I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

Treatment options dilemma

User
Posted 22 Feb 2021 at 11:30

Hi Tony


I was faced with the same dilemma in November, being offered (non-nerve sparing) surgery or hormone and radiotherapy.  I spent days reading up on both options, doing research, asking questions and speaking to people who had undergone wither pathway, including hers on the PCUK Forum.


I found it was important to speak to each specialist oncologist as they gave additional information I did not get at the initial diagnosis.  For surgery, I was told there was a 50% chance I would have to go on and have radiotherapy as there was the likelihood of the prostate bed still being infected after surgery.


You also need to take care who you speak to about the side effects of hormone and radiotherapy as the treatments have improved considerably in the last 2-3 years and, generally, people experience less side effects than those undergoing treatment earlier than this.


I concluded that the side effects from a prostatetectomy were highly likely and pretty permanent; I did not like the idea of wearing pads or convenes as this does not suit my naturist lifestyle.  OTOH the side effects from hormone and radiotherapy are more or less likely depending on the individual and tend to be temporary.  So I opted to take my chances and fingers crossed the side effects will not impact on my life to any great extent.


Three months in after starting on Bicalutamide (for 4 weeks) and Decapeptyl the only side effects (so far) are overheating (3-5 times at night and 1-3 times during the day), dry mouth and muscle ache in left or right arm., all now daily occurances.    I can put up with these but may ask GP if there is any medication that can reduce/address the overheating and muscle ache.


Start radiotherapy at the end of March so will know what side effects decide to kick in then.


Good luck with your decision.


John

User
Posted 22 Feb 2021 at 12:13
Thanks for your reply , John. I seem to be coming to the same conclusions as yourself. I have now started Bicalutamide and have my first injection of Prostap on Wednesday so I'll see how it goes from there. Incredibly difficult decision but no point waiting anymore. It is now 6 months since my first blood test which showed a prostate problem. I have really appreciated all of the replies on here and also local members who contacted me about my local hospital options. It's support like this that helps you get through it.
User
Posted 22 Feb 2021 at 13:14

Hello there. 


My story 


Diagnosed Oct 19.  64 yes old fit active,no symptoms Psa 6.1. Gleeson 7


I opted for surgery.  Never had surgery, been in hospital, had anaesthetic before.


Due to covid didnt get my surgery till 29 July 20.


No after effects post surgery. Walking with catheter after 3 days. No pain ,issues with catheter. 


Walking further 3-4 km after 3 weeks,  running, jogging 3km after 6 weeks.  Back to work late oct 20.


No issues since. Minimal use of pads for incontinence after 4 weeks.  Hardly any dribble nowadays. 


I was more concerned of going into hospital with covid around and having anaesthetic than the surgery. I need not have worried.


Difficult decisions, but I dont regret having surgery. 


What I would say is get yourself fit for surgery, physical and mental.  Do the exercises and every day, they really do make a difference 


 


Take care 


Tony ,telford 

User
Posted 22 Feb 2021 at 18:09
Hi Tony & John. I think the least risk, is HT & RT.
Yes, it takes a lot longer, I've been there - done that, & survived.
Feeling a lot more my old self, I''m now 72 BTW No regrets at all, of the route I took.
They were great at Addenbrooks in Cambridge.

Being hacked about, never held any appeal for me.
But, you pays the money & take your choice.
Bob
User
Posted 24 Feb 2021 at 12:10

I'm 74, fairly active, and do a few weights and exercises. 


I've just been told my psa has gone from 10.5 to 13.7 in six months. I had an MRI about 18mnths ago where the consultant found an area of 'concern'. I was supposed to go for another one about this time last year, but Covid put paid to that. I'm down for another MRI in the next couple of weeks, but this is seemingly to assist with a biopsy, with a local as I can't do full anaesthetics. Can't wait. My heart once stopped for 7 minutes during a biopsy in my throat and a later solution, a 'light' full med, put me in ICU for a couple of days, and out for the count for four days. 


It's the altrnatives I'm interested in for obvious reasons. I've read various material, but I was wondering about any recent advantages of non-invasive treatments and, obvioulsy, survival rates. I know I'm going to die of something, and not that far in the future, so delays might interest me.


Any links, advice or reassurance would be gratefully received. 

User
Posted 24 Feb 2021 at 12:14

I think it would be wise to wait and see whether you do have prostate cancer before doing too much research on treatment options - there are less invasive options that need only local anaesthetic and might be suitable if the tumour is small. Surviving the biopsy unscathed seems to be your most pressing issue - but I am sure it will  be fine!

Edited by member 24 Feb 2021 at 12:15  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
 
Forum Jump  
<12
©2025 Prostate Cancer UK