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Been to see the specialist today

Posted 09 Nov 2018 at 10:08

When I had my ‘Dear John, you’ve got the Big C” meeting, there were three there, including the consultant urologist who I had never met before. It was no surprise to me as I already twigged I had PCa.

So please don’t hope that a phone call from a nurse instead of a consultation with a specialist will necessarily be good news, as there are wide variations in the protocols of different NHS Trusts, within miles of each other, as I have discovered just this week.

I hope the phone call brings you good news nevertheless.

Cheers, John.

Edited by member 09 Nov 2018 at 10:27  | Reason: Not specified

Posted 09 Nov 2018 at 10:46
No I’m not getting my hopes up. I just thought it was the consultant that delivered the bad news, and then the nurse specialist that went through things more thoroughly about the next steps.

Our appointment is in the clinic on Monday, not a telephone appointment. I’m shocked that they would give such a diagnosis over the telephone, that must have been very hard.

Not long until Monday now, 😔

Posted 09 Nov 2018 at 11:17

A nurse specialist did my biopsy and told me that if I didn’t have cancer the local GP would inform me. If I had a letter with an appointment then it wouldn’t be good news. The letter duly arrived and I knew then I was in trouble. The nurse specialist gave me the bad news. I was informed about the Gleason score and how many cores were affected. To quote “Gleason 3+4 is not a pussycat but it’s not a tiger either. Now you will have to go and play with the big boys!” That didn’t impress me. There were other nurses around to check on me afterwards. It didn’t help that my wife and I saw people coming from the other nurse specialist’s room crying. 

Its a horrible wait. I’ll be thinking about you both.



Posted 09 Nov 2018 at 11:37

Thank you for your reply, it sounds horrible and as much as I’m dreading it, I just want it over with. I’m praying it’s not a ”tiger”, I’m just struggling to get my head around it all. Pete has been putting it to the back of his mind and is trying to carry on as normal.

Thank you for thinking of us.

Posted 09 Nov 2018 at 11:52

I think mine was / is? neither a pussycat nor a tiger but a feral cat. Me and my dog, Herman the German (shepherd) don’t like cats.

Edited by member 09 Nov 2018 at 11:56  | Reason: Not specified

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