Diagnosed at 41 years old

User

Posted 30 Apr 2020 at 12:34

Hi lyn, thank you for your reply.

The urologist suggested staying on AS indefinitely as it may never develop and having treatment now (or the side effects) would out way the benefits as its early stages.

But again, I'm worried as you have indicated that the earlier you get it, the more aggressive it is.

Why would they not try to hit it hard and fast?

What does the C mean on the T2c?

Thanks

Lee

User

Posted 30 Apr 2020 at 12:37

I have replied on your own thread 👍

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 30 Apr 2020 at 12:40

Thanks for this Lyn. This is interesting as my husband had not had a bone scan. So not sure where the M0 has come from in his score. Will raise this with Surgeon on next contact.

Mel

User

Posted 30 Apr 2020 at 13:36

If he hasn't had a bone scan, his diagnosis should be written as Mx .... they are only assuming it is M0 because G6 doesn't tend to go to bone or soft organs.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Sep 2020 at 14:54

Hi Mick78

I hope you are well?

I too was diagnosed at 41 (now 42) and very interested in this feed, thanks for sharing!!

Now considering prosectomy having been on AS. Keen to know how things are for you now?

many thanks

Mike

User

Posted 21 Sep 2020 at 19:20

Hi Mike, my husband had prostatectomy about 10 weeks ago at age 44. He’ll be happy to talk through things also if you like. :)

Mel

User

Posted 21 Sep 2020 at 19:23

Hi Mel, that would be amazing and massively appreciated, yes please!! I would PM you but I’m not allowed to as yet as I’ve only just set up my full profile. Thanks loads in advance, Mike

User

Posted 21 Sep 2020 at 20:18

No problem. When you can. He’s more than happy to help out. :)

Mel

User

Posted 28 Nov 2020 at 09:26

Hi sorry for your news I was 47 when diagnosed Gleason score 6 T2c stage and opted for robotic prostatectomy without hesitation back in 2018 I’m not going to say it’s been easy but there is always light at the end of the tunnel if you stay positive. Happy to answer any questions just email me kind regards Andrew

email in profile

Edited by member 28 Nov 2020 at 16:07 | Reason: Not specified

User

Posted 28 Nov 2020 at 15:29

Hey! How are you doing?

Mel

User

Posted 28 Nov 2020 at 17:13

Originally Posted by: Online Community Member

email in profile

You need to change your avatar so that it doesn't show your email address - you are opening yourself up to all sorts of spammers and weirdos. If you don't know how to change your name, contact the moderators fo advice.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 29 Nov 2020 at 00:35

Originally Posted by: Online Community Member

As far as I know, usernames are only visible to members, as are profiles.

User

Posted 29 Nov 2020 at 00:50

And we never get spammers or weirdos joining the forum?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 29 Nov 2020 at 05:47

Originally Posted by: Online Community Member

And we never get spammers or weirdos joining the forum?

I’m probably the weirdest weirdo, direct from Weirdland, and I never really had cancer. I must have imagined it.

I’ll confirm that on Tuesday, when I get my latest PSA result on my iPad from the blood test at my local chemist at 07.00 on Monday.

Cheers, John.

P.S. What strange people would want to interfere with a cancer help forum? I am on a car website and we get loads of foreign spammers wanting to befriend us and offer guaranteed investments in Bitcoin...

Edited by member 29 Nov 2020 at 06:11 | Reason: Not specified

User

Posted 29 Nov 2020 at 16:00

Sadly, we have had our share although more often people trying to sell stuff - perhaps the weirdo posts and people putting up links to sell us all snake oil get deleted by the moderators before a lot of members see them. About 3 years ago, we had someone who pretended to be the wife of a newly diagnosed man - drew a lot of people into an ever-more bizarre story; we have also had the occasional fake diagnosis.

Good luck tomorrow (and with your bitcoin investments) 🤞

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 18 Dec 2020 at 01:06

Hi there

just been recently diagnosed in September - I was 48 (just turned 49 now).

I was given a range of options - I opted for SABR radiotherapy which was an intense 5 day course. No hormone therapy was needed and I had a SpaceOAR inserted to protect my rectum. I know there is some surprise in this group that radiotherapy was offered at my age, but my consultant offered it because I was so young....

I didn’t opt for AS because I would worry too much, and surgery just seemed too much. My side affects haven’t been to bad (just finished treatment 2 weeks ago) and I’m getting back to normal - we are hopeful of a cure.

Happy to chat though - helps me get through this as well.

Jonathan

User

Posted 01 Aug 2021 at 00:34

good luck!

Edited by moderator 01 Aug 2021 at 12:48 | Reason: Not specified

User

Posted 01 Aug 2021 at 09:08

Reported

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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