Retzius-Sparing RARP - Which Surgeon? - - Page 2Localised cancer

User

Posted 21 May 2026 at 00:33

Hi, HMC123.

I'm sorry that your husband has joined 'our club', but its great that you've found this site to support him. Welcome to the forum.

I think there are plenty of NHS Trust in the North that do Retizus sparing surgery but dont know if any do Neuro-safe.

You might get more information on

https://prostatematters.co.uk/

There is an excellent video on there regarding surgery and various techniques.

https://drive.google.com/file/d/1fyYTLZpxnB9HaR7O4xQ5Ff58Pj4Cn6ZB/view

I wish you both the best of luck. 👍

User

Posted 21 May 2026 at 09:02

Thank you Adrian56 and TechGuy for the information and taking the time to get back to me. We have an appointment next week with a surgeon who does NEUROsafe. If anything, we want to know the options available to us so we can make an informed decision. Sorry I can't DM you personally as not allowed yet. Many thanks again.

User

Posted 25 May 2026 at 10:02

I'll need surgery and have been investigating the options too. From what I understand neuro-safe is recommended if that is something you can access.

I'm in London and am consulting privately at London Bridge/Guys hospital as well as have a consultation with the NHS at Guys (which is taking place tomorrow). I'll make a decision once I have the information. Good luck with your appointment this week.

User

Posted 26 May 2026 at 10:53

Best of luck with your surgery Nick1212. We had our appointment with the surgeon and husband felt a lot happier after the consultation. The surgeon works from London Bridge Guys and I'm 99% sure my husband will go down this route with the Neuro-safe procedure. We have an NHS appointment this week and after that I think it'll be time to get things in motion. I'm so glad I've found this forum with it's wealth of information. Forever grateful to all the contributors and your personal stories.

User

Posted 26 May 2026 at 11:24

Great news. It was like a breath of fresh air after visiting London Bridge. Keep us posted with the journey please :-)

User

Posted 26 May 2026 at 14:26

Although I'd always recommend getting a top surgeon, who can do single port Retzius sparing , neuroSAFE surgery, I'm always mindful that not everyone has medical insurance, has the funds for the very best private treatment, or can travel to London. Many will have to settle for what their local NHS Trust can provide. It's sad that everyone is not able to afford to get the best treatment available to them.

Edited by member 26 May 2026 at 17:16 | Reason: Adjust text

User

Posted 26 May 2026 at 17:00

Totally but it’s worth checking out the NHS patient choice system, many patients can choose the hospital and consultant-led team they’re referred to, rather than simply “settling” for whatever their local Trust offers. Although there maybe extended waiting times.

At least one other patient on here has already mentioned going down exactly that route and being treated by the professor-thatcantbenamedonhere at the Royal Surrey NHS Trust when he had a clinic there.

I also used the same NHS referral process myself for a non-urgent colorectal issue about my GP to refer me to a centre of excellence (Hampshire) rather than my local hospital which had mixed treatment success rates. Bit more hassle with the travelling, but absolutely worth it.

Edited by member 26 May 2026 at 17:03 | Reason: Not specified

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