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A bolt from the blue..........and radiotherapy for advanced PCa

User
Posted 07 Oct 2019 at 07:14

I have mainly been reading posts since I joined this forum recently but now I feel ready to say hello.

My husband was recently diagnosed with advanced prostate cancer. It has spread to lymph nodes in pelvis and abdomen, PSA was rising quickly and Gleason score is 8. I have put full info in the bio.

We are totally in shock still even after a couple of months. He is on Prostrap injections and started chemo very quickly after the oncology appointment and has recently had his third session. His PSA has come down from 287 to 37, then to 7 and I know this is good but I remain scared for us and for the future. 

I just wanted to say hello to people who know exactly how I feel and try to find a strategy of enjoying the good times which are now and not jumping into upsetting thoughts of the future.

Mrs MAS

Edited by member 26 Oct 2019 at 16:51  | Reason: Thread now includes radiotherapy questions

User
Posted 07 Oct 2019 at 07:14

I have mainly been reading posts since I joined this forum recently but now I feel ready to say hello.

My husband was recently diagnosed with advanced prostate cancer. It has spread to lymph nodes in pelvis and abdomen, PSA was rising quickly and Gleason score is 8. I have put full info in the bio.

We are totally in shock still even after a couple of months. He is on Prostrap injections and started chemo very quickly after the oncology appointment and has recently had his third session. His PSA has come down from 287 to 37, then to 7 and I know this is good but I remain scared for us and for the future. 

I just wanted to say hello to people who know exactly how I feel and try to find a strategy of enjoying the good times which are now and not jumping into upsetting thoughts of the future.

Mrs MAS

Edited by member 26 Oct 2019 at 16:51  | Reason: Thread now includes radiotherapy questions

User
Posted 08 Oct 2019 at 18:45

Hi Mrs Mas

Rob, my husband was diagnosed about 6 months ago - PSA 18, Gleason 9 and lymph involvement in pelvis, behind stomach and near one shoulder (9 in all). Just finished 5th docetaxel and on 3 monthly prostap.

I am only mentioning the following because what I learnt then is helping me now.  Rob had stage 3 bowel cancer 10 years ago. He has done very well, but we weren't to know that then.

What kept me going then was focussing on the present, and the knowledge that his consultants had a plan. I hung on to that, although I also learnt to question them if things weren't clear or I wasn't happy (Rob is not like that). When things got too much for me, I phoned Macmillan and spoke to a wonderful nurse. I have now done the same with the excellent Prostate Cancer UK nurses. I also used to tell myself  'it's as good as it gets' and at the end of the day would focus on even the smallest good thing that had happened that day. I used to be a 'glass half empty' person but I have gradually become 'glass half full'. It didn't happen overnight, but it has made life easier for me and I have learnt to live in the present and stop worrying about the future.

It's not easy to concentrate on anything when you are in shock - it is a frightening time.  Cheshire Chris hit the nail on the head when he referred to  the 'new normal' and I hope that gradually you will be able to move towards this. When you do, seize life by the horns and make the most of it.  I have healthy relatives who are not half as happy as we are!

Also, I have just found our cancer hospital's new Maggies centre. It is wonderful, so if there is one near you, it is worth visiting. I found support, laughter and a great cup of tea.

My best wishes to you both.

Shelagh xx

 

 

 

User
Posted 09 Oct 2019 at 20:00

Hi again,

Just a comment along the lines of what Shelagh said about her and Rob.

I’m sure that if a couple already love one another unconditionally then something like a cancer diagnosis is almost certain to strengthen that love. I know that if you have read my profile you will have seen I have been having some emotional issues but even so Chris and I are incredibly happy - both of us try not to look too far ahead. Admittedly she is better at it than me but her outlook helps me tremendously.

Take care

Dave

Edited by member 11 Oct 2019 at 09:28  | Reason: spelling error

User
Posted 09 Oct 2019 at 06:56

Hi Shelagh

Thanks for your reply. My husband is a bit behind yours as he has just had his third Docetaxel. They sound similar, he would also not question things, it is me who has a notepad in the appointments. 

