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Treatment HT/EBRT or Surgery

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User

Posted 05 Jun 2021 at 14:03

Joe, no, I was on bicalutimide as a "primary" HT, so I took 150mg/day for 18 months. I didn't have the injectable HT.

Everyone gets a different set of side effects, so it's just a matter of wait and see. Ones which almost everyone gets are loss of libido and fatigue. I was also rather fuzzy-headed for a couple of months - just couldn't think clearly - but fortunately that cleared up. I suffered from mood swings and put on weight. I didn't get hot flushes at all.

Very best wishes for your treatment,

Chris

User

Posted 06 Jun 2021 at 13:01

Cayambe

That sounds great for you to date - my age similar to you - like you I'm keen to keep up the exercise and eat healthily...

Best wishes for the future - keen to hear how you get on

User

Posted 09 Jun 2021 at 14:26

Hi everyone

Had 3 mthly Decapeptyl hormone (gonadotropin releasing hormone (GnRH) agonists) injection 3 days ago and carrying on with the Balcalutimide till script finished - end of month.

I have had no real serious side effects from the Bical tabs or the Decapeptyl to date.

However don't know if I'm imagining it or this is something to do with the drug, I have noticed:

1. Really tired last night after walk - but ok now

2. Dry mouth this morning and a bit of a sore throat

3. A few aches and pains but they seem to go away

4. I also had a twinge in the breast area - am I being paranoid??

I have been doing some long walks every (most) evening (5-10km) over the covid period and hope to continue them. I hope to get back into the gym to do some weights also soon.

Any comments on the symptoms anyone? Is this normal?

User

Posted 11 Aug 2021 at 12:40

Hi Don1two

Just a follow up - hope you are well??

I had the month of Bicalutimide and the 3 month Decapeptyl injection and now due for second injection.

Side effects - hot flushes day and night but bearable. I've been walking up to 8km most days to stay fit - might get back to the gym now they have opened. I used to do a lot of weight training before the covid and diagnosis and I have noticed that muscle size is a bit down.

I have been told the EBRT starts in October - so that will be 5 months after starting the hormone treatment. I hope I get through this without too many side effects

I have also been told that I may be on Hormones for 18mths to 2 years.

Just wondered how you were getting on?

Cheers

joe

User

Posted 12 Aug 2021 at 01:32

Hi Joe, so nice to hear from you and very glad that everything is going well in terms of your treatment. Yes, I have had the same as you in terms of the Bical, however I had zoladex three monthly injection from my GP, so slightly different in that respect. I don't know what the difference is between the two.

Anyway I have to say I have not suffered any side effects so far, 'Touch wood' and hope it stays that way. I think you must be about 3 or 4 weeks ahead of me, I expect to get the radiation therapy towards the end of October beginning of November.

Hey ho.... good luck with everything and your keep fit which I am also doing, lots of walks and I'm trying a Joe Wicks programme out of one of his books.

Don

User

Posted 12 Aug 2021 at 08:06

Originally Posted by: Online Community Member

Hey ho.... good luck with everything and your keep fit which I am also doing, lots of walks and I'm trying a Joe Wicks programme out of one of his books.

Don

Well I'm about 3 years on from you, Don - & I'm still here! Yes, the 3 monthly HT - & yes, very important to keep as fit as you can, though you will get tired & weakness will set in, no matter what you do.

When you get to the RT, it is a bit of an endurance test - 20 visits? That's what I had - do you live far from the Hospital? I did. Keep to the diet, you will probably get some side effects - blood in poo, etc. Mine was done in Cambridge - Addenbrooks.

I did get some Proctilitis which I'm being treated for now, delays due to coronavirus backlog. Some of the rectum veins can get damaged during RT.

But the important thing is my PSA is very low & staying low, after no HT for over a year.

You will probably find, interest in Sex will wane & go - but that will eventually return. Daily Tadalafil can help you & your partner in that respect, though it can lead to Heartburn.

I assume you are Virus double vaccinated, as a lot of hospital visits can be risky.

Best of luck. Ask if you have any questions.

Bob

User

Posted 12 Aug 2021 at 21:40

Hi Bob,

Thanks for the well wishes and glad to hear that your treatment is proving to be a success. I am on hormone therapy for only 6-months apparently, and therefore maybe my side effects will be limited by that. I am getting some side effects in terms of needing to visit the loo more frequently at night, however so far nothing else.

I agree with you it's important to keep fit. Fortunately I'm not too far from our treatment hospital, although it will be quite a bind to attend for the 20 daily appointments. If it saves your life however, there's no argument.

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