Hi Sue,
Given the smaller numbers this year, I think the big round tables will be best. They seat about 6 people.
I'm sure Janet and I will make sure the room is set properly when we check on Friday night.
Don't worry, be happy! ; )
And as Janet has said (above) "Looking forward to seeing old friends and meeting new ones."
See you soooooon!
George
Edited by member 20 Jun 2018 at 09:55
| Reason: Not specified
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User
Good evening,
Still a good turnout this year. And looks like good weather for thel weekend.
Interested to hear what topic the speaker will be talking about?
dave
All we can do - is do all that we can. So, do all you can to help yourself, then make the best of your time. :-) I am the statistic. |
User
***THIS IS URGENT***
The hotel has 16 rooms booked out at the moment in the groups name.
Everyone was asked to contact the hotel direct to confirm their own accommodation booking.
If you are expecting to stay but have not contacted the hotel direct to confirm your room please can I ask that you do this today.
Otherwise, the rooms will be be released for general sale this afternoon.
Any problems please call me on 0776702634
Regards
Sue
User
My telephone number is 07765702634
User
Hello everyone,
Well what a lovely afternoon both Ann and I had putting faces to names and finding out so much about you as a group.
Our apologies to anyone who had issues with the hotel accommodation, as we said on the day we think this was down to human error on the hotel staff part. Thankfully, you all seemed to be pretty chilled guys who took it all in your stride.
I do hope you enjoyed the talk from Julian.
Professor Julian G Barwell
Academic Champion in Clinical Genetics, Chair in Cancer Studies
University of Leicester, Royal Infirmary LE1 5WW
tel: 0116 258 6042 email: [email protected] website: www.le.ac.uk
I will be emailing out later on for feedback on the day.
Many thanks
Sue
User
Thanks Sue, and yes, Julian’s talk was excellent.
And it was good to meet new people and catch-up with old friends.
Thanks, too, to everyone who bought raffle tickets, brought prizes, gave donations or bought pin badges.
User
Thank You Sue and Ann, and CONGRATULATIONS after your first time hosting this annual event.
All went well, and your choice of speaker was inspired. What a good guy Julian was!
In fact he went out of his way to introduce himself to us all after the talk, and to hand out his details so that anyone of us could contact him about his work with DNA and Cancer.
I have to say it was a joy to meet people who were there for the first time, It wasn't long before they felt like friends we'd known for years. It was Grrrrrrrreat to meet you!
And a message for Janet (jlbatty)....You're a star! As always you organised a good raffle,( raising a suprpising amount of money for Prostate.Cancer UK), as well as having your usual PCUK Display table in pride of place.
To Chris (Exbus) and Shirley, THANK YOU FOR ALL THOSE PHOTOS you took.
It must have taken ages to get them all transferred to my inbox by Sunday night.
I'll be in touch with Sue about where she plans to place them all.
Frankly, I haven't even had time to put them on the B2PCa gallery yet.
Normally this is done within two days.
I must apologise for the delay in posting this message. I woke up on Monday morning knowing I had a serious chest infection. I rang my GP and got strong meds and steroids the same day.
Generally, this glitch wouldn't be a huge problem, but Lynn and I had to drive 350 miles to Warminster on Wedsday as we'd booked rooms there because we'd promised our youngest daughter (Katrina) and her friend that they could have a full day at Longleat on Thursday.
I was so shattered on the big day, that I had to stay in bed, while Lynn took the girls over to the park for opening time.
And Lynn to do a lot more of the driving home on Friday than I did..
Never mind, they all had a fabulous day at Longleat, and that's what really matters.
But get this! It was only on the Monday when I got my prescription that it dawned on me you have to stay out of sunshine while taking these particular antibiotics. That was a 'Duh' moment.
How can anyone have avoided sunshine this past week? Oh well, I am certainly NEVER going to complain about sunshine!!
Once again,
Thanks everybody for helping make it yet another thoroughly enjoyable weekend.
Stay well my friends,
George
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User
George,. It was good to meet you at last in the flesh and I hope you regain your full fitness as soon as possible. I was only at the pub for the afternoon but it was really good to hear what the very impressive prof had to say. I'm glad I met him. And what a rare pleasure to win in the raffle. I almost never have such luck. So I echo your thanks to Janet for her good work. If anyone reading this hasn't been before, do make sure you go next year!
AC
User
Good to catch up again, although Barbara and I had to be elsewhere in the evening so missed the evening meal unfortunately.
Thanks to organizers and all who helped.
Barry |
User
***EVENT SURVEY***
Hi everyone,
I recently sent out a survey via 'Survey Monkey' to ask you feedback from those that attended on the day
Thank you to everyone who has already replied. I've just re-sent the email again, If you didn't receive the original email can I ask that you check you junk mail, just in case it has diverted there automatically. We really want your feedback so we can evaluate the day.
I am planning to send out a wider survey to the whole community to help us understand and consieder what the level of interest is, for the future of the the event.
Many thanks
Sue