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Mile stone,

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User
Posted 12 Feb 2022 at 13:21

You will know from past experience what to expect with Chemo but hope it works well for you.

Edited by member 12 Feb 2022 at 16:50  | Reason: spelling

Barry
User
Posted 12 Feb 2022 at 14:26

good luck with the chemo xx

barbara

User
Posted 12 Feb 2022 at 20:36

Ah sorry to see this Chris; as you know, mets to the skull and face are rare and can cause unpleasant symptoms but you are following in big footsteps so hoping the chemo knocks it back good and proper.

We still have our PCUK t-shirt somewhere ... I don't think you can buy them any more. 

"Dare We Hope? We Dare.

Can We Hope? We Can.

Should We Hope? We Must."

Andy Ripley OBE

Edited by member 12 Feb 2022 at 20:40  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Feb 2022 at 07:26
Wishing you all the very best with your chemo, Chris, xx
User
Posted 13 Feb 2022 at 09:28

Chris

Keep going mate. Hope the chemo helps.

Thanks Chris

User
Posted 14 Feb 2022 at 12:50
Lyn, I still have my pale blue Prostate Cancer Charity T shirt and some sashes!
User
Posted 14 Feb 2022 at 17:37

Originally Posted by: Online Community Member
Lyn, I still have my pale blue Prostate Cancer Charity T shirt and some sashes!

👍

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Feb 2022 at 11:33

My new Chemo regime starts on the 28th Feb, see the Onco nurse for bloods and chat on 23rd and they suggest that my Wife comes too.

I get the impression that there are no more Rabbits in the hat.

Skull Mets, as far as I can read up on, uk sites only, a year to 18 months prognosis.

Hindsight is wonderful, but I wonder if the gap between being told “I’ve got Cancer and it’s contained” on 5.12.05 to surgery on 25.01.06 and then reading, after translating, “cells have escaped” in 2011 when I took my notes to Prof locally, is the reason that every treatment has failed.

Chris..

Edited by member 18 Feb 2022 at 12:37  | Reason: Grammar

User
Posted 18 Feb 2022 at 12:40

Keep moving forward hope the chemotherapy works stay positive speaking to a man at local hospital following my last PSA test they gave him 18 months diagnosed with widespread Mets that was in 2011 still here loads off new treatment happening all the time 👍

User
Posted 24 Feb 2022 at 16:04
Well folks, Chemotherapy, Taxotere, starts on Monday, initially 10 sessions every 3 weeks up to September then reevaluate to see if I need more.

Chris.

User
Posted 24 Feb 2022 at 16:09
Best of luck and best wishes Chris 🙏🤞
User
Posted 14 Jun 2022 at 04:33
I’m still here friends, yesterday was chemo 6, a reduced dose, 130mg instead of 150mg, mg is what the nurse quoted, as it’s in solution of what I don’t know,

PSA has risen by 0.57 in three weeks, now 30.1

Next dose in another 3 weeks with my 12weekly Zoladex Jab before.

Chris.

User
Posted 14 Jun 2022 at 06:15
Hope you are not having to much grief from the chemo exbus. Keep the updates coming.
User
Posted 15 Jun 2022 at 06:33

As my years on this journey increase my body is finding it harder to recover, but hey ho I’m still here, soon be 17 years, there are others around with a few more years than me.

Now, an update, I had my Last Dexamethasone yesterday lunch time as my Onco has stopped them prior to next Chemo, he hasn’t said why, they just weren’t prescribed, so I can query that at next chat following next Bloods on 29th. At least it’s 24 tablets less!

Chris.

Edited by member 15 Jun 2022 at 06:34  | Reason: Grammer

User
Posted 15 Jun 2022 at 18:00

Stick in there Chris.

Those journeys to Shoreditch and back on the 47s toughened us up enough to deal with almost anything.

 

Roger
User
Posted 18 Jun 2022 at 06:53
Been reading my letter from the Oncologist to the GP and it says I’m on “Palliative Chemotherapy”, so now we know.

Chris.

User
Posted 18 Jun 2022 at 14:12

hi Chris ,
I could be joining you on the P/Chemo
i was thinking that I was doing quite good with a low Psa for nearly 4 years after Chemo in 2017 I then came of the HT for a year for a break, Then in Jan 2022 My Psa went as high as 4,5 , they then put me back on HT my PSA dropped to 0.09 , I had a PSME PET a scan and a CT scan with contrast for reasons that would take too long explain ,
My cancer has now spread to all my spine my rib cage and my inner thighs , I am to have another PSMA PET/CT Scan then maybe Chemo,
so despite having a very low PSA for four years my cancer was in fact spreading 

Best Regards Chris
Barry

Edited by member 18 Jun 2022 at 17:01  | Reason: Not specified

User
Posted 18 Jun 2022 at 14:54
That is a shame, my Mets are hips/ pelvis, spine, sternum ribs and skull.

At least the Chemo has stopped most pains.

User
Posted 18 Jun 2022 at 15:17
I'm trying to catch up on how folks are doing.

Chris, good to read you're still here fighting on.

Barry sad to read of your troubles. Certainly puts the value of low PSA into perspective.

Hope you both do well with treatment.

Ray

User
Posted 18 Jun 2022 at 17:19
Cheers Ray ,

I also forgot to add ,

Despite eating Breakfast, lunch and dinner,

i am losing weight

down from 11 st 7lb

now 10 st 9lb over a month

Regards Barry

 
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