I rang the PCUK nurses the day after we found out, I was devastated,  they were excellent and really calmed me down. Your post has reminded me they are still there if I need them.  We are in Preston, so not close to a Maggies Centre.

I know the new normal will come, even though I don't want it. My husband is positive and upbeat and carrying on as normal as much as possible. We are sensible of course in terms of avoiding germs and being vigilant whilst on chemo. 

Im going to try your tip about finding something good about each day to focus on instead of rushing from one day to the next worrying about the usual stuff (which it turns out isn't important at all ) as well as the diagnosis/prognosis/treatments/side effects etc. 

Thanks for your support and best wishes to you and your husband also.

Mrs MAS x

 

 

Edited by member 09 Oct 2019 at 06:57  | Reason: Not specified

User
Posted 10 Oct 2019 at 16:33

Hi Dave,

Yes I have read your profile and see you have some emotional issues. This thing is a lot for anyone to get their heads around even after the shock has subsided I guess. 

What I have seen from reading posts here is the sheer number of couples hit with this news and how much love they have for each other.  You and Chris and Shelagh and Rob included.

Thank you for your thoughts.

Mrs MAS

Edited by member 10 Oct 2019 at 16:36  | Reason: Not specified

User
Posted 24 Oct 2019 at 10:31

The side-effects of radiotherapy are relatively mild for most men. There may be some diarrhoea in the latter stages of the treatment, and the radiation can irritate the bladder resulting in the need to pee frequently (which can be pretty exhausting). Generally the side-effects peak about 10-14 days after treatment finishes. In my own case (I also had "wide beam" radiotherapy to treat possible but undetectable lymph node involvement) I was pretty much back to normal about a month after RT finished. For several months after I had occasional doses of prostitis (a burning sensation in the back passage), but on each occasion it cleared up after a couple of days. I'm now 7 months after the end of treatment and the only side-effect I'm left with is very, very occasionally (less than once a month) passing clear mucus (produced by the lining of the bowel).

RT is a reasonably "gentle" treatment in terms of side-effects. Nothing to worry about.

Best wishes,

Chris

Edited by member 24 Oct 2019 at 10:32  | Reason: Not specified

User
Posted 07 Oct 2019 at 10:48

It can be very difficult to come to terms with mortality. There's a tendency for us all to think we're going to live for ever, and when we get a medical diagnosis that puts a definite limit on our life expectancy, it's a huge shock, both intellectually and emotionally. I don't think there are any magic solutions; we all have to come to terms with a diagnosis such as this in our own way. Counselling can be a big help for many people - it would be worth contacting Macmillan and seeing if there's counselling available near you.

I can't really offer any words of comfort other than to say that you will come to terms with it. Cancer becomes the "new normal". There's every reason to believe that your husband will be with you for some years yet; there's a large and increasing array of drugs and other treatments that can extend life. Although every cancer drug is only effective for a limited amount of time (the cancer eventually becomes resistant to it), when one ceases to be effective, your oncologist can switch to another, and so on. Don't be alarmed if there seem to be delays in treatment at times: because of the limited timespan of the efficacy of drugs, your oncologist may well want to delay some treatments to the time that they will have their maximum benefit.

Very sorry that you find yourself in this situation, particularly at your young age. You're definitely in the right place to get support, and if you have any medical questions don't hesitate to phone the wonderful PCUK nurses on the Freephone number at the top of the page.

Very best wishes.

Chris

Edited by member 07 Oct 2019 at 10:49  | Reason: Not specified

User
Posted 07 Oct 2019 at 13:50
Hi,

It is inevitable that you are going to worry about the future but it’s impossible to know what will happen. Everyone reacts differently to the disease and the treatment. It’s great that your husband is tolerating the chemotherapy well and his PSA is coming right down. As he is on the third cycle it is likely it will come down further.

