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User
Posted 19 Dec 2019 at 19:19

Hi Rich
Have a look at my profile ,I had early Chemo ,there maybe something in there to help you
Regards Barry

User
Posted 20 Dec 2019 at 14:15
Thank you Barry. Was your chemo intravenous (docetaxyl?) or oral (Abiraterone or Enzolutamide?)?
User
Posted 20 Dec 2019 at 21:08


PSA from yesterday is now 4.4. That is a rapidly accelerating doubling rate. I suppose it makes no difference to treatment having only just started Abi today but it is not good is it? I am starting to feel a lot less worried as the possible outcomes are homing in to one thing! BTW Testerone <o.1 nmol/L :( 

Edited by member 20 Dec 2019 at 22:31  | Reason: Not specified

User
Posted 21 Dec 2019 at 05:29
The rapid rise is not good news, fingers crossed you will have a durable response with Abbi.

The fact your cancer can be seen with PSMA scans will mean it may be treatable with leutineum. Have you considered early treatment with that??

User
Posted 14 Sep 2020 at 11:45

I go to Freeman Hospital this afternoon for my first of 5 SABR treatments. This will be 50 Grays compared to the 2/3 Gray I had for the 37 tomotherapy sessions. My Onco says "I am confident that the SABR will be effective for the disease in the right ilium and that the Abiraterone will continue to be effective on the prostate and SV. Given the result of your PSMA PET CT i do not believe you have anything else to worry about.

I saw the scan for the first time and it is ~6.1cm at it's longest and on my RH hip. It all looked white on the scan but the Dr said it was "diffuse with a hot spot" that I could not differentiate. A radiotherapy Dr showed me the scan not my Onco.

My other worry is that my PSA has jumped to 6.13 on 3rd September from 3.18 on 9th July. I emailed him and said I was concerned about this but I suppose we need to see how effective the SABR is. He didn't reply...........?

User
Posted 14 Sep 2020 at 21:20
Good luck Rich, hope it sorts you out...
 
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