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Hooray I'm off zoladex, let's hope for good.

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User

Posted 20 Jun 2022 at 21:52

When I had my cystoscopy it was a 10 minute deal. My Uro explained he was late for a meeting. Little gel , no 15 minute wait. Just wielded this huge camera and stuck it up me. I’m good with pain but my wife heard me in the waiting room !! I actually felt violated afterwards and she’d a few tears with the nurse. I think I broke her hand squeezing it hurt so much. Never again

User

Posted 20 Jun 2022 at 21:53

On the subject of urology follow ups. I don't know.

The Christie oncologist always asked if the urologists had seen me. I said no, quietly thinking, why would they? I'm under an oncologist now.

Today the urologist said, I can't find any notes about your cancer follow ups from urology. I said I've not had any from urology, but have had them from oncology at the Christie. He said, "oh well I'm going to book you in for a four month urology follow up."

It makes no sense to me. I guess if other members who had RT and have not had a prostatectomy could comment on which departments did follow up with them it would be interesting.

Dave

User

Posted 20 Jun 2022 at 21:59

Hi Chris, same speed with me. 10 mins turn around. I'd not heard of a 15 minute wait. Is that how long it takes for the anaesthetic to work, if so they didn't wait long enough on me.

Half an hour afterwards I felt a bit sick and was sweating like I had a fever. I had a fruit drink in the canteen and after an hour felt well enough to get on the motorbike and ride home.

Dave

User

Posted 20 Jun 2022 at 23:08

Originally Posted by: Online Community Member

On the subject of urology follow ups.

In the old days, a lot of members here who opted for RT/HT stayed under the care of both the urologist & oncologist afterwards, perhaps seeing each one every 12 months so being reviewed 6 monthly; onco monitoring the impact of the RT / HT and uro monitoring the plumbing. It doesn't seem to be happening recently so perhaps cost-cutting or the recent increase in uro-oncologists?

John has remained under the care of both following RP & then salvage RT/HT but he doesn't bother making appointments with either of them nowadays - just sends them both the PSA result. If the PSA goes above 0.15, we will make an appointment with the onco.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Jun 2022 at 23:55

I'm under oncology, having been treated with radiotherapy.

However, I've always made it clear I've been concerned about sexual function, and I've had follow-ups with urology for that, but I suspect that wouldn't have happened if I hadn't pushed. Also followed-up by colorectal for the rectal bleeding.

User

Posted 21 Jun 2022 at 10:06

Dad is under oncology, after having HT/RT. Next follow up is September so i shall ask if Uro follow up needs to be made, although they should be telling us this, not the other way round.

Dave.. shoving cameras everywhere.. really made me laugh out loud!

Hope you are better today!

User

Posted 21 Jun 2022 at 19:25

Thanks for your views on whether you are having uro or onco follow up. I can't see much point in me starting uro follow up after four years. I will see how it goes.

Pissing is a lot better today, hardly notice that I had the camera yesterday.

Just had a phone call I have a CT scan on Saturday. I guess it will be nice to see if everything is clear.

Dave

User

Posted 21 Jun 2022 at 21:59

Best of luck with the scans Dave, and hope all is ok x

User

Posted 21 Jun 2022 at 22:04

Saturday hey. My dad had an MRI on his ankle on a Saturday which i thought was unusual, as i didn't think they did weekend appointments. I know you will anyway but do please update on here with results. All will be clear.

Glad pissing is better today.

User

Posted 21 Jun 2022 at 22:09

good luck with the scan's Dave glad the pissing has improved 💦

User

Posted 22 Jun 2022 at 18:02

I called Macmillan today to ask about Uro follow ups. She said Uro do all the investigation work at first, if cancer is found and Chemo/RT and HT are taken up then oncology take over. If an operation is done then uro and oncology both follow up. If no operation then only oncology follow up. If any uro concerns come up that is not cancer related then oncology will refer to Uro again.

So for dad its just oncology for now. Macmillan are fab!

User

Posted 03 Jul 2022 at 15:02

What happened with scan Dave? Results in?

User

Posted 03 Jul 2022 at 15:04

Ah just seen on your profile update nothing to worry about. Fab news!

User

Posted 03 Jul 2022 at 19:19

Hi SR12, I have officially had the cystoscopy result, but haven't officially had the CT scan result.

The CT scan was to check kidneys and as the blood was not well mixed with the urine, it was almost certainly from after the bladder rather than before or in the bladder. So the chance I have kidney problems is very small. Since the scan the oncologist has sent an appointment for October so I am assuming nothing worth seeing on the CT scan or I would have been called in straight away. I guess there is a chance, I might get called in for an urgent appointment, but I think that is vanishingly small. I will post if that happens.

I will be interested to see the kidney report at some time, it may popup in correspondence between hospital and GP, or I could ask in October, if it comes back perfect I shall increase my alcohol consumption.

Edited by member 05 Jul 2022 at 00:25 | Reason: Not specified

Dave

User

Posted 03 Jul 2022 at 19:58

Sounds good! Your interpretation of these facts seem to make sense. Glad to hear. Congrats on this subject and congrats on your positive and smart attitude.

Best,

Lola.

User

Posted 03 Jul 2022 at 22:40

Great news. Doesn't sound worrying. If it was then i am sure you would have had a call by now. Its good to hear that you were fully checked out without delay. Definitely admire your positive attitude.

User

Posted 04 Jul 2022 at 17:48

Nice one Dave. There’s something to be said for the alcohol. I actually think it’s preserving me internally 😆😆

Keep on trucking 👍

User

Posted 04 Jul 2022 at 21:16

Great to read this news Dave 👍

User

Posted 05 Jul 2022 at 00:21

Originally Posted by: Online Community Member

Nice one Dave. There’s something to be said for the alcohol. I actually think it’s preserving me internally 😆😆
Keep on trucking 👍

Preserved or pickled?

Dave - I am glad to see good news

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 03 Aug 2022 at 13:03

Just in case anyone is interested the CT scan results on the kidneys have came back after a month. "Very small stone, right kidney, everything else absolutely normal".

This was all prompted by a bit of blood after peeing. I'm not due a PSA test until Christmas, so I will ask for calcium and uric acid to be added to the blood tests then. I might eat a cranberry muffin instead of a chocolate muffin as a token gesture towards kidney health, but that is as far as I'm prepared to go when it comes to diet fads. Other than that I shall just carry on as per normal.

Dave

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