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End of active treatment

User
Posted 26 Mar 2020 at 00:32

Lynn

Thanks, As usual thinking upon what you said some of that applies to me at the moment.

as usual thinking upon what you said some of that applies to me at the moment.

I have been little bit constipated And have been straining so perhaps that could’ve been why

But as you say I guess after radiotherapy your first guess is always the blame that

but as you say I guess after radiotherapy your first guess is always the blame that

I will keep an eye on it Because that’s all I want to do at the moment with the burden that is on the national health service

User
Posted 26 Mar 2020 at 10:43

Hi Alan. I do hope your bleeding stops soon. I must admit if I have particularly hard stools I sometimes get a little bleeding. Something maybe we have to put up with now ....possibly nothing to do with the RT but just old age 🤣

You are about 3 months ahead of me now although I started earlier. I had my last Prostap in October ‘19 and was hoping to see a rise in Testosterone at my last blood test, but was not to be - still at 0.7 . I have another blood test in July but only for PSA.  Next T check is in October and I hope to see a significant rise by then. I am a bit paranoid about it and feel my beard every morning to see if it’s growing any quicker . I am slightly mad after all. 
I am just getting my bike out and pumping the tyres up to get out and get fitter again after lapsing after my Tough Mudder last year, but they’ve just closed the country park right next to where I live so I will have to cycle along the sea wall ( with everyone else doing the same 🤣🤣)

It’s good to hear your story as we are quite similar . I was G9 PSA 27 T3b I started HT in Jan ‘18 then HDR Brachy plus 23 Radiotherapy sessions in July ‘18. I was on the HT for 2 years as they wouldn’t listen to me coming off at 18 months.

Fingers crossed for your bottom issues and for your recovery to full health from this awful disease.

Good luck, stay safe, and sane ....

Phil

User
Posted 16 Jun 2020 at 10:41

Hi Alan, and the all other guys coming off the HT.

Quick recap: Last HT Prostap injection October’19. PSA in December’19 0.07. In March it was 0.08 and my Testosterone was 0.7.

Just had another PSA test and it is now 0.97 . Quite a jump but maybe that’s normal???? Should I phone my specialist nurse as this was an extra PSA they threw in at 3 months as they wanted it to be 6 month gap so they may not be monitoring this result....

I have added a new post about this but it hasn’t appeared yet.

Phil

User
Posted 16 Jun 2020 at 10:59
it's fine - you still have a prostate so your PSA is expected to rise as the hormones leave your system. Your long term aim is to stay below 2.07 - you are still a long way below that.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Jun 2020 at 11:07

Thank you Lynn. It just seemed like a big jump...

Just got to wait 3 months for my next test which will be PSA and Testosterone.

Phil

 
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