I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

What does this all mean?

User
Posted 23 Sep 2018 at 08:39

Hi Dave, 

Thank you for the other messages you ent through to me. I dropped you a text yesterday afternoon, hopefully you received it. I'm still unable to reply to your private message unfortunately. 

Many thanks, 

Steve 

User
Posted 23 Sep 2018 at 09:37
Awfully sorry Steve. I’ve only just noticed I had finger trouble with number. The last digit should be a 2.

Sorry

Dave

User
Posted 24 Sep 2018 at 12:44
Hi Steve,

I’ve just had a message back from Carol, one of the administrators. I’d asked about you not being able to respond to my private messages. The reason, as Lyn quite rightly pointed out, is to protect genuine members receiving spam. Carol has checked the thread and tells me that you have either just reached the threshold or another post should do it.

Dave

User
Posted 26 Sep 2018 at 13:29

Hi Dave, 

Thanks for this, your text and private message. It's all very greatly appreciated. 

Hopefully I will be able to message you back soon. 

I will certainly keep yourself and everybody else updated on how dad is doing. 

Many thanks,

Steve 

User
Posted 27 Sep 2018 at 18:03
Hi Steve,

Just sent another PM

Dave

User
Posted 27 Sep 2018 at 18:29
Hi Dave

Just read your chemo advice for Steve's dad which was very helpful for me as well as I'm about to embark on the first of my 6 Chemo sessions on Monday 1/10.

Many thanks

John

User
Posted 27 Sep 2018 at 20:08
Hi John,

Glad it was of some help. You start exactly two years after my first cycle!

Dave

User
Posted 08 Oct 2018 at 22:25

Hello everyone, 

Just an update regarding my Dad. 

He had his appointment with the oncologist today which mainly focused on the recommendation to start Chemotherapy treatment. The oncologist broke down the reasons why chemotherapy is recommended at this stage, how the process will work and all potential side effects involved, possible infection being highlighted as one to be mindful of especially.

Dad consented to the chemotherapy today and will receive a phone call in a week or so to book in the first of cycles 2/3 weeks after that. My dad is very scared about having chemo, the impact it will have on him and how it will affect his life so he is actually still debating about whether to have it or not. I think/hope he will go ahead with it.

One of the big things that I took away from the appointment today was the Dr saying that the average life expectancy after diagnosis of metasticised PC is 3-5 years and that early use of chemotherapy can extend this by up to 15 months. I already knew the average benefit of chemo but the average life expectancy did come as a bit of a shock. I know that there are people who have lived much longer than that with PC and it is only an average number but just hearing that struck a strong chord with me.

I hope everyone else out there is doing well and enjoying life as much as possible.

Many thanks for reading and as always any thoughts/feedback/comments are greatly appreciated.

Take care, 

Steve 

User
Posted 08 Oct 2018 at 22:26

Hi John, 

How is everything going after your first cycle of chemo? Are you keeping well?

Steve 

User
Posted 09 Oct 2018 at 07:29
Hi Steve,

Just a quick one for now as am still lazing in the sunshine in Cyprus!

That average figure that shocked you scared the hell out of me when I read the results of the STAMPEDE trial that resulted in the recommendation of early chemotherapy. That figure doesn’t take into account the men with prostate cancer who would be/are still alive after the five year period anyway. I hope you can make sense of that.

I’ll send you a longer message in a couple of days but for now - Paul told me he was reasonably fit and healthy so that puts him in at a good starting point for chemotherapy.

Take care

Dave

User
Posted 10 Oct 2018 at 00:23

Hi Dave, 

Thank you for your message and reassurance. I look forward to hearing more from you. 

Enkoy the rest of your holiday and speak soon. 

Many thanks, 

Steve 

User
Posted 18 Oct 2018 at 17:56

Hi everyone, 

Just another update, dad's first chemo cycle has been booked in for Monday 29th October.

Many thanks, 

Steve 

User
Posted 07 Nov 2018 at 10:00
Hi Steve,

How is your dad doing after his first chemotherapy cycle? That will be just over a week now won’t it? I didn’t want to ring him in case he’s feeling rough.

I had my usual three monthly check up yesterday. After my PSA being undetectable for around a year now it was still below 0.1 but detectable three month ago and now is at 0.2. There could be several reasons why but my consultant tells me that he’s not the slightest bit concerned and nor should I be. As he is one of the country’s leading authorities on prostate cancer I’m happy with that.

As I said to your dad last time we spoke I’m happy to hear from him anytime.

Cheers

Dave

User
Posted 08 Nov 2018 at 16:12

Hi Dave, 

Thanks or the message. Dad's struggled with the side effects after his first cycle of chemo. He was in hospital for a couple of days last week. He's at the 10 day mark now so is starting to feel better.

If you have a chance to drop him a line in te next couple of days I think he'd really appreciate it. 

Thank you for sharing your news and I'm glad to hear that your Dr is positive about your results. Let's hope it stays that way as long as possible going forwards!

Many thanks, 

Steve 

User
Posted 08 Nov 2018 at 17:30
Hi Steve,

Sorry to hear your dad hasn’t been well. My first cycle saw me at the out of hours doctors resulting in antibiotics and specialist oral gels and mouthwash. One of my sons reckoned my tongue looked like something out of Alien! That was quite unpleasant but nowhere near bad enough to be hospitalised.

I’ll certainly drop your dad a line. What’s going to be the best way to contact him? Probably best if let me know that via PM.

Dave

User
Posted 09 Dec 2018 at 22:45

Hello everyone, 

I just wanted to pop the latest update of my dad's treatment to this thread. 

My dad has had one course chemotherapy which was at the end of October which unfortunately he suffered quite a severe reaction to. Due to the reaction it was decided by his oncologist that he should not have his second round of chemo in mid November. Throughout this time he has continued to have hormone therapy and regular blood tests.

He met with his oncologist on Wednesday last week and was advised that having more chemotherapy was unproductive due to te reaction my dad suffered with. So he will continue with the hormone injections every 3 months and has also been prescribed hormone medication to take. His oncologist also informed him that his psa level has dropped down to 10.

I didn't go to this appointment with my dad but he was very positive when telling me how it went, relieved that he didn't have to have any more chemo (for now at least) and it's obviously very good news that his psa level has dropped from 51 to 10 in 3 months. Fingers crossed it will continue in a downward trajectory and with close monitoring from his gp and oncologist any negative change in psa level will be acted upon swiftly.

Many thanks, 

Steve 

User
Posted 10 Dec 2018 at 09:37
Hi Steve,

Thanks for the update. I’m away visiting family at the moment but your dad and I had a chat just before his oncologist appointment. It was like talking to a different person, he sounded so much better and more relaxed. It shows how much of a battering he took from that one cycle of chemotherapy! He texted me after his appt to say he wasn’t going to be getting anymore chemotherapy.

Brilliant news about his PSA. Everyone feels more positive and more at ease with a drop like that don’t they?

Take care & all the best

Dave

 
Forum Jump  
<12
©2025 Prostate Cancer UK