Flembo

User

Posted 04 Apr 2018 at 19:05

Sadly not true. Lady in urology said she couldnt offer anything before August and this was confirmed by the urologists secretary but she found a cancellation. As an update shortly after I got home a letter came for a US foĺlowed if necessary by a biopsy. The oroblem for me is that I must come off wsrfarin and go onto claxane. However the hospital imaging helpline wss not accepting any calls and my gp cannot do anything until he gets a doseage from either the hospital or my warfarin clijic, neither of which have responded tobmy ohone calls today.

User

Posted 04 Apr 2018 at 19:08

Sorry about the spellings. I had a works reunion today and pigged out on lager. Well thats my excuse.

User

Posted 05 Apr 2018 at 11:03

Not a problem - always enjoy your lager. I just want to ask a little question. Can't you transfer yourself to another NHS hospital as it may be quicker than the one you are currently attending?

Rafael

He who lives, loves and knows what it means to die - Jiddu Krishnamurti.

User

Posted 05 Apr 2018 at 21:24

Managed to get through on hospital helpline after about 20 tries. " the number you have dialled is busy, dial 5 for ringback" so I dialed 5. "This number does not accept ringback".

Eventually got ringtone and from then they couldn't have been more helpful. Biopsy has been delayed one week to give time to sort out claxane. Hava also been "guaranteed" appt 2 weeks after. Urology keeps 5 appts a day for post biopsy. I just expected hospital to get things organised better.

One of my colleagues at the reunion was sadly diagnosed with prostate cancer in January. It has spread to his bone. He has a hormone implant and has had radiolgy.

User

Posted 21 Apr 2018 at 23:49

Just messed up my biopsy appointment Wednesday by injecting claxane before instead of after procedure. Generously offered appointment next Wednesday. Went for results of my mri on Thursday. Appointments running about 90 minutes late and then told results had not reported. Doctor was very rude , trying to hurry me out. Had to force him to phone imaging to ask about results but as it was 5pm radiologists had gone home.
Anyway , at the moment I feel like the narrator in HG Wells war of the Worlds. The Martians have landed but the engine is still shunting in the railway yard.

User

Posted 10 May 2018 at 10:44

Hi everyone.

I'm now in a postion to bring you up to date. I HAVE been diagnosed with prostate cancer. My doctors believe it is still within the prostate. Saw the consultant wednesday after my case conference I was told they will cute me. I have started on hormone tablets with an injection after 2 weeks to be followed by external beam therapy. I am due for a bone scan next Tuesday to check that it is contained but apparently my psa makes it extremely unlikely that it has broken out.

The speed of the NHS has taken my breath away. In fact its me that has been delaying things by not reading instructions and injecting clexane on the morning of my biopsy thus delaying it by a week.

So here I am very positive very glad that I asked for a blood test very happy that my doctors are talking "cure". And very impressed with my NHS. I think is about 7 weeks since I went to the doctor and here I am already starting treatment.

User

Posted 10 May 2018 at 20:18

It seems a weird thing to say but pleased to see that your medical team believe you are still in the cure camp.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 May 2018 at 10:00

Thank you. Thats what they told me and I have to trust them.

User

Posted 06 Jun 2018 at 15:39

hello again. I've not posted much because theres not a lot to post until now.

My diagnosis is early stage localised cancer.

Treatment is 2 hormone injections (I've had one) and 20 sessions of radiotherapy.

I do have a question if any of you can answer with experience. What can I expect after radiotherapy?

Will any side effect kick in quickly or months later?

I expect to be through radiotherapy by the end of september and I have a pre planned 6 weeks holiday in Australia and New Zealand starting november 19th and my instinct is to cancel but it means letting others down. So assuming I have 10 weeks after therapy and 6 weeks out of the country am I likely to have problems?

Any help would be gratefully received. The thing is I don't fancy having to seek help when on the other side of the world. Also can you reccomend any insurace companies who have reasonable charges.

Thanks very much

Ken

User

Posted 06 Jun 2018 at 20:17

Main problem for me during latter part of RT was increased need to pee more often and urgently. This gradually returned to pre RT levels so by about 10 weeks after this was complete but it does not follow this would be the same for you. Even it was a slight problem in your case there are ways to get round this.t Personally, I found the rather debilitating effects of HT more of a problem which again varies from one man to another.

There have been a number of threads about Insurance providers for men with PCa. It could be worth trying the site search facility but google is probably a better source as it will more easily show what our members have written on the subject.

Barry

User

Posted 06 Jun 2018 at 20:58

I had 20 sessions of RT last year, with very little in the way of side effects. During the course I had to pee more frequently than usual and also had some hesitancy, but these wore off within a week or so of the treatment ending.

Good luck!

User

Posted 06 Jun 2018 at 21:25

Thank you for answering so quickly.

Ken

User

Posted 06 Jun 2018 at 23:13

The main issue with a holiday that soon after RT will be remembering to pack factor 50 sun cream as your midriff will be extra-sensitive to the sun and the skin can easily burn.

We went to Gambia 12 weeks after RT and he kept his shirt on in the hottest part of the day

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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