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User
Posted 23 Jun 2018 at 18:17

Change of plan since then. Urologist was very blasé about what he would find. 

When I insisted on a cystoscopy he found there was little or no radiotherapy damage. Just a stricture. 

Hoping we are going to fix that. 

From being blasé and knowing beforehand what he was going to find he has moved to very hopeful. Suddenly I like him a lot 🤓

User
Posted 08 Aug 2018 at 22:05

Just an update. 

 

Stricture has been dilated lates and I am doing self catheterisation. 

My 7 times a night has changed to 3 or 4. Sometimes only 2. 

Needless to say I am very pleased. 

 

User
Posted 08 Aug 2018 at 23:01

Good that you have reduced the night time loo visits. I hope things continue to improve.

Ian

Ido4

User
Posted 08 Aug 2018 at 23:31

Thank you Ian

it is great but I am more exited about the fact that they found “little evidence of radiation damage“ from the  cystoscopy 

I was convinced I was shot to pieces and things would only get worse. 

I am a happy bunny now. 

User
Posted 06 Oct 2018 at 17:13

Alan

Any progress on the proposed Botox, one of my consultants has suggested he might try it on me.How is the ISD going I have found less is better, just do once a week now.

Thanks Chris

User
Posted 06 Oct 2018 at 17:40

Hi

I never had the Botox. 

I was not too impressed with my Urology consultant. 

First he knew exactly what the problemish was without looking and when I told him to look anyway he found nothing like what he was expecting. He was going to do a Cystoscopy and Botox to see if it would help any. 

What he actually found was a Stricture too close to the Sphincter to cut so they dilated it instead. 

Since then I have the self catheterisation down to once a week. Hoping to get it to less. 

So sorry, this was a long way round to tell you that I didn’t have it. 

I would be interested to know how it goes for you though. 

 

 
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