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Post RP and SRT journey - July 3023 PSA test update

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User
Posted 24 Jan 2023 at 16:37

Brilliant news on both fronts Pete. Thanks for updating. 

Ido4

User
Posted 24 Jan 2023 at 17:04
πŸŽ‰πŸŽ‰πŸŽ‰
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Jan 2023 at 19:25

The best news you could get πŸ‘

Cheers 

Bill

User
Posted 24 Jan 2023 at 19:35

Pete , great news , really pleased for you.

Thanks Chris 

User
Posted 24 Jan 2023 at 20:17

πŸ‘πŸŽ‰πŸŽ‰πŸŽ‰πŸŽŠπŸŽŠ

User
Posted 24 Jan 2023 at 21:12

Hi Pete 

That's great news and I am very pleased to hear it. 

My PSA is rising steadily but not fast... So was 0.7 before Christmas. Latest test was a couple of weeks ago should talk to consultant in February... They could not locate the cancer even though PSA rising and want the doubling time to be 3 months before they will begin systemic treatment.

Anyway I hope to know more in a couple of weeks. 

Hope job goes well, take care. 

Mike 

User
Posted 25 Jan 2023 at 11:18

Originally Posted by: Online Community Member
Great news Pete...

You still on the low dose aspirin??

Cheers.

I gave up the aspirin years ago. It was to much hassle and gave me IBS :(

User
Posted 25 Jan 2023 at 11:19

Originally Posted by: Online Community Member

Hi Pete 

That's great news and I am very pleased to hear it. 

My PSA is rising steadily but not fast... So was 0.7 before Christmas. Latest test was a couple of weeks ago should talk to consultant in February... They could not locate the cancer even though PSA rising and want the doubling time to be 3 months before they will begin systemic treatment.

Anyway I hope to know more in a couple of weeks. 

Hope job goes well, take care. 

Mike 

 

Hi Mike

 

Sorry to hear this. Hope they nail the bandit!

 

P

User
Posted 25 Jan 2023 at 11:21
Thanks for all the kind words.

P

User
Posted 29 Jan 2023 at 17:09
Hi I just spent the last hour reading this as I am following a similar path T3b after pathology op June 2021 then had salvage radiotherapy finishing in March 2022 …,,first PSA 0.06 in June 2022 and just had 2nd and it was 0.04.

So still not undetectable and was panicking a bit , but reading your story I feel really hopeful so Thankyou for keeping it updated I am also a massive worrier and dread every test result . Was told that the machine as of recently detects lowest 0.03 prior to that was 0.1 …. So I’m hoping like you to get the <0,03

Really happy you have had such great results .

User
Posted 29 Jan 2023 at 20:51
Hi Dessy

I am glad that it has reassured you. As you can see from mine it did oscillate a bit to start with as the cancer cells slowly died (I like to think of them screaming as they did so) but settled down. I had a long journey with fear as a companion because I had a very rare type and a fast relapse post op but it turned round and so did my fears. I learned that you can get focused on the negatives of the numbers but quite often, lady luck smiles on you. You just have to take it one day at a time. Good luck to you both!

User
Posted 26 Jul 2023 at 13:32

Feb 2019: 0.07

Jul 2019: 0.05

Nov 2019: 0.09

Feb 2020: 0.09

May 2020: 0.05

August 2020: 0.06

Jan 2021: 0.07

July 2021: <0.03

Jan 2022: <0.03

July 2022: <0.03

Jan 2023: <0.03

Jul 2023: <0.03

Banked and celebrated πŸ˜€

User
Posted 26 Jul 2023 at 13:58
That's brilliant Pete πŸ‘πŸŽ‰
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Jul 2023 at 18:29

Great news Pete, long may it last.

Thanks Chris 

User
Posted 26 Jul 2023 at 21:40

Excellent news PP. Worth celebrating!

Ido4

User
Posted 26 Jul 2023 at 22:05

So pleased for you Pete, keep it up!(or down maybe😊]

User
Posted 26 Jul 2023 at 23:07
Brill
User
Posted 27 Jul 2023 at 01:14

Nice set of results.

Dave

User
Posted 27 Jul 2023 at 10:11
Its all good. They are still keeping me on six months for another round as I think they think I am a worrier :)

They said there was no medical reason, just reassurance.

Since my PSA anxiety only arose in the hour before the call, I can live with that :)

User
Posted 07 Aug 2023 at 09:39

Great result Pete.

User
Posted 02 Dec 2024 at 10:32
Hi all.

Big gap due to life challenges.

Main update - now on yearly tests as still < 0.03. They did not want to let me go onto yearly as early as they first said but all looks good at the moment.

Am in latter stages of divorce due to marriage failing. Just getting into zero Fs given mode but it has taken a while as it was not my choice. Main obstacle to moving on is being like Bruce Banner (Angry all the time) but ship happens. Survived cancer. Will survive this.

Other than setting up a new life, am fit and well but need to lose weight and exercise more. The joys of moving from late middle age to early old age :)

User
Posted 02 Dec 2024 at 11:08

Hi Pete,

Great to see that you're still <0.03.

I'm really sorry to hear about your divorce. 

You were the first person to reach out and reply to my first post when I joined over 5 years ago. It means a lot, thank you. 

I wish you all the best for the future. 

Cheers, 

Kev.

Edited by member 02 Dec 2024 at 11:09  | Reason: Typo

User
Posted 02 Dec 2024 at 11:09

Well, sorry to hear how life is treating you. Glad to see the PSA result.

Dave

User
Posted 02 Dec 2024 at 11:28
Nice to see you Pete but sorry about your news mate. Flippant but true β€” I’ve seen many people your age move on to something way happier. It’s a journey remember and I wish you luck
User
Posted 02 Dec 2024 at 11:36

Great news on the PSA

Sorry to hear about the life changes…on the plus side life maybe less complex πŸ€ͺ

User
Posted 02 Dec 2024 at 14:51
Great news re the PSA Pete! And if my experience was anything to go by great news re the divorce too!
User
Posted 02 Dec 2024 at 19:31

Pete, glad to hear your PSA has dropped, sorry to hear of your other issues.

Thanks Chris 

User
Posted 19 Dec 2024 at 15:40
Thanks all for the kind responses. In many ways, this is harder than the cancer as the emotional burden of losing my wife still hits me like physical pain every day (she dropped me) and living in digs until I get the house sale money is lousy. I’m stuck in a dead wen job after a forced career break due to my amnesia event and I just want to retire but I’m stuck unless I can work out a way to retire at 60 without losing out. I want to make up for lost time for the rest of my life but right now I’m stuck in limbo. β€œLife is difficult.”
User
Posted 19 Dec 2024 at 20:42
Pete I have to ask, why are you living in digs? Please make sure you get legal advice and do not just roll over for your ex wife. You have just as much right to live in the ex marital home as she does, no point paying rent while waiting for a sale.
User
Posted 19 Dec 2024 at 20:50

TMI. Bottom line, it is what it is.

Edited by member 22 Dec 2024 at 14:13  | Reason: Not specified

 
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