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Hubby Gleason 4+4, PSA 34, terrified

User
Posted 07 Aug 2023 at 22:48

Originally Posted by: Online Community Member


Hi Elaine. Should I use the name I’m replying to, like I just did? I realized after I sent the question that I’m in the U.S. so I’m sure their hospital is in the UK.   Thank you.



 


Yes that definitely makes it easier to understand who you are responding to as I don’t think the reply button works as it should.


To be honest I always assume everyone is in the UK but there are actually many members from all over the world. If you click on the persons profile it will often tell you the country they are from 👍

User
Posted 08 Aug 2023 at 21:49

Elaine,


Thanks for the clarification. Cheers!

User
Posted 10 Aug 2023 at 22:15

Hi all thanks again for your continued support...it really is appreciated.


We actually live in the Netherlands but are English, we're being looked after by two hospitals, one of which is a university hospital with specialist prostate department. 


Since my last post, hubby has been given a zoladex implant, tomorrow we're off to the radiology team and next week we're doing the oncologist. I think I confused myself with regards to the tablets they have suggested...I thought they were chemo type tablets but it looks like they will be a combination of enzalutamide and abiraterone. Following the Stampede protocol which I think was a clinical trial. Then radiotherapy. 


About the sternum, I believe they said it was in the bone of the sternum but I'll ask them to clarify that when we see them next week. 


That's the update so far, thanks again, Su xx

User
Posted 11 Aug 2023 at 07:41
Hi again ! My hubby was on the stampede trial (arm j) involving both these drugs ,his results were fantastic but he lost all strength and was tired . Last October he was asked to stop the abi after being on it for 6.5 years as data had shown there was not much difference to just having one or the other but the toxicity of both was causing the side effects.Since stopping Abi he has regained some of his strength and also generally feels more alert .His PSA has still continued to be undetected.
Hope this helps
Debby
 
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