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Prostap to Degarelix

User
Posted 12 Apr 2019 at 12:46
Great update Phil
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Apr 2019 at 13:03

Thanks Lyn,

I find it good to write stuff down. It helps to find a perspective about everything, otherwise you are in a bubble on your own. Also helps to read what some other people are going through to understand sometimes how lucky I am !

I wrote a short story of my childhood for my counselor to read and i found it really therapeutic and helped me to balance up everything that happened to me. Made her laugh anyway 😄 but did lead onto many more questions....

Take care,

Phil

User
Posted 12 Apr 2019 at 16:43

Sounds like things are going well apart from the kick in the teeth re the job.

Great update.

Ido4

User
Posted 13 Apr 2019 at 09:50

Yes , only had a mtg Monday to say all was good then Wednesday the bullet.

It’s just we had plans for me to work for maybe another year. So nothing set up for me to retire, and actually I don’t really feel like it, I’m only just 64......I know it’s said on here about you re-assess your life but I still need the buzz from work .....

oh well I’m sure we’ll sort something out . It’s just another battle in the war 😆

Phil

User
Posted 06 Jun 2019 at 19:13

Latest update: PSA 0.08 which I think is pretty good for HT only?? Back onto 3 monthly checks now.

Just 2 more injections and I’m free 😊😆😆..As still suffering in the head 🙄🙄

Need to book another Mudder to get back into training.

 

Phil

Edited by member 06 Jun 2019 at 21:44  | Reason: Not specified

User
Posted 07 Jun 2019 at 00:07
Fantastic
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Jun 2019 at 09:07

A reduction to .08 is a great reduction. Long may it stay down there.
Best of luck with all your other issues.
Paul

Edited by member 07 Jun 2019 at 09:08  | Reason: Not specified

User
Posted 07 Jun 2019 at 10:12

Thanks, Paul and Lynn. 

I wasn’t sure how low the PSA can get on HT alone...

Being back on 3 month checks feels better though.

Phil

User
Posted 07 Jun 2019 at 12:39

0.08 is fantastic.

All the best,

 

Ido4

User
Posted 23 Jun 2019 at 21:14

Just a quick update : I have 116 days till my last Prostap injection and it can’t come soon enough. 81 days till I see my consultant again and 10 days till I see my counsellor again ......

Since just before the last HT injection I have been feeling very low. I just want to sob my heart out but I’m trying so hard not to. I know I’ve been lucky but try telling my head that. I can’t wait to see my counsellor again. This is so hard on my other half .

I don’t think the consultants understand what this stuff does to you mentally. I know I have to battle it out to give me a better survival chance but I hate it so much.

I know I have some childhood sh*t I have to deal with but I was ok with that before I had these damned injections (or I should say it was well hidden at the back of my mind ).

I understand not everyone suffers like this and don’t want to put anyone off the HT if they have to have it but do realise what it can do to you and be prepared .

Good luck to those suffering like this , I know there are some who have their dark days , and likely a good few who will say ‘count your blessings you’ve been given a chance’. Yep , I agree , won’t stop me counting down the bloody days though .....

Thanks for listening, just needed a rant 🙄

Phil

User
Posted 17 Sep 2019 at 16:43

Ok latest update : PSA still at 0.08 which I think is good.... consultant seems happy.

30 days till my (hopefully) last injection of the damned Prostap. Still suffering in the head department and see my counsellor again next week. Sincerely hoping that I will get my head straight when my HT wears off. I know I will never be the same but hoping I can deal with it better without the HT .

Just one slight problem: considering I finished my RT last August I thought I’d got away with no side effects but just lately on a couple of occasions I have had a problem with leakage . Both times I’d had alcohol and both times I was being energetic - walking over rough terrain and dancing . Is this normal this late on ?

I will resume the pelvic floor exercises but I am a little concerned as I never had this before. I have a wedding to go to soon and I’m worried about dancing now 🤔

Thanks

Phil

 
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