Possible spread to right hip bone

Hi All,

Some Fantastic News!  Keith has just had phone consultation with his Oncologist following on from their MDT meeting on Tuesday.  After reviewing all scans he is going to assume the lesion to the pelvic bone is not spread of the disease (metastasised) and therefore nothing to worry about as there has been no change to this lesion following chemo, so will be treating the PCa as ‘curative’ with 20 sessions of radiotherapy to the prostate and seminal vesicles.  Will have CT Scan in the next week or so for tattoos to mark out for the radiotherapy. So start radiotherapy at QE Birmingham in about 4 weeks.  Will stay on HT three monthly injections for now.

We really feel we can move forward now. after being anxious and very apprehensive for the last 10 months.

When we think back, this all started from Keith going to see his GP to have a hernia checked out and he mentioned his Dad had lived with prostate cancer (although passed away with a different cancer at the age of 87) and asked if he should have a PSA test........

Good luck to everyone waiting for scans/results.

Phil - have you received your PSA result from Monday?  Hope it’s a good one.

Onwards and Upwards.

Angexx

Edited by member 18 Jul 2020 at 17:08  | Reason: Not specified

They will also be in the zone for radiation treatment

Hi Ange, great news regarding the lesions. A weight off your minds.

I had HD Brachytherapy with EB Radiotherapy and they zapped my Seminal Vesicles as well. Mine had spread there but I get the impression they do it anyway. I didn’t consider surgery as I was pretty determined to go the RT route. 
I don’t know much about the surgery I’m afraid but I’m sure the RP guys will pop on soon.

I am hoping to get my PSA result back tomorrow. It’s an odd period as I know it’s likely gone up a bit as the HT wears off and it gets back to a normal level . Another 3 months to find out how the Testosterone is coming along. Must admit I’m looking forward to my next counselling even though it’s going to be my last 😢 I will miss it , wish I’d done it years ago. 

I’ve been on the phone this morning to a pal who’s PCa has come back within months of having seed implant Brachytherapy. He’s bricking it a bit as they realised in February it was back but still waiting for some kind of detailed scan to see where it is before they decide if they can do anything. I really feel for him as he was diagnosed after me and it was supposedly only small and slow growing and now I’m coming out the other side and he’s still unsure if the future. Shame we can’t go down the Pub to drown our sorrows.

Take care 

Phil

Hi All,

Keith received a phone call yesterday from QE Birmingham confirming this Friday 19th June to have CT planning scan and tattoo markings ready for RT.  We can’t fault our NHS, everything moving along so fast.  We just hope this is the right way to go and we are trying to be as positive as we can but every now and then we both throw a wobbly.
Hopefully, when RT sessions are completed Keith can have his hernia sorted out as that causes him a lot of discomfort.  It’s something he’s had to keep under control with a truss for almost twelve months now.

It’s our youngest Grandson’s 5th Birthday tomorrow and his garden is just at the back of ours so we’ll be over there to celebrate (just six of us social distancing of course).  Just hope we don’t have any thunder storms.

Good luck and best wishes to all on the forum.

Ange x

P.S.  Has anyone heard news from Bazza?

Thanks Phil, that’s really appreciated.

I’m pleased Lyn was able to give you some reassurance about your PSA.  It’s just what you need during these worrying times. You’ve come so far on your journey, which gives us all hope.

Hope this makes you smile 😃 Keith’s new truss arrived this morning for his hernia.  He has to lie down to push his hernia back into place and he said this morning ‘I hope I’m pushing the correct bit in’ as he can’t always be sure as it’s so close to his other bits.  We both ended up in fits of laughter.  

Take good care of yourself and I hope you feel like getting out on your bike soon.  Keith mentioned to his Onco that he’s started cycling again (used to belong to a cycling club in his younger days and I think he is reminiscing as he’s purchased the Lycra shorts, etc., to look the part, much to our Daughters’ disgust). Anyway, I digress, Onco said don’t go falling off and undo all the good work we’ve done.  Perish the thought!!
Angex

Stress over as all sorted today, so onwards and upwards.  Looking forward to the weekend now, catching up with family and Formula 1 Grand Prix.

Best wishes to all.

I got pretty bad trots and they put me on fybogel to bind the poos even though it's a constipation remedy it seemed to help

Not insinuating he's not but Keith just needs to ensure he cleans himself up 100% otherwise the acid in the diarrhoea burns the rectum walls and it becomes inflamed and very sore.

Hope he gets through his last 12 sessions unscathed.

Hi Ange

I've mentioned before that Bepenthan (nappy rash cream) is very good for sore bum.
Recommended by my colorectal consultant who said use as much and often as you want inside or out.

Cheers
Bill

Edited by member 16 Jul 2020 at 14:50  | Reason: Typo

Hi All,

Keith had his 20th RT session this morning.  Next appointment will be 15th October for phone consultation with his Oncologist.   Hopefully all will go well.  We’ll just try to stay positive and move forward.

Thinking of you all.

Stay strong.

Ange x

I'm at the 18 month post RT stage now so my next appointment with my Onco in December is starting to give me the yips..