Whenever I get a bit anxious and looking for answers my oncologist always tells me that he doesn’t have a crystal ball and guessing doesn’t help anybody. I was diagnosed with metastatic PCa just over three years ago and have just about got the hang of appreciating life as it is now. It’s been a bit of a struggle at times but physically you would never have known there was anything wrong with me either, not at diagnosis nor since. My bio is up to date if you want to take a look.

All the best and make sure you look after one another.

Dave

User
Posted 08 Oct 2019 at 14:13

Thanks Lyn, Chris and Dave. All you say makes sense of course. I will read your stories. It is strangely comforting to know there are others going through similar times,  though obviously I wish none of us were.

I expect I will be posting questions/looking for advice on this forum again in future.

Thanks.

Mrs MAS

User
Posted 26 Oct 2019 at 16:32

Hi Mrs MAS, 

We are 13 months into our journey.  This is unchartered territory for us as well.  I found this forum and it has been a saving grace for me to simply talk with and read about others who are going through this, and a wealth of great info.  There are many people on this forum who very kindly take the time to reply to posts and share their experience and knowledge.  They are angels to me.  I share limited info with my husband.  He is fragile, been extremely athletic and healthy his entire life so it has been a shock.

We have strong faith and I pray a lot.  I feel it is important I am able to function and stay strong for him.  He is depending on me completely.  I quit my full time professional job in Dec of 2018 to take care of everything.  Hubby is still working.  I am an adjunct professor at a college part time.  We say every day is new grace and we live life.  This has kept us in the present.  We got a new puppy, again keeping us in the present.  We are kind to ourselves, do what we want to do, don't get caught up in drama, keep life simple.  We surround ourselves with supportive people.  

Please keep us posted on Mr MAS progress.  Hope is a wonderful thing!

Saint Paul

User
Posted 13 Nov 2019 at 11:21
Hi Mrs Mas

Notice you are in Preston that's where I had my radiotherapy sessions in March/April this year.

I was diagnosed August 2018 with Stage 4 Metastatic Prostate cancer, see my profile.

My Onco said because I was fit with no other underlying health problems he was proposing throwing the kitchen sink at it.

I've had HT, Prostap which is continuing, 6 sessions of chemotherapy which I tolerated pretty badly and 20 Radiotherapy sessions which were fine.

I'm feeling well 15 months after diagnosis, got a 6 week trip to Australia planned in the New Year and next appointment with my Oncologist in March.

Hope this helps.

John

User
Posted 13 Nov 2019 at 13:07
Yes there is a risk of bladder/bowel problems with RT. This was spelled out by my Onco before I signed the consent form.

What sold it to me was when he told me that initial trials of chemo/RT in quick succession has shown an average increase in life span of 12-15 months I thought it would be worth the risk.

Fortunately I've had no after effects from the RT apart from in the case of a number 2, when I've got to go I have to go😖

User
Posted 15 Nov 2019 at 08:31
You can certainly continue to lead a normal life, although the RT does eat up a large chunk of your day. In my case the hospital was 40 miles away, so I had an hour's drive to get there, about an hour and a half there, then an hour's drive home again. You have to arrive at the hospital about 45m prior to treatment, use a micro-enema to make sure the lower bowel is empty, and drink three cups of water to ensure the bladder is moderately full and lifted away from the prostate, to minimise radiation damage.

Best wishes,

Chris

User
Posted 15 Nov 2019 at 12:10

Originally Posted by: Online Community Member

Cheers Chris and Lyn. Dare I ask why the PH neutral shower gel? 

I didn't use it myself, but RT can make the skin around the treated area sore (like sunburn), so a harsh shower gel may irritate it. 

Chris

 

Show Most Thanked Posts
User
Posted 07 Oct 2019 at 09:51
I see you are quite young and I think it is perfectly understandable to feel shocked and sad at an incurable diagnosis. How old is he?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Oct 2019 at 10:03

Hi Lyn,

My husband is 65 so I am much younger, you wouldn't notice to look at him. He, up to now, has been fit, strong, healthy and is still working in a manual job.   

It is only recent side effects from chemo and the hormone therapy which has made him feel a bit off. Other than that we honestly would not know anything was the matter.

Mrs MAS

User
Posted 07 Oct 2019 at 10:48

It can be very difficult to come to terms with mortality. There's a tendency for us all to think we're going to live for ever, and when we get a medical diagnosis that puts a definite limit on our life expectancy, it's a huge shock, both intellectually and emotionally. I don't think there are any magic solutions; we all have to come to terms with a diagnosis such as this in our own way. Counselling can be a big help for many people - it would be worth contacting Macmillan and seeing if there's counselling available near you.

I can't really offer any words of comfort other than to say that you will come to terms with it. Cancer becomes the "new normal". There's every reason to believe that your husband will be with you for some years yet; there's a large and increasing array of drugs and other treatments that can extend life. Although every cancer drug is only effective for a limited amount of time (the cancer eventually becomes resistant to it), when one ceases to be effective, your oncologist can switch to another, and so on. Don't be alarmed if there seem to be delays in treatment at times: because of the limited timespan of the efficacy of drugs, your oncologist may well want to delay some treatments to the time that they will have their maximum benefit.

Very sorry that you find yourself in this situation, particularly at your young age. You're definitely in the right place to get support, and if you have any medical questions don't hesitate to phone the wonderful PCUK nurses on the Freephone number at the top of the page.

Very best wishes.

Chris

Edited by member 07 Oct 2019 at 10:49  | Reason: Not specified

User
Posted 07 Oct 2019 at 13:50
Hi,

It is inevitable that you are going to worry about the future but it’s impossible to know what will happen. Everyone reacts differently to the disease and the treatment. It’s great that your husband is tolerating the chemotherapy well and his PSA is coming right down. As he is on the third cycle it is likely it will come down further.

Whenever I get a bit anxious and looking for answers my oncologist always tells me that he doesn’t have a crystal ball and guessing doesn’t help anybody. I was diagnosed with metastatic PCa just over three years ago and have just about got the hang of appreciating life as it is now. It’s been a bit of a struggle at times but physically you would never have known there was anything wrong with me either, not at diagnosis nor since. My bio is up to date if you want to take a look.

All the best and make sure you look after one another.

Dave

User
Posted 08 Oct 2019 at 14:13

Thanks Lyn, Chris and Dave. All you say makes sense of course. I will read your stories. It is strangely comforting to know there are others going through similar times,  though obviously I wish none of us were.

I expect I will be posting questions/looking for advice on this forum again in future.

Thanks.

Mrs MAS

User
Posted 08 Oct 2019 at 18:45

Hi Mrs Mas

Rob, my husband was diagnosed about 6 months ago - PSA 18, Gleason 9 and lymph involvement in pelvis, behind stomach and near one shoulder (9 in all). Just finished 5th docetaxel and on 3 monthly prostap.

I am only mentioning the following because what I learnt then is helping me now.  Rob had stage 3 bowel cancer 10 years ago. He has done very well, but we weren't to know that then.

What kept me going then was focussing on the present, and the knowledge that his consultants had a plan. I hung on to that, although I also learnt to question them if things weren't clear or I wasn't happy (Rob is not like that). When things got too much for me, I phoned Macmillan and spoke to a wonderful nurse. I have now done the same with the excellent Prostate Cancer UK nurses. I also used to tell myself  'it's as good as it gets' and at the end of the day would focus on even the smallest good thing that had happened that day. I used to be a 'glass half empty' person but I have gradually become 'glass half full'. It didn't happen overnight, but it has made life easier for me and I have learnt to live in the present and stop worrying about the future.

It's not easy to concentrate on anything when you are in shock - it is a frightening time.  Cheshire Chris hit the nail on the head when he referred to  the 'new normal' and I hope that gradually you will be able to move towards this. When you do, seize life by the horns and make the most of it.  I have healthy relatives who are not half as happy as we are!

Also, I have just found our cancer hospital's new Maggies centre. It is wonderful, so if there is one near you, it is worth visiting. I found support, laughter and a great cup of tea.

