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Latest PSA Test results

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User
Posted 18 Jan 2022 at 09:28

Great news John, long may it continue. Hope you have an amazing cruise x

User
Posted 18 Jan 2022 at 12:21
👍🎉🛳
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 23 Jan 2022 at 22:06
Good "scores on the doors" Jasper

Good luck to everyone coping with the insidious big C

User
Posted 06 May 2022 at 10:18
Onco appointment today PSA remains undetectable, testosterone still controlled at 0.24. Bit concerned over last 4 weeks about lower back pain, particularly when driving my Onco suspects it's degenerative old age pain and unrelated to PCA.
Off on another cruise next week out of Rome visiting Greece Montenegro and Croatia. Hope the sunshine sorts my back pain out. If only someone would insure me for PCA for less than £2k .....
User
Posted 06 May 2022 at 13:19
Great news, Jasper. Have a fab holiday!

Chris
User
Posted 06 May 2022 at 15:05
Great news Jasper. The only reason I got cheaper insurance at last was because I had Bone and CT scans proving that all mets were under control , and hence I could answer the recent scan question properly that all the companies use. I did stress to them that it’s the PSA that is important and not mostly the scans , and that someone needs to address this for PCa
User
Posted 06 May 2022 at 16:11

It's a good point Chris, I haven't had a CTI scan since diagnosis in July 2018. I wouldn't mind finding out what this bony metastasis on my right hip is actually doing because it doesn't seem to be causing me any problems.


Tried Allclear this morning for a quote, as soon as I told them the cancer has spread out of the prostate the quote jumped to £1250, the cruise was £1600.


That quote was also limited to Europe so plans for the Caribbean next Spring will have to be scrapped.


If I had a £10 grand car sure I wouldn't be paying £8k for insurance. Bad enough having cancer without being stiffed every time you want to go away.

User
Posted 06 May 2022 at 16:23
Jasper I was ranting down the phone last year and pulling teeth out. It’s actually infuriating trying to explain that you haven’t had recent scans because they monitor psa instead. Like talking to a brick wall. And they ALL use EXACTLY the same question matrix. I did bring this up repeatedly with my Oncology specialist nurse and I guess that’s what led to me getting the scans done. As soon as I could say all mets smaller or reduced I was back in the good books 📚.
But yes you’re right - a bit of a travesty when all seems well and your life is limited anyway. I better tell the Mrs I’m doing back to back cruises for a year ……..
User
Posted 11 May 2022 at 07:45

Hey Jasper 


Mr MAS and I are so pleased on your recent undetectable psa. Enjoy your holiday and take care. 

Mrs MAS

User
Posted 11 May 2022 at 08:40

Jasper, good news on the PSA.


Has anyone checked you for osteoporosis? You really should be if on long term HT, and it might also be responsible for back pain (although lots of other potential causes too).


Also, reading your profile, I'm curious, did the Pomi-T have any impact on finger joint pain?

User
Posted 24 May 2022 at 07:14

Hi Andy


Had dexa scan about 6 months ago and bone density was normal.


Italian sunshine seems to have sorted by back problems for now, daily Pomi T has helped finger stiffness definitely.


So feeling fully refreshed after great cruise holiday.


Good to see Lyn back on the forum.

 
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