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Salvage RadioTherapy progress - plodding along

User
Posted 26 Feb 2019 at 19:32
That's a great result, Pete! Hope you're in a better place emotionally as a result.

All the best,

Chris

User
Posted 26 Feb 2019 at 20:47
And relax 👍👍
User
Posted 26 Feb 2019 at 20:50
Thanks guys. Am certainly relaxing with a celebratory Cadbury’s Creme Egg and a beer 😂
User
Posted 26 Feb 2019 at 20:54
Forgot to mention. Onco has put me on telephone reviews going forward. He seems very relaxed about it all.
User
Posted 26 Feb 2019 at 22:02
Fantastic - you probably won’t hit your nadir for another year to 18 months
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Feb 2019 at 22:07
I feel like a right wuss now 🥺
User
Posted 01 Mar 2019 at 16:49
Don't be like me. Don't be an idiot. Don't randomly click on an link in a PCA forum post leading to a 20 year old paper discussing outcomes based on recurrence date and doubling time that makes no reference to salvage three days after getting the good news. I'm an idiot for clicking and I think it was a stupid paper to post. Hopefully common sense will kick in after a good nights sleep. I'm giving such sstuff a wide berth from now on.
User
Posted 01 Mar 2019 at 16:51

Good news and enjoyed by all Members on this extremely worthwhle site. Well done.

User
Posted 01 Mar 2019 at 19:41
On a side note I remembered to check my prior T levels. Mid 2017 it was 9 nmol/l and is now 14. So I have had a positive reaction to treatment in a more testosterone rich environment. Intuitively that sounds good.

I reckon my lifestyle changes were what made the improvement to my T.

User
Posted 19 Mar 2019 at 14:11
I’ve seen variation in successful initial post SRT results. Would my 0.07 be considered typical?
User
Posted 19 Mar 2019 at 23:04

Not sure if its typical but 0.07 and remaining low would seem good?

 

User
Posted 20 Mar 2019 at 00:53
There isn't a typical - but below 0.1 is always good and you could expect it to drop lower by this time next year.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 20 Mar 2019 at 10:42
Thanks

I asked because I had seen a few cases where the initial drop was like 0.03 or below so wondered if that had a bearing on risk.

PP

User
Posted 20 Mar 2019 at 12:54
Mine took 3.5 years to hit its lowest point Pete

Bri

User
Posted 23 Mar 2019 at 11:39
Well just got to cross fingers and plod on
User
Posted 26 Mar 2019 at 13:26

I read recently that a post SRT value of < 0.05 is a better indicator of long term success particularly in problematic cases like mine.

Would that be counted immediately after SRT, when T levels are back (where I am nor) or at nadir?

Cheers

PP

User
Posted 26 Mar 2019 at 17:13
It is hard to say without knowing the parameters of that particular research ... was it with men having SRT with or without HT, for example, and how did they define post-SRT point? You can Google and search and read to your heart's content but without the context, it is easy to misinterpret.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Mar 2019 at 18:07
Hi

I was looking for something on post SRT nadir thresholds and it popped up so I scan read it. Mistake #1. It was just another "grab a retrospective cohort and analyse progression and outcomes based on pathology" and referred to post SRT PSA of 0.05 but not very clearly. The actual conclusion totally ignored that fact and only referred to the fact that SVI (and NOT VI) was the main concern for poor outcomes. To be fair I have only seen about half a dozen papers across the interweb that dwell on recurrence and DT.

I could not find the report again but on searching far more came up saying post SRT <0.1 (mine was 0.07) was correlated with better outcomes. This was in papers suggesting that SRT should start <0.2.

I guess there is good news in there and futher proof that the thing is a minefield.

I need

User
Posted 26 Mar 2019 at 19:58
You need .... to try to wean yourself off these searches, they traumatise you and are possibly preventing you from moving forward and learning how to live your best life.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Mar 2019 at 20:06
Yea you are right.

I’m the poster boy for how now to deal with this bloody disease.

Thanks for the wake up call.

P

 
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