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Just diagnosed at 41

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User
Posted 23 Jun 2023 at 02:16
Hhhmm, a mixed bag. Good news is that there is no cribriform and no mention of the tertiary 5. Bad news is those positive margins on both sides. It will be interesting to see whether your urologist refers you straight to oncology to discuss adjuvant RT or whether they wait to see what happens to your PSA.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 23 Jun 2023 at 12:48

The bit about it being organ confined, no extraprostatic extension, and pT2--is that a favorable finding from pathology, or was that an established fact going in to the RP based on my PSMA scan?  I'm just trying to reconcile organ confined with positive margins meaning something likely escaped.  I just started researching adjuvant RT and resulting reoccurrence rates.  Not super encouraging as I had hopes to be done with this forever 🫤

User
Posted 23 Jun 2023 at 13:10
Pathology post surgery, I was upgraded from T2b to T2c, yet psa remains undectable Perhaps your next appointment the margins will be discussed. It will be the PSA values returned in the blood tests over the coming year/ 18 months that will provide a better view.
Continue healing .

P.
User
Posted 23 Jun 2023 at 16:31

Originally Posted by: Online Community Member


The bit about it being organ confined, no extraprostatic extension, and pT2--is that a favorable finding from pathology, or was that an established fact going in to the RP based on my PSMA scan?  I'm just trying to reconcile organ confined with positive margins meaning something likely escaped.  I just started researching adjuvant RT and resulting reoccurrence rates.  Not super encouraging as I had hopes to be done with this forever 🫤



The organ confined / no EPE / T2 just confirms your diagnosis from the biopsy and scans. 


There are two kinds of positive margin - interior and exterior. An exterior positive margin means that the cancer had broken through the gland covering and can be seen touching or passing the inked / wax edge. An interior positive margin means the surgeon has accidentally left a bit of the prostate behind - a medical error.


Statistics for recurrence are different depending on whether it is an interior or exterior margin. A positive margin does not necessarily mean that some cancer has been left in your body or that you will need further treatment - your PSA results over the next couple of years will tell you. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 23 Jun 2023 at 18:36

Got it, thanks.


I also called them this morning about my discomfort and slow stream.  They suspected UTI and sent me a prescription of antibiotics.  I also mentioned I saw the pathology report.  The PA I spoke with said she heard my 2 main docs talking about me earlier today and heard the one who ran most of my surgery say that something ruptured during the procedure and that could have caused a false positive margin.  Not sure if they are just trying to make me feel better but she said we would talk more about it next Friday so I guess that's possibly encouraging I guess.

 
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