I’ve been following your thread since last summer, as your journey runs about three months ahead of mine. I have learnt so much from you and from many others on the forums – thank you to all. Now I’m posting for the first time.
You ask how much people drink, though I think you were referring specifically to cranberry juice. My answer is about water.
I aim at 1.5 litres/day. My nurse specialist told me to keep well hydrated for a healthy, well-functioning bladder, and I’ve followed her advice ever since, including during the EBRT weeks and since finishing. I still get bladder frequency and urgency, but it’s manageable, and I’ve never had burning or other discomfort. I believe my hydration regime has helped not only with urinary health but with general fitness and energy. I scale it down in the evening, but rehydrate on getting up in the morning.
I am light for my height, so 1.5 litres daily is about as much as I find comfortable. If you are more heavily built, you could possibly aim at 2 litres/day. (Or perhaps you do already?)
I am sorry to read about your fatigue. I realise you know all about exercise being recommended, so perhaps there’s another cause, or it’s a combination of things. The 4.5-mile walks sound excellent on the face of it, but if it’s still a struggle you could try doing things differently. Maybe try some exercises you can do at home, gentle at first, building a routine that suits you.
Since my diagnosis I’ve made a big effort to maximise my fitness. Simple stretches first thing every morning, strength and flexibility exercises mid-morning. Our Living With and Beyond team sent me an exercise video, and I developed my own daily routine from that. I do short walks with my partner and longer ones on my own. I love being out in the countryside, alone in a wide landscape, working out my own thoughts. All the physical stuff makes me feel better, and counters any depressive thoughts or tendencies.
Stephen, I hope you find a way through the fatigue. Pick and mix and experiment with your own choices and ideas. Trust yourself to work out a way. Tackle different things (alcohol? weight?) in tiny incremental ways that you can maintain.
You had a super second PSA reading – something to rejoice about, even if you don’t altogether trust it until you’ve a clear CT scan.
Edited by member 26 Feb 2021 at 20:44
| Reason: just a small word added