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NHS waiting times/going private

User
Posted 15 Jan 2022 at 16:40
My OH had RARP on 8 Dec 2021. He was seen by a surgeon for initial discussion on 11 Nov 2021. He was told surgery probably wouldn't be until Jan 2022 but was called with a last minute slot 6 days before surgery. Suspect it may have been a cancellation. He was Gleason 4 + 3.
User
Posted 15 Jan 2022 at 16:48

Thank you very much. I've involuntarily joined the PC club just this week, and it at times feels scary, and other times not. Suspect it will be an emotional rollercoaster, but it's great to have all of this support.

User
Posted 15 Jan 2022 at 16:56

For hormone therapy, I was told I would be given tablets for 28 days then injections for up to 3 months before radiation treatment?

As I am new to all this, why do they do it like that, and should I be ringing up my support nurse next week to see when things might start?

Thanks in advance...

User
Posted 15 Jan 2022 at 17:40
To John above, My OH was also Gleason 3+4 result and was told it was slow growing as everyone here seems to say. That being the case, not to be a scare-monger, but it only takes one cell to cross that barrier before the operation if we are going down the RP route which we are.... and yes, I am scared, which I guess we all are here. That said, I think a two month wait with the NHS means they are doing very well at the moment (although obviously not well enough to keep out minds racing at the delays). Ask to be put on the list for any cancellations. We can only all hold our breath....
User
Posted 15 Jan 2022 at 18:02

Originally Posted by: Online Community Member

For hormone therapy, I was told I would be given tablets for 28 days then injections for up to 3 months before radiation treatment?

As I am new to all this, why do they do it like that, and should I be ringing up my support nurse next week to see when things might start?

Thanks in advance...

When you start having the injections, it causes a rush of activity in the cancer cells called a tumour flare. The tablets 'disguise' your testosterone to stop the tumour flare. Usual practice is that you have the tablets for 14 days, first injection is given and then you carry on with the tablets for another 14 days. 

Some men are given their tablets at the appointment with the oncologist and start taking them immediately. In other areas, the man is told to collect a prescription from the GP. Will you be having your injections at the hospital or the GP practice? 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Jan 2022 at 20:23

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

For hormone therapy, I was told I would be given tablets for 28 days then injections for up to 3 months before radiation treatment?

As I am new to all this, why do they do it like that, and should I be ringing up my support nurse next week to see when things might start?

Thanks in advance...

When you start having the injections, it causes a rush of activity in the cancer cells called a tumour flare. The tablets 'disguise' your testosterone to stop the tumour flare. Usual practice is that you have the tablets for 14 days, first injection is given and then you carry on with the tablets for another 14 days. 

Some men are given their tablets at the appointment with the oncologist and start taking them immediately. In other areas, the man is told to collect a prescription from the GP. Will you be having your injections at the hospital or the GP practice? 

Hi Lyn,

I think I have to go to the hospital at the beginning and then the GP practice will give the injections.

Thanks for the background info... so much to grasp!

User
Posted 15 Jan 2022 at 22:09

Guessing we were very lucky . My OH was Gleason 4+3 and was operated on within 2 weeks . We are in Kent and this was NHS last July .

 
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