Hi Mrs Mas
Rob, my husband was diagnosed about 6 months ago - PSA 18, Gleason 9 and lymph involvement in pelvis, behind stomach and near one shoulder (9 in all). Just finished 5th docetaxel and on 3 monthly prostap.
I am only mentioning the following because what I learnt then is helping me now. Rob had stage 3 bowel cancer 10 years ago. He has done very well, but we weren't to know that then.
What kept me going then was focussing on the present, and the knowledge that his consultants had a plan. I hung on to that, although I also learnt to question them if things weren't clear or I wasn't happy (Rob is not like that). When things got too much for me, I phoned Macmillan and spoke to a wonderful nurse. I have now done the same with the excellent Prostate Cancer UK nurses. I also used to tell myself 'it's as good as it gets' and at the end of the day would focus on even the smallest good thing that had happened that day. I used to be a 'glass half empty' person but I have gradually become 'glass half full'. It didn't happen overnight, but it has made life easier for me and I have learnt to live in the present and stop worrying about the future.
It's not easy to concentrate on anything when you are in shock - it is a frightening time. Cheshire Chris hit the nail on the head when he referred to the 'new normal' and I hope that gradually you will be able to move towards this. When you do, seize life by the horns and make the most of it. I have healthy relatives who are not half as happy as we are!
Also, I have just found our cancer hospital's new Maggies centre. It is wonderful, so if there is one near you, it is worth visiting. I found support, laughter and a great cup of tea.
My best wishes to you both.