Thoughts/advice please re top RP people (no actual names!)

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User

Posted 14 Nov 2021 at 12:35

Hi Robot, I don't accept DMs. I think introducing them was the worst thing the charity could have done; info / advice should be posted openly so that errors, bias or factual inaccuracies can be picked up and corrected by the wider membership. Sorry.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Nov 2021 at 12:46

No worries x

User

Posted 14 Nov 2021 at 14:07

Has anyone here undergone RALP by [Removed by moderator], if so I'd be very grateful for your thoughts/advice.

Thanks and regards
ToyCollector

Edited by moderator 15 Nov 2021 at 09:16 | Reason: Not specified

User

Posted 14 Nov 2021 at 17:25

Oh for goodness sake .... it's not okay to do this!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Nov 2021 at 17:43

so true Lynn let's keep everything correct we are all after the same end game a cure if possible or long lasting remission

User

Posted 15 Nov 2021 at 10:52

Modified request:

If you have actually undergone RS-RALP in London (with or without NeuroSAFE) yourself, I'd be very grateful for your thoughts/advice/useful information/constructive comments, please feel free to send me a DM if that helps.

My thanks once again to Jeremys, Flexi, MikeW and John for their useful earlier replies.

Thanks and regards
ToyCollector

Edited by member 15 Nov 2021 at 10:58 | Reason: Not specified

User

Posted 16 Nov 2021 at 00:32

Hi TC

Please check my thread as I had the same surgeon as John (Professor Whocannotbenamedhere) at London Bridge using Retzius sparing RARP + Neurosafe. About two years now post op and so far so good. Neurosafe showed there to be some focal involvement in my case so the prof took additional tissue but as it turned out in histology they were all clear. ED outcome very good and beyond expectations and continence pretty much like pre-op all be it maybe with the odd drip of dribble after a barrel of beer.

London Bridge Guys was a bit of Greek for me too but was fairly direct on the train. I made my way back for catheter removal after two weeks without too much hassle.

Simon

User

Posted 16 Nov 2021 at 11:40

Hi TechGuy,

Thank you very much for kindly replying. Yes, I have been reading and re-reading your well-written and informative thread with immense interest:

"John, pour yourself a drink today mate. Without you and the folks on here I would never have found the Prof."

You and the other men who have contributed here with your own personal treatment research/experiences/information have been invaluable first-hand layman-level resources for us pre-treatment guys. I am very grateful for hearing directly from "the horse's mouth" - and not from any other part of the horse.

I shall certainly keep an eye on your thread and I wish you all the best for a full non-PCa recovery.

Thanks and regards

ToyCollector

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