I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<1234>»

Tony on Palliative care only

Email this conversation Print this conversation
User
Posted 16 Jul 2022 at 06:55

Tony is still in hospital, his infection level came down but now seems to be on the rise again. hope they soon sort it as he really wants to come home and is losing quite a bit of weight. 

 

 

barbara x

User
Posted 16 Jul 2022 at 07:05
Keep thinking of you. I literally lose the plot in hospital with noise sensitivity etc. I don’t blame him. Wishes to you both x
User
Posted 16 Jul 2022 at 12:39
Oh, I really hope he is home with you soon Barbara xxx
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Jul 2022 at 14:54

Thinking of you both and hope Tony’s  infection can be sorted asap so he can come back home where you can have time together.

Ange x

User
Posted 18 Jul 2022 at 06:21

Tony is coming home today sometime this afternnon as he is having dialysis this morning, he had a scan on saturday to see what was going on as his infection markers where going up again, the cancer is spreading really fast now and it has spread to his lungs and chest, they phoned me from the hospital yesterday as he asked them for the results , they wanted to wait until someone was with him but he insisted and then got in a state when they told him so they phoned to see if i could go up there, i asked on the phone how long they thought he had left and they said probably about 3 months or if the dialysis gets too much for him then it would only be a few weeks once he had stopped it, at the moment he wants to carry on with dialysis. I have told our 4 children he is coming home today but have not yet told them the whole story as one of them is in tunisia on holiday at the moment and i know his reaction would be to try to come straight . Just getting my head around it at the moment although i knew he was getting worse but being told seems to make it worse.

 

 

barbara x

User
Posted 18 Jul 2022 at 12:15

So sorry Barbara, our thoughts are with you and Tony and all the family at this really difficult time. Glad Tony is coming home though where he wants to be xx

User
Posted 18 Jul 2022 at 12:22

Sorry to hear this Barbara. You're right not to interrupt the children's (I assume we are talking 30s or 40s) holiday. There is nothing anyone can do, so the living should get on with their lives.

Coming to terms with his imminent death is just not something us humans had to do before medical science helped us live so long. 

These next few months will be tough. Please remember to set aside some time for yourself. I don't know if you have some hobby you can do once a week ideally with other people, but even working in the garden for an hour could be good.

Dave

User
Posted 18 Jul 2022 at 22:36
Heart breaking for you Barbara. As ever only strength and love to you both x
User
Posted 18 Jul 2022 at 23:10
So difficult for you and your family now. You all need each others support. Stick together and look after you as well.

Hope things are as comfortable as possible in the time left.

Cheers

Bill

User
Posted 19 Jul 2022 at 01:37
Sending as much strength to you all as I can. I hope you can spend your time together as much as possible.

My thoughts are with you

Michael

User
Posted 19 Jul 2022 at 10:56

Thanks everyone for your lovely replies, he finally got home at 8.30pm last night and was so pleased to be home.

 

love barbara x

User
Posted 19 Jul 2022 at 14:03

Really pleased he is home Barbara sending my love to you both 

User
Posted 19 Jul 2022 at 18:53
Sending that comfort blanket to you now Barbara xxx
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Jul 2022 at 19:06

Thinking about you both Barbara. Good thing the comfort blanket is on its way to you, it’s sent with hugs. 

User
Posted 19 Jul 2022 at 22:35

So pleased to hear that Tony is back home with you Barbara.  Thinking of you both and sending our love.

Ange x

User
Posted 20 Jul 2022 at 11:46

Barbara, sorry to hear of your situation, good that you have him home. Sending love and hugs.

Thanks Chris 

User
Posted 22 Jul 2022 at 09:09
Send you both love and ((((((hugs)))))))

Bri

User
Posted 23 Jul 2022 at 13:39
got a phone call thursday from the hospital tony had been in to say he had covid and now i have it, tony seems ok,

by the time we new he had it it was too late for the meds he should have taken but his macmillan nurse said that quite a few of her cancer patients have had it and have not been unwell.

regards barbara xx

User
Posted 23 Jul 2022 at 14:29

Hi Barbara hope you are doing well. I think the fact all those bad infection markers and fears the cancer had spread to lungs and chest, might need reinterpreting in the light of the fact he had COVID when these investigations were happening. The very fact he has got over COVID when we were thinking he was in the end game is hopeful of an improvement in his quality of life for a while.

Dave

User
Posted 24 Jul 2022 at 09:29

Hi Dave , he had a ct scan before he came home and it showed it has spread to his liver,lungs.chest area and other places, it is spreading rapidly and the macmillan nurse has said it will be weeks and not months because of how it is advancing, x

 

barbara.

 
Forum Jump  
<1234>»
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK