Quick update. Latest blood test showed CRP up to 139 so GP made me an appointment for yesterday afternoon at 5.30. Told her about my taste issues and lack of appetite and she said go to A&E and wrote a letter to take.
Well we all know what A&E is like but we got seen. They did another blood test and my CRP had gone down to 40. Doctor said it could be the Radium doing it . But we just said we are here because of my mouth and appetite not the CRP. She said what would you like us to do 🤔…
They ended up giving me an infusion of an anti nausea drug Ondensetron with a prescription for pills. Well I couldn’t eat one mouthful of cereal this morning as the milk tasted off. Tried a slice of toast - no good. So not convinced the new meds gonna work.
Palliative care nurse calling today…. We have discussed putting steroids back up to 2mg from 0.5mg.
All my organs are within range so I just don’t know what they can do but I can’t go on like this.
Will keep you all posted .
Take care
Phil