just asking

User

Posted 27 Jul 2021 at 20:40

Thanks Barry

User

Posted 28 Jul 2021 at 16:47

Oncologist rang today after the MDT to say they are going to do SABR to the three areas of spread ……. Only saw my oncologist on Monday….. have a lot of confidence in her. 😃

shaun

User

Posted 28 Jul 2021 at 17:17

Hopefully the treatment will successfully treat those 3 areas.

Barry

User

Posted 28 Jul 2021 at 18:33

Hi Shaun , reading back I’d like to apologise for maybe the insensitivity of my previous posts - I guess I’ve been on the treadmill too long …..

SABR is way different to what I had. It is guided precisely and can ‘ stop ‘ at the tumour with less passing through. My mets were so numerous that I had calculated EBRT which can be anything from a postage stamp to a large envelope , but it passes through your body damaging healthy tissue as well. Hopefully this will be a great fix for you and you are lucky to get it. That’s why it is taking a while for the appointments I guess. And as Lyn says , potentially a curative path. Sorry for my ignorance 👍 and good luck ahead

User

Posted 28 Jul 2021 at 20:04

Hi Chris, apology not needed pal….. we all have had different journeys and I read all and look for inspiration in everything and am very grateful when people take the time to reply.

shaun

User

Posted 28 Jul 2021 at 20:38

Originally Posted by: Online Community Member

Hi Chris, apology not needed pal….. we all have had different journeys and I read all and look for inspiration in everything and am very grateful when people take the time to reply.

shaun

Yoh Chris, I was about to reply saying there going to play "whack-a-mole" with Shaun's tumours.

Seriously Shaun it is good news and hopefully they can at least keep the cancer at bay for a few years, or possibly cure you.

Dave

User

Posted 18 Aug 2021 at 18:24

Well, my oncologist has sent mr to Preston for SABR treatment on my rib and hip and referred me to Christies's for my T4 as Preston have only just started doing SABR and are not set up to deal with the spine yet.

Christie's has put it on hold till they get an MRI of my whole spine......That's being done next Monday, 23rd Aug.

Preston have phoned this evening to say they will start my treatment to the rib and hip on the 13th of Sept.....

my PSA went past my cut off of 2.03 in Jan, my oncologist said to go back to her when my PSA went over 4...that was 7th April.......my last PSA 3 weeks ago was 6.7.....

When my treatment starts it will 8 months since we knew it was back......

Feel really worried that it will already have spread to other areas.

Shaun

User

Posted 18 Aug 2021 at 19:28

I'm glad things are now all in place. Yes it is a worry that it may have spread, we just have to live with uncertainty.

Dave

User

Posted 11 Nov 2021 at 10:06

SABR now complete, PSA at the start 8.5 and as soon as finished 9.2…… rate of rise has slowed down….Oncologist wants another PSA in 10 weeks…

Anyone know how long before my PSA starts to go down if treatment has been successful and how low should it go….my nadir was 0.03

shaun

User

Posted 11 Nov 2021 at 11:00

Hi Shaun,

Because of the way RT works on cancer cells, it is a slow process and reliable assessment can take a few monyhs to establish so not suprised your Oncologist has suggested initial period of 10 weeks for next PSA test but subequent PSA tests will also be needed to see how well treatment has worked.

I assume you also had the spinal met treated that was being done elsewhere.

Are you currently having HT as that can have a marked effect on PSA readings?

Barry

User

Posted 11 Nov 2021 at 12:06

Hi Barry,

Thanks for the reply.

yes had the spine met done a week ago at the Christie’s.

Not on HT, been off HT for 3 years now

shaun

User

Posted 11 Nov 2021 at 13:00

Pretty radical that you are still off HT is that your choice or do you have a cutting edge ONCO who has recognised the benefits of conservative treatment of oligio metastatic disease?

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