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Very worried about referral for high PSA

User
Posted 06 Aug 2018 at 14:09
I had an MRI and bone scan pre surgery. I also had a CT. I’d had 2 TRUS biopsies and eventually a template biopsy. But it was too late for surgery I guess. But if I had 5 out of 18 lymph nodes cancerous why was nothing spotted. I love our NHS but at the end of the day a scan is only as good as the radiologist who interprets it ?? And some surgeons are far better than others I guess ....
User
Posted 26 Aug 2018 at 08:48

Chris, from all the research I did the message came out loud and clear not to use a PSA score as an accurate indicator of the level of cancer one might have. Indeed the first Urologist I consulted said all men are different and levels can vary enormously from one to another who might have similar conditions. 32 is significant but not that high in comparison to some men who can register in the hundreds.

Take heart that your mets and bone scans are coming out clear. If you start to distrust those then you're heading down a road of obsession that will not help your general outlook. As you've said, it looks good for you so go with that and once you're ready make your choice between the Sword or the Ray.

If you choose the latter feel free to PM me and I'll be happy to chat about my own experience in the North West.

Good Luck.

 

User
Posted 26 Aug 2018 at 08:57

Sorry, I should have added a link to the new thread I started when I made my choice. The urologist and the MDT all recommended against surgery, so I've gone down the HT+RT road. I started on 150mg daily bicalutamide + 20mg weekly tamoxifen on 17th Aug with the aim of staying on that for two years with RT after 6 months.

My new treatment thread is:

https://community.prostatecanceruk.org/posts/t16423-Cheshire-Chris-s-Treatment-Thread

so best to carry on any discussion there.

Cheers,

Chris

Edited by member 26 Aug 2018 at 08:59  | Reason: Not specified

 
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