My best wishes to you both.

Shelagh xx

 

 

 

User
Posted 09 Oct 2019 at 06:56

Hi Shelagh

Thanks for your reply. My husband is a bit behind yours as he has just had his third Docetaxel. They sound similar, he would also not question things, it is me who has a notepad in the appointments. 

I rang the PCUK nurses the day after we found out, I was devastated,  they were excellent and really calmed me down. Your post has reminded me they are still there if I need them.  We are in Preston, so not close to a Maggies Centre.

I know the new normal will come, even though I don't want it. My husband is positive and upbeat and carrying on as normal as much as possible. We are sensible of course in terms of avoiding germs and being vigilant whilst on chemo. 

Im going to try your tip about finding something good about each day to focus on instead of rushing from one day to the next worrying about the usual stuff (which it turns out isn't important at all ) as well as the diagnosis/prognosis/treatments/side effects etc. 

Thanks for your support and best wishes to you and your husband also.

Mrs MAS x

 

 

Edited by member 09 Oct 2019 at 06:57  | Reason: Not specified

User
Posted 09 Oct 2019 at 20:00

Hi again,

Just a comment along the lines of what Shelagh said about her and Rob.

I’m sure that if a couple already love one another unconditionally then something like a cancer diagnosis is almost certain to strengthen that love. I know that if you have read my profile you will have seen I have been having some emotional issues but even so Chris and I are incredibly happy - both of us try not to look too far ahead. Admittedly she is better at it than me but her outlook helps me tremendously.

Take care

Dave

Edited by member 11 Oct 2019 at 09:28  | Reason: spelling error

User
Posted 10 Oct 2019 at 16:33

Hi Dave,

Yes I have read your profile and see you have some emotional issues. This thing is a lot for anyone to get their heads around even after the shock has subsided I guess. 

What I have seen from reading posts here is the sheer number of couples hit with this news and how much love they have for each other.  You and Chris and Shelagh and Rob included.

Thank you for your thoughts.

Mrs MAS

Edited by member 10 Oct 2019 at 16:36  | Reason: Not specified

User
Posted 24 Oct 2019 at 07:23

Hi all

We received a copy of a letter yesterday (from hospital to GP) which has a slightly more detailed diagnosis on than we were provided with in July (in the bio) . I know its medical terminology but thought I would share. It says 

"T3a(early), N1(enlarged nodes along right pelvic sidewall aortacaval and left paraaortic retroperitoneum), M1a reroperitoneal/paraaortic nodes, Gleason 4+4 adenocarcinoma of prostate. PSA 287, diagnosed July 2019."

This sounds worse than the original - does this mean it is in lots of lymph nodes? Do I need to ask for the actual number of lymph nodes it is in?

Also there is a line for 'treatment' This says 

"Hormonal manipulation, upfront Docetaxel chemotherapy, started August 2019, awaiting consideration of pelvic radiotherapy therefter."

He has just had his 4th chemo two days ago and is feeling okay and doing quite well on it so far.

Can anyone shed any light on the radiotherapy bit?  Now i have more questions - I thought it was not suitable for men where the cancer had spread to distant lymph nodes (I think the M1a above refers to distant lymph nodes). What, then will determine if he is able to have pelvic radiotherapy? Is it worse than chemo? What are the side effects etc?

Mrs MAS

User
Posted 24 Oct 2019 at 10:31

The side-effects of radiotherapy are relatively mild for most men. There may be some diarrhoea in the latter stages of the treatment, and the radiation can irritate the bladder resulting in the need to pee frequently (which can be pretty exhausting). Generally the side-effects peak about 10-14 days after treatment finishes. In my own case (I also had "wide beam" radiotherapy to treat possible but undetectable lymph node involvement) I was pretty much back to normal about a month after RT finished. For several months after I had occasional doses of prostitis (a burning sensation in the back passage), but on each occasion it cleared up after a couple of days. I'm now 7 months after the end of treatment and the only side-effect I'm left with is very, very occasionally (less than once a month) passing clear mucus (produced by the lining of the bowel).

