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HT/RT/Proctopathy Observations

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User
Posted 04 Feb 2021 at 15:07

Very interesting FOPS meeting last night (Many Thanks Andy62!!) Much more food for thought.....maybe think more about the RP option... I'm in the 50/50 camp RP vs RT now..... :)

User
Posted 03 Mar 2021 at 18:52

Hi all - quick update; from my PSA Test taken on 9th Feb .... my reading is down to 0.26 (from 4.3 - last PSA prior to HT start) ..... I think that's pretty good given I only started HT on 2nd Dec. Thanks again for all the updates in this convo to date, extremely useful and much appreciated !

Cheers,

Nick

User
Posted 03 Mar 2021 at 19:17

Good result Nick. Is the HT giving you any problems? I didn't have many side effects. 

Dave

User
Posted 04 Mar 2021 at 08:59

Hi Dave - HT side effects to date (post 28 day bical tablets, 1 1 month Prostrap injection, 1 3 month Prostrap injection) :

Well publicised 'downstairs' changes! :)

Hot Flushes - pretty regular but tends to be 1 a day when they occur and they don't generally last long (more often at night)

Can't lift anything heavy for more than 20 secs without shoulder pain etc

A few general aches and pains in different places (they might just be old age!)

One thing I forgot, occasional itchy eyes, not had before so assume it's the HT? 

Other than that, nothing further untoward to date thankfully!

I'm trying to do as much walking as possible (minimum of 10-15 miles a week) to keep reasonably fit.

Thanks for posting and hope you are feeling good, no issues? :)

Cheers, Nick

 

Edited by member 07 Mar 2021 at 20:06  | Reason: Not specified

User
Posted 16 Apr 2021 at 11:42
Update : Meeting with Oncologist yesterday (he was in a much better place than the first convo I had with him which kicked off this thread !); agreed RT as my treatment of choice (having done plenty of homework on here, via Toolkit etc etc); need to get urinary system optimised first though so will be seeing the urologist again in next 4-6 weeks and will start making some recommended changes to my fluid intake starting from Monday (minimum of 2 litres of water/squash per day, drop number of caffeinated drinks consumed), plus making a start on the PFEs hopefully. As well as continuing with Tamsulosin I've started taking Solifenacin (5 mg) tablets once per day (as recomm by Urologist). Will be staying on HT for a minimum of 12 months post RT.

Many Thanks for all the msgs, they have been a great help ..... and to 'Cheshire Chris' and 'Hermit of Eyam' in particular for some additional detailed RT observations via PMs.

User
Posted 16 Apr 2021 at 13:33
Great stuff. Hope it all goes well for you!

Chris

User
Posted 11 Oct 2021 at 12:40

I completed my Radiotherapy last week (20 x 3gy) and have updated my Profile with a few observations....which I will continue to do through the peak 'side effects' month as required. All in all I've not had too much trouble to date, fingers xd that continues!

If anyone has any specific q's feel free to ask.

Cheers,

Nick

Edited by member 13 Oct 2021 at 19:44  | Reason: Additional info

User
Posted 03 Nov 2021 at 23:28
Profile updated with latest post-RT observations; next PSA test booked for 19th Nov (just over 6 weeks since RT completion); post RT follow up appt with Onco 30th Nov (D Day!)

Cheers.

User
Posted 04 Nov 2021 at 00:38
Good luck with the PSA test but don't set your expectations too high.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Nov 2021 at 06:32

Thx lyn.. I realise its circa 18 months post RT till nadir is reached, just want this reading to be in line with whats expected :) best rgds!!

Ps you have taught me so much about PC over the last 12 months btw, so THANKS VERY MUCH!! 

Edited by member 04 Nov 2021 at 06:53  | Reason: Not specified

User
Posted 30 Nov 2021 at 13:18

Meeting with Oncologist today; PSA <0.03 - in line with expectations :) ; tests to continue quarterly for first year post RT. HT reqts to be reviewed in 12 months. Early days but a promising starting point...

Cheers.

Edited by member 30 Nov 2021 at 15:22  | Reason: Additional info

User
Posted 13 Apr 2022 at 09:30
Phone call with Oncologist 11/04/22...PSA from Feb Test <0.03. Expect a F2F meeting in July with a further PSA test done beforehand. RT Side Effects update will be in Profile shortly. Cheers.
User
Posted 09 Jun 2022 at 01:38

Yesterday, due to some rectal bleeding, i had a flexible sigmoidoscopy, less invasive than a colonoscopy, without any sedation or entonox (gas/air); got thru it ok and the doctor advised it was some minor damage from the RT, which was a big relief!. Details of this procedure, including prep etc, now in my Bio.

The moviprep taken beforehand to clear the bowel was .....mmmmmm ......."entertaining" :)

Edited by member 09 Jun 2022 at 15:08  | Reason: Additional info

User
Posted 09 Jun 2022 at 08:43
For the Forum guru's - can you change the Title of a Thread i.e the "Advice needed(again)" bit ?....and, if so, how do you do it ? I've had a look about and can't see an obvious way but thought I had read on another convo someone had done it.....might have been dreaming of course! :) Cheers.
User
Posted 09 Jun 2022 at 17:54
Contact the moderators, Nick - they should be able to do it for you (as long as you choose a title that no one else has used!)
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Jun 2022 at 18:05
For it to work you also need to 'confirm' by your Title subject
Barry
User
Posted 09 Jun 2022 at 18:25

Cheers Lyn! I will avoid the word  'journey' for starters 😂😉👍

User
Posted 09 Jun 2022 at 18:30

Cheers Barry. 

User
Posted 09 Jun 2022 at 19:47

Originally Posted by: Online Community Member
Contact the moderators, Nick - they should be able to do it for you (as long as you choose a title that no one else has used!)

You can do it yourself.

1. Edit the first post you made in the thread, you will see the title in a box at the top.

2. Change it.

3. Save it.

I am so chuffed after two years on this site, I know something that Lyn doesn't know👍

Dave

User
Posted 09 Jun 2022 at 20:00

Cheers Dave, will give it a go! Yeah, definitely a miracle on the Lyn front 🤣 Many thanks to you both 👍

 
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