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'My 33 Days with Cancer'- radiotherapy following removal of prostate in 2017

User
Posted 03 Nov 2021 at 20:03

"how ‘Tony the radiographer’ emotionally deals with seeing this first-hand every day?"

I think you answered that in your previous post, about how we turn in to numbers in the NHS machine. The staff are always polite and pleasant, but I hope for their own mental health, they just look at us as slabs of meat, to be put on the grill once a day for five minutes until done. Would you like fries with that?

Dave

User
Posted 03 Nov 2021 at 20:10

Classic 🤣🤣

User
Posted 03 Nov 2021 at 23:03

Hi Peter,

A good read.  I didn't know it was a trousers down, lie on the bed, quick type of thing.  I'd always thought you'd put on an NHS gown and it would take about an hour with time to recuperate.

Regards
Peter

User
Posted 04 Nov 2021 at 00:36
Time to recuperate? John's appointment was almost always 8.30am and he was usually on his way to work by 8.50!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Nov 2021 at 14:07
For me it was turn up 20m before the appointment time, go to the loo, three cups of water, then sit down to wait. Called in, shoes and trousers off, lie down on the table, pull the undies down, two nurses line up your tattoos with a laser grid projected down onto the table, then they scarper. Radiation come on, the donut-shaped machine goes around one way, then around the other way, and you can hear the lead plates moving around inside the head of the machine as it precisely shapes the radiation beam as it moves. Nurse comes back in and lowers the table. Undies up, get dressed, and go home.

Repeat daily Monday to Friday 🙂.

Cheers,

Chris

User
Posted 04 Nov 2021 at 16:10

Hello Peter,

No it's pretty straight forward .

Regards

 

Peter

User
Posted 04 Nov 2021 at 16:11

Hello Chris,

Nothings changed

Pete

User
Posted 04 Nov 2021 at 16:32

My 33 days with cancer

 

Day 4

 

Ok this Enema thing is getting a bit waring if I’m honest. Thought I had cracked it, but I haven’t. Think lying down might be the best bet now but not sure yet…. I’ll report back.

 

Day 4 and I have quickly come to realise that if you are rubbish at planning ahead this is not for you, and you should give it a miss. Timing is essential. Fortunately, I am pretty good at it, but I can imagine some people might struggle as there is so much to think about. I carry a bag the contents of which include amongst other things wet wipes and spare Enemas which I hope not to have to use a second time in a day but again if your timings out a bit you might have to, so I try and avoid this given the 2-hour window between initially, delicately I might add shoving one up ones anus and the actual treatment, miss it and your off again for another go.

 

What a piece of kit the machine is that delivers the treatment the hospital has 6 of these going at it full time all day sometimes until 8pm at night dealing with up to 40 patients a day that’s some 240 people every day going through this on various parts of their body depending on where they have been affected.

 

My thoughts this morning as the machine manoeuvred around me where ‘I really hope they know what they are doing…. what happens if they have mixed me up with someone else or one of them has had a bad night and is not concentrating and they give me a bigger dose than they should…. all a bit of a concern given the application of the treatment is so close to my willy because over the years I have become quite attached to it. The treatment is applied no more than an inch above it. I don’t think I appreciated how low down in the pelvis the prostate is.

 

Anyway, onward, and upward back again 8.54am in the morning what a treat!

 

How am I feeling? ….Yes, ok at the moment Tony says problems don’t normally appear until

7 /10 days in, something to look forward to.

 

See you tomorrow.

 

 

User
Posted 04 Nov 2021 at 17:08

For me the policy was empty bladder. They did not seem worried about bowels, maybe the pre treatment scan meant they could adjust for that. I always had late appointments, not being a morning person. Treatment was about 10 minutes, the only delay was that if they had got behind during the day, by six in the evening they could be running an hour late.

Dave

User
Posted 04 Nov 2021 at 17:26

Hello Dave 

Thats completely the reverse for me a full bladder every time. I agree I am not a morning person either but decided to get it over with to have the rest of the day by myself also parking is easier.

Regards

Pete

User
Posted 04 Nov 2021 at 23:07
Pete,

thanks for your posts, particularly for the human element you include.

