Recurrence 6 years after Robotic Surgery

Email this conversation Print this conversation

User

Posted 09 May 2025 at 17:01

Decent result. MRI and bone scan at 0.2 is interesting. No mention of psma? I'm getting a sense of no news is good news having gone to 6 monthly blood tests without being told it was changing from 4 months.

User

Posted 09 May 2025 at 19:17

Hi Francji1,

Jumping horses and straddling sheep. You're certainly an animal lover. 🙂

Joking apart, mate, although the PSA rise is only tiny you must be slightly disappointed. I hope this is just a small blip. As you said to be only 0.15 after all those years, is a great result. If I'm ever in a similar position, I'd still hold out until I was at least 0.2.

Good luck 👍

User

Posted 09 May 2025 at 20:47

Franci , a slow rise has got to be better than a fast one. I think you already know you can't take things for granted. A guy I knew thought he was in the clear more than 12 years after surgery and he wasn't being monitored. The next test he had lead to scans and found it had spread.

During my vaccine trial I had numerous bone and CT scans that found nothing, a few months later a PSMA scan found a hot spot, that was at 1.4 and you are a long way off from that.

Thanks Chris

User

Posted 01 Sep 2025 at 11:23

Latest result 0.16 so ticked up again. Now 10 years post op.

Next appointment 3 months is with the consultant rather than the nurse.

Interesting I have graphed my PSA for the last 10 years and it shows a continuous gradient, rather than an exponential growth anyone know if that is significant?

User

Posted 01 Sep 2025 at 13:25

Perhaps it's behaving like a 3+3 which some specialists say is hardly cancer at all. Although it sounds a too easy thing for someone to say in my opinion.

My psa rise is similar and mine was 4+4 although I like to think the strays are 3+3 as I was 4+3 initially.

User

Posted 02 Sep 2025 at 23:30

Originally Posted by: Online Community Member

Interesting I have graphed my PSA for the last 10 years and it shows a continuous gradient, rather than an exponential growth anyone know if that is significant?

I'm sorry that you got another miniscule rise, mate.

As a matter of interest, if you continued the gradient what whould your PSA be in ten years?

Are you going to defer any possible further treatment unless you reach 0.2?

I think, if I were in your position, and the rise continued at the same small and slow rate, I would wait until 0.4 or even higher before considering further treatment.

I started a conversation on a Dr Scholz presentation, where although he stated he was a little more risky, he advocated 0.4 and even higher as a better point to start further scans etc. If I can find the conversation I put a link in.

Got it:

https://community.prostatecanceruk.org/posts/t31858-When-to-start-salvage-treatment-after-BCR

Edited by member 02 Sep 2025 at 23:39 | Reason: Add link

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.