RT is a reasonably "gentle" treatment in terms of side-effects. Nothing to worry about.

Best wishes,

Chris

Edited by member 24 Oct 2019 at 10:32  | Reason: Not specified

User
Posted 26 Oct 2019 at 16:32

Hi Mrs MAS, 

We are 13 months into our journey.  This is unchartered territory for us as well.  I found this forum and it has been a saving grace for me to simply talk with and read about others who are going through this, and a wealth of great info.  There are many people on this forum who very kindly take the time to reply to posts and share their experience and knowledge.  They are angels to me.  I share limited info with my husband.  He is fragile, been extremely athletic and healthy his entire life so it has been a shock.

We have strong faith and I pray a lot.  I feel it is important I am able to function and stay strong for him.  He is depending on me completely.  I quit my full time professional job in Dec of 2018 to take care of everything.  Hubby is still working.  I am an adjunct professor at a college part time.  We say every day is new grace and we live life.  This has kept us in the present.  We got a new puppy, again keeping us in the present.  We are kind to ourselves, do what we want to do, don't get caught up in drama, keep life simple.  We surround ourselves with supportive people.  

Please keep us posted on Mr MAS progress.  Hope is a wonderful thing!

Saint Paul

User
Posted 27 Oct 2019 at 11:55

Thanks for sharing your experience of radiotherapy Chris. It doesn't sound as scary as I thought, though I know everyone is different.  If it turns out he is offered it I will post again with more questions no doubt.

Mrs MAS

Edited by member 27 Oct 2019 at 12:03  | Reason: Not specified

User
Posted 27 Oct 2019 at 11:59

Hi Saint Paul, 

I feel the same as you about the forum I am so glad I found it. Sorry you are here too. Thank you for your good advice of being kind to ourselves and keeping things simple. 

Best wishes to you and your husband also.

Mrs MAS

User
Posted 13 Nov 2019 at 11:21
Hi Mrs Mas

Notice you are in Preston that's where I had my radiotherapy sessions in March/April this year.

I was diagnosed August 2018 with Stage 4 Metastatic Prostate cancer, see my profile.

My Onco said because I was fit with no other underlying health problems he was proposing throwing the kitchen sink at it.

I've had HT, Prostap which is continuing, 6 sessions of chemotherapy which I tolerated pretty badly and 20 Radiotherapy sessions which were fine.

I'm feeling well 15 months after diagnosis, got a 6 week trip to Australia planned in the New Year and next appointment with my Oncologist in March.

Hope this helps.

John

User
Posted 13 Nov 2019 at 12:22

Thanks John. Have just read your profile, you are not far from us. Glad to see your latest results are good.

What worries me about the RT (which he may/may not be offerred) is at the moment my husband has no symptoms from the PCa itself (well he does wee often and has been the case for years but doesn't affect/disrupt his life) and IdI'd be afraid that RT might damage his bowel/bladder area and end up with new issues. 

Also I am assuming that RT for advanced cancer is a new thing? Were you told what the benefits are as its already escaped the prostate? 

Best wishes

Mrs MAS

Edited by member 13 Nov 2019 at 12:30  | Reason: Not specified

User
Posted 13 Nov 2019 at 13:07
Yes there is a risk of bladder/bowel problems with RT. This was spelled out by my Onco before I signed the consent form.

What sold it to me was when he told me that initial trials of chemo/RT in quick succession has shown an average increase in life span of 12-15 months I thought it would be worth the risk.

Fortunately I've had no after effects from the RT apart from in the case of a number 2, when I've got to go I have to go😖

User
Posted 14 Nov 2019 at 19:34

I have a possibly stupid question. Regarding radiotherapy to the prostate, is it administered up the bottom? 

Mrs MAS

User
Posted 14 Nov 2019 at 19:44

Mrs Mas

No such thing as stupid questions.

Google "you tube prostate rt treatment" then select videos, there is a video of the process, I have only skipped through it and there are regional variations. 

