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Prostate harder on one side.

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User
Posted 05 Jun 2019 at 06:58
That sounds absolutely fine. Very much in line with what's happened to me.

User
Posted 13 Jun 2019 at 00:48
I'm seeing the consultant on Monday. Not sure what to ask him though. I suspect he will say 3.1 PSA is ok 4 months post rt and come and see me again mid September with an up to date PSA. My BM's are erratic but they have been since bowel cancer surgery and I don't have full erections now but haven't had for many years so I can't blame the rt. With testosterone injections, my level was 16.8 at last reading which is normal. My consultant said that they treat men with normal levels so I can keep having the 3 weekly boosts to keep it normal. Any questions I should ask gratefully received!
User
Posted 23 Jun 2019 at 21:39
Well, we had a chat. No dre either. He was encouraging about my 5 year survival prospects. I asked him about treatment if PSA starts to rise and he told me. Unfortunately, it was too much to take in, except that a scan, maybe a PET scan ? would not be funded. He discharged me and said to have the next PSA in 6 months, so that's a good sign? My Dr said 3 months, the Cancer Society person said 6, so I'll put it on hold and look forward to Summer.
User
Posted 08 Jul 2019 at 09:47
Hmm. I got the report and it had the medical history of another man. It's been fixed and the new one is about me. It doesn't mention that I was discharged or when to get the next PSA test. It does say to have annual dre's which he didn't tell me at the appt. I've been told by a few people on other sites that they are not done after radiation. Sooooo, I'm still confused and waiting to hear back from the hospital. Again. I'm one of hundreds of ageing baby boomers probably, so be patient.
User
Posted 24 Jul 2019 at 07:39
No word from the hospital yet but my Dr said PSA tests every 3 months to start and no dre required. Which is great! He said PSA should drop again in another 3 months. It was 3.1, 4 months after radiation. From 7.4 July '18. I hope there are people out there who could tell me that their PSA continued to fall with each post rt test. I know about the 'bounce' btw.
User
Posted 24 Jul 2019 at 09:33

Are you on HT?

Ido4

User
Posted 24 Jul 2019 at 21:09
No. I have hypogonadism and have to have 3 weekly injections of testosterone to stay 'normal.' Specialist said they treat men with normal levels. I did stop for a while pre rt and did notice unwanted effects.
User
Posted 24 Jul 2019 at 22:17
It may bounce about a bit but you should get your lowest reading (the nadir) about 18 months after the RT finished.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Jul 2019 at 15:09

Thanks Dunniz. I guess if you weren't getting testosterone injections that would be the equivalent of having HT.

Was that suggested at any point by your oncologist?

Ido4

User
Posted 25 Jul 2019 at 23:54
Yes, that makes sense. My Dr and a specialist I saw privately because I had to know, said to stop and wait until I saw the even more important oncologist. I did notice a difference when I stopped for a few weeks. Even more anxious about most things, (that's me anyway,) decreased energy, tiredness and more pronounced ed. I haven't had a full erection for many years and am past caring now anyway. BUT, the top man said to resume the injections as they now treat men with normal testosterone levels. They check it at the same time as my 3 monthly PSA tests. I've Googled too much and there is a lot of conflicting advice, so I'll need to stop that and leave it to the experts. So, the next stress in September with the blood tests. I'm fairly confident the PSA will show another drop. Keep cool if you can. Max 14 C here today but it is Winter, so that's higher than normal. I live in the 'deep south' of NZ and enjoy the cooler weather. No humidity or bity bugs in Summer either. John.
User
Posted 26 Jul 2019 at 15:12

I know how you feel about he stress and f the next PSA test. Hope it shows another drop.

It was 31 Celsius here yesterday and didn’t drop below 20 overnight. Unusually high for  here, difficult to sleep. High humidity too.

I get my next test around end September, beginning of October.

Take care,

 

 

Ido4

User
Posted 01 Aug 2019 at 07:43
Now the specialist has said that I'll need annual dre's. Too much conflicting advice. I'll forget it for a while. Maybe a year after rt, or a year after biopsy which included a dre, or a year after initial diagnosis, etc. I think I'll opt for a year after rt finished, if at all. My Dr said it's unnecessary as the prostate will be different. And so it goes on. I shall concentrate on keeping calm in the lead up to root canal work next week. Expensive..... Oh well, it must be done. Sorry, I'm ranting on a bit. Getting fed up.
User
Posted 02 Nov 2019 at 08:38
I've posted on other sites, but I'll update here anyway. If I've already done it, I'm sorry! PSA dropped from 3.1 to 2.9 after about 4 months. Specialist ok with that and said to wait until March next year. And have an annual DRE too. He discharged me again and referred to me as 'this poor man' in the report to my Dr! So, I will shut up now. Oh, LynEyre suggested on another site that as I was back on testosterone injections, that could be a reason for the small drop last time. Thanks LynEyre. I don't know, I have to accept what the experts tell me. As long as they all say the same thing.

Enough! It's almost time for the rugby World Cup final. Go England! (No All Blacks playing now of course.)

User
Posted 14 Jan 2020 at 19:22
And now it's mid January. A year ago I was half way through the radiotherapy. Starting to freak out over the next PSA test already, due early March. Probably worried because it dropped only by .2 last September. Sorry to ramble on, there are thousands of men who would happily swap places with me, PC wise I mean of course. I am seriously thinking of getting some councelling, as I don't want to spend the next 6 weeks or so worrying daily about a blood test result. Hope you all can have a great 2020!
User
Posted 14 Jan 2020 at 20:27
Sounds as if things are going pretty well for you. I finished my RT in March 2019. My last PSA test (October) was 2.0, so not too dissimilar to yours.

Best wishes,

Chris

User
Posted 03 Mar 2020 at 06:05
Hmm. 6 monthly PSA any day now. I've timed it so it's just before the next Sustanon injection in case that helps. Also no sex etc for a few days as it can raise the level. So, 7.4 to 3.1 then 2.9. Six months later hopefully a more significant drop this time! No reason why not, my mind tries to convince me. We shall see .....
User
Posted 08 Mar 2020 at 06:03
Well, it was 2.7 this time. Another small drop but nobody is concerned. It seems that the trend is the important thing. Seeing Dr on Thursday.
User
Posted 08 Mar 2020 at 08:56
Good news. Pleased to hear that things are going well for you.

Best wishes,

Chris

 
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