Support and Advice

User

Posted 10 Jun 2022 at 23:33

I had a TRUS biopsy. They gave me an injection which knocked me out so I don't remember any of the procedure itself.

Afterwards I had to stay in the ward until I was no longer peeing clots and blood. However, that night at home the clots came back and I ended up back in A+E but they checked me and said I only needed to worry if there was a blockage. Peeing the clots for a day or two is unpleasant but normal after this procedure. Can't quite remember but I think it took a few days for the urine to go clear again.

As for semen, ejaculating was painless but the semen it pure bright red like something from a horror movie. They never mentioned that to me so it was quite the surprise. I think it took a few weeks for the semen to clear up again.

Best of luck with the biopsy and everything that follows.

User

Posted 17 Jun 2022 at 21:17

Hi All, so Mike had his biopsy yesterday afternoon. He told me that they had taken 26 samples, isnt this a lot?? Anyway he felt ok and today continued to feel ok with no side effects. He came shopping with me and intends to play tennis on Monday. He is not in any pain at all so I am amazed at this husband on mine who is coping so well. Apart from a slight issue last night with PU he is okay so far.

We now wait for this results and hope all will be okay. I will need to find out if 26 samples from a biopsy is right. Has anyone else had this many please?

User

Posted 17 Jun 2022 at 21:29

Depends on the type of biopsy but anything from 12 to 40 cores is normal.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 18 Jun 2022 at 12:08

Thank you for this, it has reassured me. Today in the Sunday Times there is a really interesting article entitled, " Prostate Cancer Patients to Avoid Chemo". I will try and find the link to it.

Mike has now been diagnosed with Malignant Tumor of Prostate and on the (th June after his MRI its Metastatic Cancer. Its all so frightening however hubby is taking it quite well, in fact a lot better then me!

User

Posted 18 Jun 2022 at 12:29

Hi Maud. It sounds like they have taken a good selection of samples which seems to be the norm for PCa. I know I had samples taken from 8 different areas but probably multiple samples in those areas if that makes sense. I am glad to hear he is coping well and I hope you are too. Fingers crossed for some good news from biopsies. Best wishes.

User

Posted 18 Jun 2022 at 14:07

I have just read the article entitled " thousands could be spared pain of prostate chemo."How I wish this had been known sooner. Chemo destroyed the last few weeks of my husband's life and the cancer escalated far more quickly than expected.

I feel angry and sad that he suffered so much pain and complications as a result of agreeing to something he believed would give him more time. It doesn't help when you are grieving to find out there may have been a kinder option. I hope all goes well for you and keep asking questions along the way.

User

Posted 22 Jun 2022 at 18:22

Hi I am not sure what happened to my earlier conversation as for some reason I cannot find having posted it a few hours ago.

I wrote to say that Mike ( hubby) had his Decapeptyl Intra Muscular injection this afternoon. He will have it again in 6 months time and I am not sure why such a long break before the next one? Mike continues to play tennis and badminton, is pain free and eating well and on the whole feels ok. Long may it last. Has anyone had experience of this particular type of hormone please?. Would be good to know how they got on?. We will see the Consultant in 2 weeks time to hear the biopsy results which of course I am dreading!

Hope everyone is enjoying the lovely sunny days we are having so far.

Maud.

User

Posted 22 Jun 2022 at 18:46

Hi Maud been on 3 monthly decapeptyl injections for 13 months bit off weight gain so excercise is important generally tolerable had odd bone pain in the early days just two more to go I was Gleason 9 5/4 psa 24.9 now 0.01 so far so good good luck with his treatment 👍

User

Posted 22 Jun 2022 at 18:51

Thank you for sharing your experience. I really appreciate it.

User

Posted 22 Jun 2022 at 19:30

No problem found decapeptyl tolerable on the whole 👍

User

Posted 22 Jun 2022 at 20:14

So reassuring to hear your comments and thank you for sharing it. Hope you are doing ok as well.

User

Posted 22 Jun 2022 at 20:37

Thanks Maud doing really well feared the worst in the beginning had 37 sessions off radiotherapy as well as the decapeptyl worked all way through the treatment and still at work at the moment things are ok there is light at the end of the tunnel good luck to you both keep positive 👍

User

Posted 28 Jun 2022 at 14:32

Hi all, my hubby had his first Decapeptyl hormone injection last week and apart from feeling sleepy in the afternoons, he has been ok. However over the last 3 days he developed a hoarse voice and sore throat. This does not appear to be one of the side effects mentioned with this drug. My overactive mind is worried this could be something else. Has anyone experiened this at all please. Any feedback would be greatly appreciated.

Maud

User

Posted 28 Jun 2022 at 15:07

Hi Maud had similar symptoms after my first injection but it wore off in a couple off weeks and no problems ongoing 👍

User

Posted 28 Jun 2022 at 15:18

HI Gaz, thank you for your quick and reassuring response. I know Mike will be pleased to hear this.

Maud

User

Posted 28 Jun 2022 at 15:19

No problem odd off day but been on decapeptyl 14 months found it tolerable 👍

Edited by member 28 Jun 2022 at 15:20 | Reason: Not specified

User

Posted 04 Jul 2022 at 12:01

Hi All, so Mike will get his biopsy results tomorrow and whilst he is okay about it all, I am once again thinking the worst. What I cannot understand is that whlst we know Mike has stage 4 metastatiaac cancer, what other news will he reveive from the biopsy results. Can it be any worse that what we already know?. He is doing really well on his hormone injection treatment. Is now back to playing tennis and badminton 3 times a week. Looks well and is almost back to his normal self, also not in any pain what so ever. I hope all of this is a good indicator that the treatment is working, for how long though remains to be seen.

Hope you are all doing ok and taking good care of yourselves.

Maud

User

Posted 04 Jul 2022 at 14:17

From the medics' point of view, it is really helpful to have confirmation of which type of prostate cancer it is (there are 27 different types) as some types are more aggressive than others and respond differently to certain treatments. It is also the only way to find out the Gleason grade.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 04 Jul 2022 at 14:57

Thanks for this Lyn, surely as Mike is doing so well on his hormone treatment despite the results he would be left to carry on with what he is on now?.

User

Posted 04 Jul 2022 at 15:13

Yes but they will still want confirmation of what they are dealing with. In very rare cases, where the PSA is in the many thousands and scans have shown extensive mets, the oncologist may decide to not do the biopsy due to increased risk, but for most men, the biopsy information is important.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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