Had my first contact with my Key Worker, clinical nurse. Great guy. Made it clear I can contact him. Very helpful.
Yes, I understand that surgery is not now the first option....which such an object as the prostate, there's probably a lot of intricate carving up...lots of chances of cancer cells to be left behind, wandering off to do their dastardly deeds.
Do they also sever the urethra and reattach? I seem to recall Mr Fry had this.
My urologist said that my cancer had spread into the seminal vesicles...so I'm guessing that lowers chances of surgery. We have savings and I'd happily pay for surgery next week, if it was a good solution. Reviewing a study on PSMA PET scans in Australia, the surgeon described surgery as futile, if it had spread, even locally.
So, more waiting. I was advised not to begin the hormone (surely, anti-hormone?) drugs if I'm to have the PET scan.
Thanks for all the support, it helps.
I've tried finding local support groups but with no success..I'm on the coast in West Wales, in between Fishguard and St David's.....love to meet up with local guys for a beer or coffee.....