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Post RP and SRT journey - July 3023 PSA test update

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User
Posted 31 Oct 2019 at 10:19

Good luck.

User
Posted 31 Oct 2019 at 10:35

Pete

Hope all goes well.

Thanks Chris

User
Posted 31 Oct 2019 at 12:50

Hope results are good PP. 

Ido4

User
Posted 31 Oct 2019 at 14:38
Cheers chaps
User
Posted 31 Oct 2019 at 17:25
It’s good luck from me. Best wishes. Always scary.

Just had 2 scans yesterday with psa >190. Don’t get results till 15th Nov. I just keep myself busy ....

User
Posted 31 Oct 2019 at 23:29

Just been through the whole "test anxiety" thing myself, Pete, so I understand what you're going through. Hope your result is favourable.

Best wishes,

Chris

Edited by member 31 Oct 2019 at 23:30  | Reason: Not specified

User
Posted 01 Nov 2019 at 11:17
Cheers

Schrodingher has a lot to answer for!

User
Posted 01 Nov 2019 at 17:23

🤞

Edited by member 01 Nov 2019 at 17:24  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Nov 2019 at 15:23

0.9 up from 0.05 in six months.

Damn. Looks like I won’t make retirement.

I can’t begin to express how much I feel I have let my family down.

corrected 0.5 to 0.05

Edited by member 06 Nov 2019 at 16:34  | Reason: Not specified

User
Posted 06 Nov 2019 at 16:17

Sorry to see the rise to 0.9. You haven’t let your family down, although I understand the thought. When do you see a doctor/oncologist to discuss next steps? I am gutted for you and yours. 

 

Ido4

User
Posted 06 Nov 2019 at 16:34
They are just doing a three month retest
User
Posted 06 Nov 2019 at 16:46

I’m also a panicking pollock.

I got home and rang them back because something big was bothering me and it was actually 0.05 to 0.09 with the original number being 0.07.

Still a rise but the lovely onco nurse notes it is dtull within a margin for error for those three readings.

Plan is three monthly with action “when or if” it reaches 1.0.

Ive been stressed with work and other stuff and it just got to me today.

Thanks for your kind words.

PP

edit: 0.7 to 0.07 I hate decimals

Edited by member 07 Nov 2019 at 06:30  | Reason: Not specified

User
Posted 06 Nov 2019 at 16:50
So 0.05 to 0.09? How long have you been off HT?
User
Posted 06 Nov 2019 at 16:51
Hi

My oh has been on the pc roller coaster for nearly 10 years and I really understand the psa anxiety. As long as you feel well in yourself, try not to worry too much. We have been through a lot of ups and downs and he has had several treatments and has to start another next week.

Never feel that you let your family down. Your family will be thankful you are with them and try to enjoy all the little moments you can. Good luck to you and your wife.

User
Posted 06 Nov 2019 at 17:04
Francij - middle of last year. SRT in October. First result 0.07 in February then 0.05 in May ish then 0.09 just now. I’ve seen people go both ways so it is annoying.
User
Posted 06 Nov 2019 at 17:07
@gilly

Thanks. I do suffer really bad psa anxiety and my mental health issues have caused me and my family a lot of issues that I feel a lot of guilt and shame about. But they stuck with me. So I am blessed in that way. It is silly to blame myself but I love them dearly and don’t want them to suffer. You are right though- I need to enjoy my time with them and take it as it comes.

User
Posted 06 Nov 2019 at 18:27

I hope I’m correct when I say that my local hospital only measures from 0.1 and upwards. Anything below this baseline figure is considered a negligible PSA reading. I don't want to minimise your fears, but I hope this allays your worries somewhat. 

User
Posted 06 Nov 2019 at 18:31

Thanks mate. I’ve seen people bounce around below 0.1 and some bounce around, some drop and some go incurable. I just have to hope for the best. Schrödinger’s cat at his best (or worst). I panic easily 😊

 

Edited by member 06 Nov 2019 at 18:32  | Reason: Not specified

User
Posted 06 Nov 2019 at 18:34

Pete

My PSA doubled in 2 months and the dropped , so don't get to hung up on the results just yet. Your 15.23 post says 0.9 should that read 0.09 ?

Thanks Chris 

User
Posted 06 Nov 2019 at 19:01

That’s better than I saw earlier! Relieved....

Ido4

 
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