It sounds to me as though your treatment is very "by the book". I had the full bladder system too, though it was largely left up to the patient to manage. I worked out a technique in the end. 3 cups of water is fine if they keep on schedule but it does give a "peak" bladder after about 30 minutes. One thing I found that did not work was exercising a few hours before RT. Trying to get the hydration right after that is a nightmare.

Could I ask you a question please? Is the RT device stationary above your prostate when you're being zapped?

Jules

User
Posted 04 Nov 2021 at 23:38

I think Andy62 posted about the full vs empty bladder policy. It depends on the hospital and also where they are aiming the RT. I guess if the the cancer is further from the bladder it is less critical that it is full.

To answer Jules question: I was treated with this.

https://www.elekta.com/radiotherapy/treatment-delivery-systems/versa-hd/

The x-ray source is stationary for each blast of x-rays which takes about 10 seconds, it is then moved about 1/5 of a circle around the body and re calibrated this takes about a minute and another 10 second dose is given. This happens five times, so sometimes it is above you sometimes below you sometimes to the side. As your prostate is at the centre of the circle it is being hit by every dose, but the rest of you body in the pelvic region is only getting about 1/5 of a dose.

Dave

User
Posted 05 Nov 2021 at 02:25

Thanks Dave, clearly all the LINACs look similar but the way they're being used differs.

User
Posted 05 Nov 2021 at 08:11
Indeed. When I had my treatment it was a constant rotation. It went around about 270 degrees of a circle, first one way, and then the other way. The oncologist will devise a beam profile that's specific to you - it's not "one size fits all".

Cheers,

Chris

User
Posted 05 Nov 2021 at 11:19

Hello Jules,

No my experience is the same as Chris's reply below the machine rotates three times around the body but only delivers the the Radiotherapy treatment on the last rotation. The first two rotations  allow them to scan and plan and set the area to be treated and then they set a template on top of todays scanned image so that they can hit exactly the same spot every day. Before treatment started I had to go in for a planning session and they took an 'image' at that time of the area that they wanted to treat and its that 'original image' that they now use as a template to superimpose  over todays scan of my body so they hit the right area if that makes sense.

Regards

 

Peter

User
Posted 05 Nov 2021 at 11:22

My 33 days with cancer

Day 5

Passed John on the way in this morning, at least I heard someone call him John, John’s the one with the big drain coming out of his head sat on the wall cigarette in one hand and drain bottle in the other, that’s ok John but can someone tell him the bottle is see through ffs. John is a ‘grey’ person so really whatever makes you happy John. Think I will drop him off 20 Silk Cut tomorrow.

Hello what are you in for asks Paul, as I arrive in the waiting area “Prostate’ I reply “me to’ says Paul. Paul has stage 3 Prostate cancer and has not had his prostate removed because they ‘caught it too late’…. ‘no point’… and the cancer has escaped from his prostate into his lymph nodes and is now travelling around his body, not good! “I’ve got 10 Radiotherapy sessions” says Paul “how about you?”… “You lucky b******!” I reply “I’ve got 29 left”

Paul must have more intensive Radiotherapy treatment because he is so far gone hence his treatment is applied in only 10 sessions whereas mine is applied more gently over 33. I’ll take the 33.

Richard arrives to take the place of Paul who has just been called in. Richard is not a grey person yet but has advanced Bowel cancer stage 3 he’s 53. Now as most of you will know I am an inquisitive type of guy, “How did you know something was wrong” I asked, and he told me he kept going to the toilet a lot more than usual for a number 1 in fact at its worst it was every 20 minutes. Richard has 30 sessions, but he is also on Chemotherapy tablet form. He loses track on how many times he gets up in the night to go to the toilet now, which in itself makes him very tired, and I am beginning to experience this.

My turn and the machine stop’s circling around my body and I know what that means from previous experience. Light’s come on and in walks Janet “you need to go and have a trump Peter you have too much wind” (me mam used to say trump not sure its commonly used anymore) apparently it doesn’t work if you have too much wind. I blamed the wife.

This however puts another half hour on the time spent having treatment. Not happy can’t make that mistake again. Now I am in a bit of conflict here as Janet has instructed me to walk up and down the corridor to try and loosen and get rid of the excess wind and to come back in 15 minutes. When I arrived, the corridor was empty now its busy and the problem is that I am conflicted as I don’t want people to hear me trump! So, I end up holding it in. a nightmare! But got there in the end. Julie Janet’s assistant says don’t worry about it but I know what she’s really thinking.

