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Which treatment to choose for young men with Gleason 3+3?

User
Posted 23 Feb 2020 at 15:20
Thanks LynEyre - relative newbie so didn't realise the rules! Looks like its been moderated already.
User
Posted 24 Feb 2020 at 16:20

Thanks lots and I just tried to DM you again and see if it works this time? Cheers

User
Posted 26 Feb 2020 at 07:38

Hi there, not sure if you have got my last DM and maybe spam is blocking again? 

I will try to DM my email address to you and see if that works if it’s ok with you? 

thanks lots! 

User
Posted 26 Feb 2020 at 09:19

Further to the above: I had my 8 week follow-up post RP yesterday. Good news is my PSA is now at zero. Pathology showed the tumour was 0.5mm from the edge of the prostate and clearly planning its next move! So, for me thats confirmation that the RP was the best course of action in my case. 

Had it not been for my father's diagnosis and being told to get check out as an over 40 offspring I suspect it would have been a long while yet before I got any symptoms and a very different scenario.

Edited by member 26 Feb 2020 at 09:23  | Reason: Not specified

User
Posted 01 Mar 2020 at 16:36

Appletree:   sorry your husband has joined our club.   I also found deciding on AS or treatment very difficult.

My story is in my profile, as well as a conversation I started.   I was monitored for 5+ years due to high and increasing PSA before Gleason 6 was found in April 2019.   i had started checking forums before that, as in back of mind I expected that eIentually they would fine "cancer".    I found that US based forums, you get many more strong opinions that Gleason 6 "is not cancer", without any consideration of other factors such as PSA level and trend, volume detected, etc..   I found this forum more balanced.

I did not find this video until after I had made my decision on next steps,  but while it is six years old,  it is has a lot of great information on AS.   In the full video, he starts talking about AS at about the 21 minute mark,  and goes into more detail on what should be done in AS at about the 26:30 mark.    And repeat biopsies (which are necessary as part of AS) do have negative side effects.

https://pccntoronto.ca/2014/06/06/video-dr-tony-finelli-20-years-in-prostate-cancer-care-where-we-were-and-where-were-headed/

Talks also about HIFU (this is an old video), and robotic surgery in rest of video.

The doctor in the video is my uro-oncologist and my surgeon.   He is now chief of Urology at the largest hospital group in Toronto,  and the Genitourinary site lead at the top cancer research center in Canada 

 

   

 

 

Edited by member 01 Mar 2020 at 16:42  | Reason: Not specified

User
Posted 06 Mar 2020 at 14:29

Thanks lots for your kind reply, very helpful indeed! Wish you a smooth recovery! 

User
Posted 29 Mar 2020 at 09:03

Hi AT

Your inbox full again :-)

From the best of my knowledgeable to use the private route and get it fully funded you would have needed a policy in place before symptoms were diagnosed. 

I don’t have contacts as just use standard switchboard and get routed through to the cancer team for claims. All very simple and they have been fantastic. 

TG

User
Posted 14 Apr 2020 at 14:22

Hi TG, thanks lots for this, sorry just saw this as I have been checking my inbox for your reply and didn’t realise that it was full. It says 1% only? So strange. 

Since we don’t live in the UK at the moment, this whole insurance business is quite complicated and expensive...

 

Anyway, thanks lots again! 

 
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