I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

«<3456>

Making my mind up

Email this conversation Print this conversation
User
Posted 09 Aug 2022 at 19:35

Thanks J-B, that would make sense. 
I hope all is well with you and your treatment options are successful. 

Cheers, GG

User
Posted 09 Aug 2022 at 20:27

Great news GG, really happy things are going well. I’m not sure I’ll ever let Rob go from 3 monthly testing 🤦🏻‍♀️ although his situation has been a little bit different to yours. Wishing you well going forward 👍

User
Posted 09 Aug 2022 at 20:49
You’re in charge remember. I told my Onco the regular testing was stressing me out and he said ‘fine , let’s make it every 5 months ‘ 😆

And that starts it’s own stress cycle haha. We settled on 4 months instead of 3

User
Posted 10 Aug 2022 at 08:52
Great news GG, so good to hear. Totally understand the anxiety surrounding these PSA tests, my nerves were in shreds. Keep well x
User
Posted 08 Dec 2022 at 17:54

Hi all, just a wee update on  my journey. This week I had my regular blood test. PSA is still undetectable. I will get tested again in March (one year on from surgery) then move to six-monthly tests. Very pleased I opted for surgery, so far, so good. (Dry, but still suffer ED, I have an Andrology appointment next week).
Wishing you all a Merry Christmas and a happy, heathy 2023.

GG

Edited by member 08 Dec 2022 at 17:56  | Reason: Not specified

User
Posted 08 Dec 2022 at 18:13

Amazing news fella. Great to see a good news story.

Edited by member 08 Dec 2022 at 21:38  | Reason: Not specified

User
Posted 08 Dec 2022 at 18:20
Nice one GG 👍
User
Posted 08 Dec 2022 at 20:29
Great news GG and long may it continue. X
User
Posted 08 Dec 2022 at 20:48

GG, great news, long may it continue.

Thanks Chris 

User
Posted 08 Dec 2022 at 21:04

Great news GG, Big thanks for your QEUH detail. Was as you said.

 

Jamie

User
Posted 08 Dec 2022 at 21:09

Glad it went well Jamie, [Doctors name removed by moderator]

GG

Edited by moderator 08 Dec 2022 at 21:42  | Reason: Not specified

User
Posted 08 Dec 2022 at 23:17

Brilliant news GG.

Long may it continue.

Have a wonderful Christmas & New year x

Edited by member 08 Dec 2022 at 23:18  | Reason: Not specified

User
Posted 09 Dec 2022 at 12:44

Great news on your PSA GG. Wishing you all the best for Christmas and 2023.

Ido4

User
Posted 11 Apr 2023 at 16:02

Hi all - apologies, I haven’t been around much but have been trying to live life without cancer thoughts in my head.
however I thought I would check in to update on my progress. Just had my regular post PSA  call - still undetectable - a huge sigh of relief ! The waiting time between the blood test and the result is always tough, but I can put it out of mind for six months now and enjoy the summer.

I am still 99.9% continent and frequency is not as big an issue as it once was. The only downside is ED, still no stirrings. I now have a vacuum pump but struggle to use it (don’t seem able to get a seal ) - I’ll persist though. 

Best wishes to all. I hope my journey gives hope to others who are at an earlier stage in their diagnosis or treatment choices.

GG

User
Posted 11 Apr 2023 at 16:15
I now have a vacuum pump but struggle to use it (don’t seem able to get a seal ) - I’ll persist though

Have you tried the following:

- trim pubic hair as close as you can (but there is no need to shave)

- smear the lube around the end of the tube as well as the inside

- sit rather than stand until you have the knack

- pump for a few seconds, pause, pump, pause

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Apr 2023 at 17:02
Great technique description Lyn works every time for me...
User
Posted 11 Apr 2023 at 18:17

Great to hear from you GG and that your PSA is still undetectable.  Can’t offer any advice re the pump but I know after last conversation with surgeon he said can be up to 3 years before nerves heal (if at all). Best wishes x

User
Posted 11 Apr 2023 at 19:40

Lyn's description is perfect. Yep trim the pubic hair. 

User
Posted 11 Apr 2023 at 21:11

As good a news as we could hope for GG. Wishing you so much warmth.

Oh and. GG?

Between you and I...

How easy is it to love Lyn??

 

Jamie.

User
Posted 11 Apr 2023 at 22:34
Humph, you wouldn't think that if you met me in real life - I am pedantic, brutal and make people cry a lot. I have big boobs though and, if I speak at a conference, someone always comments on my beautiful shoes 🤣
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
Forum Jump  
«<3456>
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK