Worried I might end up having unnecessary treatment

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Posted 21 May 2018 at 20:50

That’s a nice post Lyn in a way. I spent so much time doing what couples do , that I missed the boat essentially. Epic fail surgery , and now after taking over 2 years to recover , I’m still preferring doing what couples do ! Maybe John was right as you are still firmly in the long term remission camp and enjoying life more than some people waiting on every appointment. Oh , and dancing a lot :-)) x

User

Posted 21 May 2018 at 21:19

Not much dancing going on at the minute - his two new knees are cramping my style rather a lot :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 May 2018 at 22:00

Ouch very much. I’m going for a drain and cortisone tomorrow. Have had to quit HCA as pain too much tbh. Seriously making me reconsider future stuff. I can barely walk the dogs at still 50 😬

User

Posted 21 May 2018 at 22:10

Originally Posted by: Online Community Member

I'm just hoping that when I get the results of the biopsy on June 12th that they are unambiguous.
If the biopsy results are ambiguous I'm not going to have treatment right away.
I've waited a long time for summer and I'm not about to spend it having cancer treatment unless I know I really have to.
Therefore if I can delay treatment and adopt the wait and test regularly approach that's what I shall do.

What the Cancer Research study tells us that overall it makes no difference to the overall positive outcomes if men over 50 with no symptoms are invited to take a PSA test or not and screening of all men over 50 would lead to significant numbers of men undergoing unnescessary treatment for a prostate cancer that would never have harmed them.
Of course the individual's choice to have a PSA blood test is just that - the individuals choice.
I was invited to to take a PSA blood test after telling GP vague symptoms that I worried could be cancer.
The PSA test came back at 6.5 and the next one at 4.5 (as I'm 52 anything above 3 is considered to be a raised level)
As a consequence I have had an MRI scan that shows no evidence of high grade cancer there is a lesion that could be cancer hence why the MRI scan was graded as 3 and transperineal template biopsy was recommended and scheduled for June 5th.
I won't know where I stand until I am given the results of the biopsy on the 12th June but I do think I heard is that a MRI scan followed by a template biopsy is 93% accurate when it comes to finding the cancer if there is any.

I wish you well for your biopsy.

So much of your post above is inaccurate and misleading and may lead to men not seeking appropriate examination or treatment.

Let us all hope that it does not cause anyone life changing or life ending consequences.

dave

User

Posted 21 May 2018 at 23:12

What bit of it is inaccurate or misleading CB? It has been quoted very precisely and, whether you like it or not, is exactly what the researchers concluded and NICE have positioned themselves on.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 May 2018 at 19:31

Originally Posted by: Online Community Member

I wish you well for your biopsy.

So much of your post above is inaccurate and misleading and may lead to men not seeking appropriate examination or treatment.

Let us all hope that it does not cause anyone life changing or life ending consequences.

dave

Thanks for your well wishes dave.

As for you saying my post is inaccurate or misleading? Well you can read the results of the 10 year Cancer Research UK study yourself here:

Why a one-off PSA test for prostate cancer is doing men more harm than good

Edited by member 22 May 2018 at 19:33 | Reason: Not specified

User

Posted 22 May 2018 at 22:16

Hi Lazarus, Lynne

Actually, what I like or not is immaterial.

A one off test is of little use, thats why maybe men should consider a series of tests to establish "our" level. You're going to have a series of tests, excellent.

Biopsy is not conclusive, as we know. PSA test is a guide, not infallible. MRI is another guide, with potential for misreading as I and others here know.

But, it's all we've got at the moment, so we test and we hope. Thankfully advances are being made all the time.

All the best.

dave

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