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PSA raising 1 year post RP

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User

Posted 19 Sep 2023 at 08:06

It means the treatment may need to be more aggressive. Intra ductal is a rarer form of prostate cancer.

You need a thorough chat with the onco to understand all the options. I would be asking about suitable scans and what the target if any salvage radiotherapy would be. It is probably worth asking what experience the onco has with this type of PC too. If the answer is "not much" seek a second opinion on the suggested treatment.

Edited by member 19 Sep 2023 at 22:54 | Reason: Not specified

User

Posted 19 Sep 2023 at 21:00

Hi Franc

Thanks for you reply, thank you to everyone one replying, you can not imagine how your opinions and experiences are valuable.

Franc in your last phrase you said "option" did u mean it or did mean opinion?

Thanks

Sandra

User

Posted 19 Sep 2023 at 22:54

Updated to opinion - sorry can't tyep

User

Posted 23 Oct 2023 at 20:28

Update:

Following PSA rise to 0.38 seen onco on the 13/10, his plan is an aggressive approach, 20 RT session to pelvis lamph node plus HT. PSMA scan said would take time long waiting list, chances of results on PSMA minimum as onco said less than 0.40 not visible, his opinion is that recurrence probably in bedding and possibly lamph nodes.

He said any delay is not welcomed, treatment needs to start straight way, first HT injection was given on the same day.

Obviously we are very worried about the treatment the outcome, side effects on bladder and bowel, my husband is worried about his work and whether he is going to be able to work or not. I am more worried about what outcome will be after the salvation RT+HT.

RT should start on the 10/11

Any experience sharing would be much appreciated.

Thank you for all your support

User

Posted 23 Oct 2023 at 22:33

Hi Sandra,

Sorry I hadn’t seen your previous updates.

Sorry to hear his PSA rose again and now more treatment is needed. Good that they want to get everything started asap though.

Rob had his first RT session today and been on HT for about 10 weeks. So far not too bad but will keep my thread updated of any changes.

Robs PSMA pet scan didn’t show anything so we’re going for best guess also with RT to bed & nodes.

Really hope all goes well for you both x

User

Posted 24 Oct 2023 at 08:28

Sandra, most men tolerate RT pretty well. The side-effects of the radiation are cumulative; when I had my (primary) RT I had 32 sessions over six and a half weeks. No real side-effects for the first three weeks, then a gradual increase in bowel issues and urinary irritation and urgency. Side-effects typically peak 10-14 days after the end of treatment. For me, the urinary issues sorted themselves out within a few weeks after that, but bowels didn’t achieve anything like normality for about six months. It was inconvenient, but not a “show stopper”; if I went out I took an Imodium tablet and everything was fine.

Hope all goes well,

Chris

User

Posted 24 Oct 2023 at 08:50

Hi Sandra,

Everyone is different so I can only speak from personal experience, I suppose the side effects it has a lot to do with your plumbing and whether there are any ‘bits’ in the way.
I had 20 sessions of RT and found it a breeze compared to HT. I had some minor bowel issues…urgency when out walking and no control, fortunately happened near home so only had to walk a few yards looking like a spaceman!🤣🤣🤣 That sorted itself out very quickly as did issues with needing to pee.
I also didn’t suffer from fatigue which many men do, although since RT I have not had the same energy as beforehand, although I think that’s mainly down to the effects of HT and joint ache. For me the side effects of HT are far worse than that from RT.

Anyway, if it has to be done, it has to be done! So the best thing to do is to stay active and busy, and don’t stop during RT, and staying positive helps a lot as well.

All the best for your OHs’s treatment.

Derek

User

Posted 24 Oct 2023 at 12:44

I had a RARP 9 months ago. Pathology Gleason 9 (4+5), Grade 5. I understand that.

Extraprostatic extension left posterior - radial distance 1 ml - haven't got a clue what that means, googled it, still non the wiser???

Invasive micoacinar adenenocarcinoma - not a clue???

Since then had 3 monthly PSA checks - first < 0.02, second <0.05, third <0.02. The first and third checks were done at one hospital the second at another. I've been told that I've got a 50% of recurrence.

I've also been told that these readings are all classed as 'undetectable' and only a rise to 0.2 would cause possible further treatment.

Edited by member 24 Oct 2023 at 13:42 | Reason: Typo

User

Posted 24 Oct 2023 at 22:14

Hi Elaine

Thank you for your reply, I hope that the first session will go well, please keep us updated how it went.

All the best

Sanda

User

Posted 24 Oct 2023 at 22:16

Thanks Chris and Decho for sharing.

User

Posted 24 Oct 2023 at 22:20

Adrianus thanks for sharing, hopefully your PSA will remain under 0.2, and stay at undetectable. Pleased keep us updated.

Kind regards

User

Posted 24 Oct 2023 at 22:26

Thank you everyone for your reply, it is really valuable to us.

My husband is going to have a pelvis CT scan next week before the first RT session, this is to see the bowel and bladder position.

Any tips from the ones whom went through RT from your experience, how to best get prepared.

Many thanks

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