THE MESSAGE

Guys please not let us lose sight of the message here please if you hear of a friend or relative that keeps ‘putting it off’ please encourage them to ‘GO GET CHECKED OUT’ you can all help by simply sharing this post we can all work together to help save lives because seriously you don’t want it ‘escaping the prostate’ trust me.

How am I feeling?

My intention is to record how I am feeling each day so we can track how the treatment affects me at different stages which anyone following me can reflect on if they so wish and to hear it from the horse’s mouth so to speak.

So out of 10, 10 being really bad I’d say I’m at a 1.25 at the moment and the 1 is automatically added because I’m feeling p****d off about having it in the first place.

#pr

 

 

User
Posted 06 Nov 2021 at 07:28

good read peter been through 37  rounds off radiotherapy at the same hospital they are very good but any off us can turn grey as you speak at anytime  good luck to anyone battling any type off cancer hopefully you treatment will go as smooth as mine so far so good but know anything could change so make the most off  the good days  👍

User
Posted 06 Nov 2021 at 17:23

Thanks Gary I want you to know that I agree with everything you say. Good luck to you to. Lets enjoy life to the full certainly concentrates the mind to that. 

Regards

 

Pete

User
Posted 06 Nov 2021 at 17:26

My 33 days with cancer

 

Day 6

 

04.51 woken up to (how should I describe it?) a slight twinge above the willy didn’t last long wouldn’t like it to get worse though.

 

Just got back from the hospital and I have a little bit of discomfort around the prostate area heavy like you need to go for a pee badly but nothing much and not enough to increase my ‘How am I feeling rating level’ above 1.25 out of 10.

 

Do you all know where the prostate sits in the body? well I have a tattoo (one of three) which sits exactly an inch above the top of my willy or 25mm for any younger people reading this, so you can see where it is positioned in relation to your own body. I must admit I hadn’t realised the prostate was positioned so low.

I also have a tattoo positioned on each side of my hip’s. The tattoos allow the Radiographer to line me up in the same position each day on the table ready for my treatment to be applied.

 

Andrew was in this morning. How should I describe Andrew to you? well let’s say he is a little ‘rotund’ or in other words ‘a little bit chubby’ Andrews not a ‘grey’ he’s on 6 out of 20 sessions.

Now I mentioned yesterday that I am quite an inquisitive type of guy and I had to really fight back the urge to ask him how the hell he applies his enema because I’m damn sure he can’t reach by himself his arms aren’t long enough. “Does someone help you?” I was dying to ask, “Who helps you?” I really wanted to know. Someone must love him.

 

Got it right this morning managed it first time no trapped wind so was in and out like the SAS.

 

Think I have mentioned this before, but it can take me anywhere between 40min and an hour to get to the hospital and once at the hospital you must immediately empty your bladder and then drink 3 glasses of water directly before the radiography is applied. This is what I had to do when I was at the ‘planning stage’ I had an initial scan from which they made plans for my actual treatment, and you must as far as possible replicate the amount of water in your bladder each day. Herein lies the problem because since suffering from Prostate cancer I have to go to the toilet a lot and it’s now much harder to hold it than it was before the removal of my prostate. Consequently, it’s now impossible to make it back home without needing a pee and I have become an expert at spotting places to stop and have a pee. They are rated Piss stops 1,2 and 3 depending on the distance I can reach before being forced out of the car and believe me you don’t want reach 3 unless it absolutely cannot be avoided.

Becoming good mates with Shaun, Shaun the sheep, he stares a bit but told him to get over it.

 

How am I feeling?

 

Hmm a little bit tired and slight ache around my front / waist area at the moment. It’s a long week. One more day then weekend off. Feels like a long way to go.

 

Still at 1.25 out of 10

 

 

User
Posted 07 Nov 2021 at 13:54

I don't know if the tattoos are exactly lined up on the prostate? My guess was that the tattoos were put on a reasonably flat piece of skin, and then they measured the offset to the prostate. So each radiotherapy session they aim for the tattoos and then tweak the aim by exactly Xmm or whatever the planning scan suggested. A bit like a Hollywood film where the sniper is about to shoot the president. He always tweaks the sites just before taking the shot, and then Dirty Harry comes and saves the day.

Dave

 
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