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psa rising falling

User
Posted 17 Aug 2022 at 20:59

Great to see that. 


Peter

User
Posted 17 Aug 2022 at 21:16
Peter, whatever is going on, the variation between measurements (due either to your cells, or to the assay) makes it difficult to pin down an actual number at the moment. However if it continues to be followed over time you will see if there is a consistent trend.

Apparently in some cases this happens and the PSA then stabilises at a "good" value below 0.2, possibly because it is due to some non-cancerous cells which were left behind during surgery but have only recently started functioning again. Alternatively the data so far gives strong hope that even if the rise continues it is slow and thus gives excellent prospects for salvage RT if that becomes necessary.

Good luck, there is nothing you need be doing about it now except continuing to get tested at intervals.
User
Posted 18 Aug 2022 at 11:08

Thanks J-B,  I did some what-ifs but none of them assumed it would go down. 


At low levels and with a short gap between tests a small change can make it look dramatically different.  Also only 0.001 can be the difference between a higher and lower reading.  


As you say, if I took December to August it's only 0.01 higher and it could hopefully put off escalation for over a year. I daren't say longer but that door is ajar.

User
Posted 18 Aug 2022 at 12:43

I don't seem to have as much PSA anxiety as other people. I still have a prostate so my threshold is different to yours. My threshold for BCR is >2.1. last two results were <0.1 then 0.2 . So I could choose to be worried about a doubling in the space of six months, or I could choose to say I won't worry until I have BCR.


So I choose not to worry until I have something to worry about. 


I know you were closer to the threshold than me but you hadn't crossed it so worrying was pointless.

Dave

User
Posted 18 Aug 2022 at 17:22

Your fortunate not to worry much about it.  My worrying comes in phases and when it hits there is no off switch, it runs until it's had enough.


They say worry is a survival instinct, it makes you dig into matters deeper so it's not all bad, maybe.

Edited by member 16 Aug 2023 at 22:34  | Reason: Not specified

User
Posted 16 Aug 2023 at 23:12

Today's PSA result stable after a few ups and downs. 


Hard to understand how this can happen but hope it carries on. 


Cheers!


Whoops I'm not drinking much nowadays.


 


January 2021 undetectable <0.05.


December 2021 psa 0.06


April 2022 psa 0.09


August 2022 psa 0.07


November 2022 psa 0.08.


February 2023 psa 0.1 


May 2023 psa 0.09


August 2023  psa 0.09


December 23 next appointment.  Agreed to go to 4 months between appointments.


 

User
Posted 16 Aug 2023 at 23:44

Brilliant Peter. Really hope this continues for you for a very long time.


Best wishes


Elaine

 
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