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Dad just diagnosed. Need advice

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User

Posted 23 May 2024 at 10:21

Hi SR12 just had my 6 month PSA result & ONCO update opinion. It was 0.51 & "No concerns at this time"

Now 4 years after RT & HT.

Hope your Dad is OK.

User

Posted 30 Aug 2024 at 19:37

Thats great Bob! Sorry, i dont seem to get emails to notify me of new posts. Hope all is well.

Dad got his PSA result today. 0.04. Was 0.03 6 months ago. Hopefully this is nothing to worry about? I guess it will increase as time goes on..?

Dad is doing well. Hot flushes are really reducing too.

Hope all is good with everyone.

User

Posted 30 Aug 2024 at 23:28

Glad to hear from you. Those PSA figures are nothing to worry about.

There should be a menu option "follow this conversation" if you click that you will get emails.

Dave

User

Posted 31 Aug 2024 at 10:44

Hi Dave. Good to hear from you! Im following this and a few more conversations but i stop getting email notifications randomly .I got your one this time. Hope all is well with you. Take care.

User

Posted 25 Nov 2024 at 09:33

Morning - I had my winter PSA result, down from the last one at 0.43. Previous was 0.51 in summer.

I'm not sure if it's a pattern emerging - but for the last year or so, it's a bit higher in the Summer & lower in the Winter ????

User

Posted 25 Nov 2024 at 10:06

Morning Bob! Good to hear from you. Hmm this is interesting, either way its still a good result! Maybe its the testosterone fluctuating...?

Hope you are keeping well!

User

Posted 11 Mar 2025 at 15:11

Hello! Hope all is good. Dad had 6 monthly PSA (time just goes so quick!). Result was same as last one 0.04. He was diagnosed in July 2020, this is 5th year! Can't believe how quickly that has gone. Will forever be grateful for this community who really gave hope and support when we felt so lost. So far his results have been positive, its important to share this to give others hope! Of course we never take this for granted.. anything can happen at any given time.

Thank you!

Edited by member 11 Mar 2025 at 15:13 | Reason: Not specified

User

Posted 12 Mar 2025 at 13:05

Good to hear from you again, and good that everything is going well.

Dave

User

Posted 12 Mar 2025 at 16:32

Glad to hear everything is going well.

Ido4

User

Posted 13 Mar 2025 at 07:44

Thank you so much. He doesn't get any more hot flashes, which was the side effect that annoyed him the most! Hope all is well

Edited by member 13 Mar 2025 at 07:45 | Reason: Not specified

User

Posted 02 May 2025 at 14:43

Hello, hope everyone is doing well and enjoying the sun!

So Oncology called today and said as its been 5 years now they are discharging dad back to the GP. He can carry on having 6 monthly PSA bloods done and if anything does change the GP can refer back to them.

This makes me feel anxious as they are no longer there as a cushion for us. Although, i do understand that they dont have the capacity to keep every case open forever.

Just wanted to check this process was the norm?

Can't believe its been 5 years since diagnosis!

Thank you!

User

Posted 04 May 2025 at 14:06

Yes completely normal to be discharged after 5 years. Just keep an eye on the PSA levels, I think it will be fairly easy to get referred back if the figures start going in the wrong direction.

Dave

User

Posted 04 May 2025 at 14:37

Thank you Dave. That is reassuring to hear

Would you know if we can still contact Macmillan? Not sure if this is still available to us if Oncology has discharged dad.

Hope all is well with you.

User

Posted 04 May 2025 at 18:30

This is from Macmillan's website

"Macmillan Cancer Support is here to do whatever it takes to support people living with cancer."

Now I think taking the strictest reading of these words. I and your dad have been discharged, so we are not 'living with cancer' so by that definition, no. However if I and your dad are still living with the effects of cancer, a broader reading says, yes you can still contact them.

If I needed their services I would contact them, I wouldn't be worrying about the exact definition of who can or can't use their services.

Dave

User

Posted 04 May 2025 at 18:47

Thank you Dave. Very helpful as always.

Ah, i didn't realise you had also been discharged from Oncology follow ups.

I would definitely contact them, if need be. Lets hope we don't need to.

I remember how petrified we were when he got diagnosed. Still can't believe its been 5 years. This community is just amazing.

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