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Gleason 4:5 diagnosis - Diet

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User
Posted 19 Mar 2018 at 09:26
That happened to me, it’s fairly normal. Some people have it to a lesser or greater extent. The radiographer should be able to advise what cream to apply to ease it, I was told to use aqueous cream but I’m not sure if all radiographers recommend it.

Arthur

User
Posted 29 Mar 2018 at 23:28

Originally Posted by: Online Community Member
Originally Posted by: Online Community Member

You shouldn't assume that. If your scans are clear, they are proposing a curative treatment path for you. Dr Google is unreliable in these situations - if HT/RT works you should live as long as you would have done anyway.

I don't know of anyone who got sore skin between their legs - the radiotherapy arcs around your body more or less on a line between your waist and your hips so any sore skin tends to be where your pants elastic sits.



Thanks for your comments, only Section four, page 24 in the book the Oncology nurse gave me says; You may experience some darkening and soreness of the skin in the area being treated, this is most common between the legs and around the anus.
Would you agree with that?

Any ideas Lyneyre?

User
Posted 30 Mar 2018 at 00:57

Sorry - missed that. John definitely wasn’t zapped between the legs or anywhere near his anus and the skincare advice sheet he was given was all about the skin around his hips and midriff. However, a straw poll of the other RT guys is needed I think????

Was it definitely a book about RT for prostate cancer and not some other one?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Mar 2018 at 08:26
I didn't get any soreness of the skin anywhere and didn't notice any colour change either. I was fortunate in that my psoriasis improved a lot while having RT and they said that it used to be treated with RT at one time.

All the best with your treatment.

Kevan

User
Posted 30 Mar 2018 at 08:42

I had no skin soreness from RT either. And I was expecting it! However, I did get industrial scale fatigue. As this subsided a month or two after the end of RT, the fatigue from HT took over. Previous to all my PCa treatment I was a very fit climber. I only wish I could be anywhere close to that now. Muscle wastage. growing waste line and limited energy have seriously taken their toll. Two weeks ago I went out climbing for half a day, something that previously would have gone unnoticed physically. On this occasion, it flattened me and I felt notably ill all evening. It was worth it though, and I WILL do it again!

The RT was hard (for me), but I think the HT is the thing that is squashing me at the moment. I'm on Bicalutalmide 150mg, and although I was originally told this would be for two years, the onco has agreed that one and a half years should be OK. I really feel that I'm just trying to hold on until September when it all stops and I can get my life back. Getting back to fitness will be painful, but so very worth it.

User
Posted 03 Apr 2018 at 23:42

Thanks

My bone scan was clear except for a spot on my T11 which the radiologist could not identify, so i'm hoping that will be no problem. My local NHS is so good I had an MRI today already to identify what it is. T11 is a way from my prostate so i'm hoping the cancer may not have gone all the way there, bypassing all the other lovely places available!

My CT scan was 100% clear so i cant explain how my wife and I feel. Strange to feel happy you have no significant secondaries, then the original diagnosis hits back home.

I am on the "normal" treatment for Gleason 4:5 localised advanced, I have looked at trials, as i would like to help advance treatment, STAMPEDE is one i may be suitable for in a few months. My wife doesn't agree, but i've reached 65, with a few more years to go, i'de like to give something back.

 

 

 

User
Posted 10 Apr 2018 at 08:11
Originally Posted by: Online Community Member

I had no skin soreness from RT either. And I was expecting it! However, I did get industrial scale fatigue. As this subsided a month or two after the end of RT, the fatigue from HT took over. Previous to all my PCa treatment I was a very fit climber. I only wish I could be anywhere close to that now. Muscle wastage. growing waste line and limited energy have seriously taken their toll. Two weeks ago I went out climbing for half a day, something that previously would have gone unnoticed physically. On this occasion, it flattened me and I felt notably ill all evening. It was worth it though, and I WILL do it again!

The RT was hard (for me), but I think the HT is the thing that is squashing me at the moment. I'm on Bicalutalmide 150mg, and although I was originally told this would be for two years, the onco has agreed that one and a half years should be OK. I really feel that I'm just trying to hold on until September when it all stops and I can get my life back. Getting back to fitness will be painful, but so very worth it.

I am on Bicalutamide, 50mg only for 4 weeks, started Sunday 8th April, on 23rd April I start Triptorelin 3 monthly implant till 23rd July, when I begin 6 weeks of Monday to Friday radiotherapy.

Your Bicalutamide is 3vtimes stronger than mine, so you did not get the implant treatment, ?

User
Posted 10 Apr 2018 at 10:39

Morning.
I didn't get offered anything else apart from 150mg bicalutamide. Early days I did ask the onco if I could stop that, but she said I would need an alternative if I did. That may have been an implant. I stuck with the Bical as I was told it affects the libido less. Turns out it has flattened my libido anyway! I don't know how heavyweight 150mg Bical is in the grand scale of HT as regards effectiveness and side effects, it's all a bit of a dark art to me. As regards choices of HT, I would hope your onco would be able to advise for what would suit you best. Hope it works out.

User
Posted 10 Apr 2018 at 11:46

150mg is a treatment dose; 50mg is simply to mitigate the tumour flare that happens when you start LHRH hormone therapy

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Apr 2018 at 18:23

Originally Posted by: Online Community Member

150mg is a treatment dose; 50mg is simply to mitigate the tumour flare that happens when you start LHRH hormone therapy

Whats the difference in end result then Lyn? I would rather not have to get injections TBH

 

Alan

User
Posted 10 Apr 2018 at 19:22

They work in very different ways - bicalutimide disguises testosterone so that the cancer is tricked into thinking it is being starved. LHRH treatments actually stop the testosterone from being produced.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Apr 2018 at 20:01

Originally Posted by: Online Community Member

They work in very different ways - bicalutimide disguises testosterone so that the cancer is tricked into thinking it is being starved. LHRH treatments actually stop the testosterone from being produced.

 

OK, so does that not make Bicalutamide 150mg a treatment to try first before LHRH may I ask please? That way, if it is only tricking the cancer the "some would say awful" side effects of LHRH could possibly be avoided if the Bicualimide was successful in stopping the cancer growing.

Or is the fact that LHRH can actually shrink the cancer thst is the reason?

User
Posted 10 Apr 2018 at 20:45

You are in different circumstances to Graham. Bicalutimide 150mg is more often used for men having salvage RT/HT. LHRH ADT is used when RT is the primary treatment. You could ask your oncologist about changing but the side effects are more or less the same and he hasn't just chosen your treatment on a whim.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Apr 2018 at 21:05

Originally Posted by: Online Community Member

You are in different circumstances to Graham. Bicalutimide 150mg is more often used for men having salvage RT/HT. LHRH ADT is used when RT is the primary treatment. You could ask your oncologist about changing but the side effects are more or less the same and he hasn't just chosen your treatment on a whim.

 

She (sorry couldn't resist that update)

User
Posted 11 Apr 2018 at 21:29

Ha ha - I almost always write s/he and just this once, I missed it :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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