Hi
partner diagnosed july 2016 with spread to bones and lymphnodes. had kidney problems with drain, then stent. they took that out nov 2016 and started chemo which contained the cancer. by 2 months later his leg was swollen and in pain. they said sciatic pain and gave moprhine and gabapentin. in june 2017 had video with oncologist who decided leg was blocked lymphnodes (which made more sense than the head scratching that had been going on). so then started on Arbiraterone with predisimole, which we thought was doing great - well it did for a while as had more mobility. Just had video with oncologist on tue and told psa on the rise and has spread withing the skeleton. the positive is its not spread to any organs. so next is switching the steroid and seeing if that helps any and if not then will start radium.
hes not been feeling great for weeks, had an infection of some kind last week and was in bed for weeks (which is most unlike him). he had high pain at start of dec and they put morphine up to 100mg twice day but after sleeping for few weeks our gp put it down to see if that would help him stay awake. Hes still tired and had bouts of high pain eg just took 45ml oramorph to be able to stop pain. Wed morning he had a high temp and was yelling when pee but district nurse dropped past and said he was fine.(but then i was in town for a little while to finish off some work so he prob told them he was fine)
ive currently been signed of from my work as was struggling to juggle so i supose what i would like to know is what effect can i expect from the steroid change?
should i keep pressing them to do something with pain?
how does radium go?
and what on earth do i do about my work in the longer term