Good news and bad news.

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User

Posted 21 Apr 2021 at 09:03

I haven't had surgery so can't speak from experience, but pretty much everyone agrees pelvic floor exercises (pfe) are very important, and you should start now rather than waiting until after surgery. I believe you can find videos on YouTube on how to do them properly, if you don't do them properly you may be inadvertently wasting your time exercising buttock muscles and others, which are close to the correct muscles but not quite the right ones.

Dave

User

Posted 21 Apr 2021 at 22:03

Hi Steve,

Just thought I’d offer a thought as we’re the same age, I had surgery 2 years ago. The decision for me was relatively easy as I was diagnosed with T3 and G9 so I just wanted it gone.

Leading up to surgery, aside from general fitness, I’d second the recommendation to start the pelvic floor exercises. There’s an app called Squeezy for men to help remind you. I still use it now and have not had any significant continence issues.

Post surgery take it easy. Walk a bit each day, and gradually increase your activity levels as you feel stronger. Depending on how physical your work is you might need to be ready to take a few weeks off.

Hope all goes well for you.

User

Posted 21 Apr 2021 at 22:05

PFE's definitely, the best way to do them is have lots of sex, also a good idea as you will be handicapped in that department for a while after the op!

User

Posted 22 Jun 2021 at 10:52

Hello,

As an update I’m 3 weeks post RP and recovering well. I,ve been seeing a physio on the French system and most issues with incontinence have been addressed to the point I’m now dry during the day without pads so on that score I’m very happy.

I went in to see the surgeon last week who gave me the good and bad news scenario again in that the cancer within the prostate was contained with no positive margins but then went on to say that 3 lymph nodes out of 17 removed showed signs of cancer, my Gleason score was upgraded from 3 + 3 to a 3 + 4. So now he says that there is a possibility that I may need further treatment in the form of radiation therapy, it sounds to me like if they found cancer in 3 lymph nodes then the chance is pretty high that it’s spread.

So I suppose the question is does anyone know what kind of further treatment would be an option for me, with time frames and pros and cons, just trying to be prepared for seeing the surgeon again once I have my first psa result in 3 weeks time which will be 6 weeks post op. I have to say I was knocked for 6 last week with this information about the lymph nodes, it hit hard and I feel like I’m never going to get anywhere near to getting off this roller coaster of bad news.

Steve.

User

Posted 22 Jun 2021 at 18:25

Make sure you get an ultra sensetive PSA test, if that is a < 0.008 you should be good for a long remission.

If it isn't then ajuvant RT Inc any lymph nodes will probably be recommended.

Fingers crossed for a great PSA result!

User

Posted 17 Jul 2021 at 16:02

Well I’ve just received my psa test result 6 weeks after surgery and it came back as 0.32, this doesn’t seem like the best result to me but I’m due to see the doctor in a couple of days time. Any words of wisdom out there on what may be my next course of options and what I should be looking out for or avoiding, many thanks.

User

Posted 17 Jul 2021 at 16:11

Sorry your reading is 0.32. Are you seeing your urologist for a post op review? Once you and your doctors have the post op histology you will have a better idea of what is next.

I would imagine some scanning and a decision on salvage/adjuvant radiotherapy with or without hormone therapy depending on histology and scans.
I hope you have more information soon.

Ido4

User

Posted 17 Jul 2021 at 17:54

Just check that your PSA reading is 0.32ng/mL - sometimes in France they report it as ug/mL or nmol/L

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 18 Jul 2021 at 11:11

Hi Lyn, never heard of the results coming back that are not in ng/mL in France but anyway yes mine are in that format.

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