recurrent psa 0.2

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User

Posted 31 May 2025 at 08:11

thank you so much,i will take all those tips on board.

User

Posted 31 May 2025 at 08:39

this may help somebody but im sure i may be last to know this but if undergoing cancer treatment or effects of cancer treatment everybody entitled to free prescriptions ask for form fp92a at gps or oncologist....wish id been told earlier,exempt for 5 years for all medication.thank you all for help,good luck all

User

Posted 31 May 2025 at 09:07

I had salvage RT (33 sessions) last year (with HT). No problems at all. My nurse said it was probably because I was consistently well hydrated. (2 litres a day, every day). I filled a pop bottle with squash in the morning and didn't go to bed until it was finished, a nurse advised me that squash was better than water because the body has to process squash. Very easy to monitor intake that way. I also had a 2 hour round trip and took spare pants and trousers and a couple of pads but never needed them.

Good luck.

User

Posted 31 May 2025 at 18:47

I had 32 sessions of RT in 2016, I was also on , for 3 yrs with abiraterone,enzalutimide,prednisolone for 2 yrs on trial so any tiredness/fatigue etc may be more due to HT rather than RT. However I'm sure I did get a bit more tired/fatigued as RT progressed but not too bad, nothing compared to HT anyway. Bladder urgency did increase and had few issues with bowel control as treatment progressed and after it finished for a while. Soiled myself 3 times whilst out which obv not great, despite emptying bowel before went out. These were sort of expected though. My RT was at clatterbridge, thankfully less than 10mins from home, the policy there was mini enema upon arrival and when staff knew you were up shortly told to drink 3 cups water.

When I was out for the day etc whilst still having 'effects' i'd take imodium which worked well. I was advised not to change diet too much at all other than try avoid beans, sprouts etc things that produce wind, they want things to stay same as possible.

Peter

User

Posted 01 Jun 2025 at 06:11

Thank you Peter, immidium is a top tip, I feel better prepared with the advice given by you and others. I'm very grateful for the time you've taken to share.

User

Posted 06 Jun 2025 at 17:09

two sessions in and so far so good,been told side effects may kick in next week,most arduous task so far is watching daytime tv to see if enema does anything,not yet,and waiting for water to reach bladder

,amusingly, to me ,radiographers couldnt find tattoos from planning scan so now ive an indelible ink cross in my shrubbery. first treatment took 15 minutes todays nearer 10.have weekend off now,feeling staying hydrated is helping ???

User

Posted 27 Jun 2025 at 19:04

now 90% through,sideeffects intermittent but annoying,have untrustworthy farts,and some utgency to pee.overall treatment been first class,find days when dont have treatment hard.long weekend ahead then finish treatment tuesday,i find out results september,hoping side effects ease by then,have others experience i can lean on?aim of treatment is to contain and hopefully cure.psa at start 0.63,which i believe is high.best wishes

User

Posted 27 Jun 2025 at 22:37

Well done, good luck for the tests in September, hope all the side effects have cleared up by then..

User

Posted 28 Jun 2025 at 07:58

You're almost there.

For me, the worst of the side effects were gone after about a month, although the sudden urge to pee still happens now and then, but I can clench my pelvic floor until the sensation subsides and it's almost second nature now.

Good luck,

Kev.

User

Posted 28 Jun 2025 at 09:20

Thank you kev, good to know side effects may go quickly, then back to olde psa anxiety,feel very lucky that 8 years after surgery I'm still fighting and on top of cancer. Best of luck to you.

User

Posted 29 Jun 2025 at 09:13

Don't know if I would be able to do it but after 10 years of PSA "anxiety" I think I may just not bother with PSA testing if/when I have salvage radio therapy. Just wait for symptoms and treat it then.

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