Thanks Chris

Edited by member 14 Nov 2019 at 20:00  | Reason: Not specified

User
Posted 14 Nov 2019 at 20:03

Thanks Chris, will do.

Mrs MAS

User
Posted 14 Nov 2019 at 20:40

Originally Posted by: Online Community Member

I have a possibly stupid question. Regarding radiotherapy to the prostate, is it administered up the bottom? 

Mrs MAS

No, it's external. You lie flat on your back on a table in the middle of a machine that looks like a large vertical donut. You start off by having a planning session in which three dots are tattooed on you - one on each thigh and one in the middle, over the public bone. These dots are used to exactly line you up on the table during your subsequent treatment sessions.

The radiation beam is delivered out of a tube that points at the appropriate area, and rotates around the table you're lying on. It goes around twice, first one way, and then the other. Lead plates inside the emitter are constantly moving to delivery a precisely shaped 3-dimensional radiation dose to exactly the parts that need it, with minimal exposure to any other part of the body. 

It’s a very straightforward process, and you quickly get into the swing of it. I had 30 sessions, so treatment Monday to Friday for 6 weeks.

Best wishes,

Chris

 

Edited by member 14 Nov 2019 at 20:44  | Reason: Not specified

User
Posted 15 Nov 2019 at 07:16

Thanks Chris, thats very informative. I know everyone's different but are you able to still go to work/do normal things around it (apart from going to the hospital every day).

Mrs MAS

User
Posted 15 Nov 2019 at 08:31
You can certainly continue to lead a normal life, although the RT does eat up a large chunk of your day. In my case the hospital was 40 miles away, so I had an hour's drive to get there, about an hour and a half there, then an hour's drive home again. You have to arrive at the hospital about 45m prior to treatment, use a micro-enema to make sure the lower bowel is empty, and drink three cups of water to ensure the bladder is moderately full and lifted away from the prostate, to minimise radiation damage.

Best wishes,

Chris

User
Posted 15 Nov 2019 at 09:19
On the other hand, it may not be like that. John's appointment was first thing every morning, he went on the way to work and was usually there for about 15-20 minutes, except on Wednesdays when he also the oncologist. At our hospital, you don't do mini-enemas; it varies from area to area.

He worked throughout, still went to the gym every day and carried on playing rugby. Towards the end, he had an afternoon nap at his desk sometimes. The one thing you will definitely need to do is buy some PH neutral shower gel.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Nov 2019 at 10:32

Cheers Chris and Lyn. Dare I ask why the PH neutral shower gel? 

Edited by member 15 Nov 2019 at 10:33  | Reason: Spelling

User
Posted 15 Nov 2019 at 11:56

At Royal Preston they only did the enemas for the first 5 visits. Bit of a waste of time for me, they never worked.

The other thing at Royal Preston they offered all RT patients discounted parking at £2.50 a day but I gave up after 3 days because I couldn't find a space and ended up parking in the street on the other side of the A6 for free.

Edited by member 15 Nov 2019 at 11:58  | Reason: typo

User
Posted 15 Nov 2019 at 12:10

Originally Posted by: Online Community Member

Cheers Chris and Lyn. Dare I ask why the PH neutral shower gel? 

I didn't use it myself, but RT can make the skin around the treated area sore (like sunburn), so a harsh shower gel may irritate it. 

Chris

 

User
Posted 15 Nov 2019 at 12:30

Just a little curiosity to do with radiation. One of my tattoos which they use to guide the machine was on my hip where I had a patch of psoriasis (I've had this complaint for many years). The radiotherapy almost completely cleared it up. Even 3 and a half years on there is only a tiny patch whereas before it was the size of a tennis ball.

Not really relevant but a welcome side effect!

User
Posted 15 Nov 2019 at 13:36

Hi Pete

A positive side effect from anything to do with this is good to hear! 

Mrs MAS

User
Posted 15 Nov 2019 at 13:39

John, thanks for the A6 parking tip. Its awful any time of day at RPH.

Mrs MAS

 

 
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